Sleapy head what ???????????

[this-sucks]

ok to the long posts and yes to JohnBFisher i say like to many times sorry i saw hot spot and miss focused like i said in this and others my health and skills have become a hot button

But if you don't give a damn and just want to complain about the pain, then I sure won't stop you] is what i saw and i lost my manners

and robysue that last was out of order but deserved i caome across many ways many forms all i want is what everyone here wants respect and the curtisy to ask to clarify and that crap

i have and do admit i focus i scan i try hard to red at least 5 times before acting but i did what i know i shouldn't have i saw wallow in pain or whatever words and blew sorry doesnt cut it

can i try to earn trust and people back is more proper than sorry sorry in my eyes just means it will happen again i have worked hard with a counselor to better myself and stop stuff like this and this was a back track

i have taken a step never taken before you know all but my name and a few other details

that my first step and yes i have had you guys trying to get readout importance it takes a while for me to get it to sink in im trying and thats all i can do for you

i dont want woos pity or crap i snap i vent and it come off like pity there are thousands worse than me

i will and am willing to relearn trust and relearn cpap machines and charts i need patience no excuses adhd i am touch hear they made a letter for school

but i am and will continue to do my best tor read properly and learn just be patient

[ems]

So glad you felt comfortable enough to post here. Most people here are kind and considerate. Some people have more knowledge than others... sometimes they are on line and sometimes they aren't. You have received some really good information here, and I'm sure others will chime in. Hang in there! Welcome to this forum.

[this-sucks]

I'm actually kind of amazed that you're having such large leaks with a total-face mask. But I've not used one of these, so I don't know how well they fit. I wonder if your straps are too loose or too tight. Either way, if this is normal for you, have you considered trying a new mask?

backtracking to answer you have sensitive o a disorder i forgot hyper sensitivity to everything skin my nose has deep dents from the masks i tried i had severe infected hole that left a dent so i have no choice but the fit life complete face mask

is my only choice went through wow lost count 20 or more masks lost count

as for tight the top straps almost touch in back has had to be that tight for as long as i have used fit life series i know its supposed to puff like a pillow or some crap like that but i found it would come loose in the night and wake u with chatter

its far from fun i have unheard of fibro sensitive points up there and makes face red but its sealed i check and wash me and mask at night for good seal i can dig my finger between face and mask and not get air untill the seal breaks it hurt the ears but i grab the front and pump it a time or two that helps

so like i said has to be machine

[robysue]

thank you very much for the kind easy to follow information its still confusing but i am getting the importance of leaks and effects on threapy

There's a lot to learn. But you can take it as slowly as you need to. By the way, we're pretty patient with new members who ask the same question more than once. We all know what it's like to be sleep deprived and cranky and not at our best in terms of learning stuff.

my machine is here it is straight off the machine

ok the front Philips Respironics bipap auto biflex

bottom same bipap auto REMstar heated humidifier

Please check out my thread at viewtopic/t72302/Respironics-Confusing- ... wbies.html to figure out whether your biPAP is a Series 50 or a Series 60. Since you've had at for three years, my guess is that it's a Series 50 System One BiPAP Auto. Check the pictures in the above link and fill in your profile. It will save time when you are asking for help because you won't have to keep telling us over and over what machine you have.

humidifier has broken door still seems to seal it was making lots of different leak noises but cut a plastic piece out and duct tape seems to seal but prob not a good one

main machine humidifiers malfunctions wont run it second bad main board it has a tend to eat cards shut off etc like said it needs a 3rd repair im on medicare but now after two they want cahs for 3rd repair temp mach when medicare covers it

What keeps happening to the machines???? Are you by chance pulling them off the table at night in your sleep?

it has to be the machine like i said mask is so tight even with beard i feel no leaks

No, the mask does NOT need to be so tight as to trigger headaches---even with a beard. There are men on here who have full beards and can seal their masks without overtightening them. I suggest that you post a thread with the title: Need tips for sealing mask with full beard. In the first post you need to tell people what kind of mask you have.

To start with: Does your mask cover just your nose? Or does it cover both your nose and face?

i have a filter between mask and hose due to allergies it just slows air and water no leaks in plastic or connections

This is not a standard set up. Where did you get the filter? Many of us do have allergies, but the filters in the back of the machine are usually enough to take care of pollen, pet, and dust allegergens.

now i know what why and all and that my ap could be managed better wont be miricals from day one its never been perfect but it did help a small bit more than it does now

Just like your many other medical condititions, OSA takes some effort to manage it well, but the payoff in terms of improved daytime functioning is worth it. The hard thing for you is that you've got so many conditions, any one of which would be difficult enough by itself. But ce la vie.

i am screwed though im only at my 3 year mark and it has to be 5 to get new machine and no one will fix this so i may just be stuck or more super glue and duct tape

Again: Exactly what happened to break the machine? Has the DME told you why they will not fix the machine?

alright just help nothing rude or other crap i have never trusted a forums with this

Lots of folks have bad experiences with lots of forums. We're a lively bunch and quite opinionated. But (and it's an important but) we don't like to blow off people who are in obvious pain and need. Many of us don't particularly trust the system all that much because of personal experience. Many of us realize we're blessed with a wonderful DME or a great doctor and we know that our experience is not typical of the average OSA patient.

But we do try to help people. Sometimes we can come across as a bit heavy-handed: We don't mince words when we see someone who is persistently undermining their own health interests or who persistently refuses to even consider the advice we offer.

and lastly my typing my thinking etc it gets scrambled dont see full posts unless i read a bunch and gets messed from thinking to post plus just post without thinking always have same in life

There are reasons why your typing and thinking gets scrambled. We deal with that. But at the same time, you will need to work within your own known limitations. If a particular post strikes you as "wrong", don't respond right away. Let it slide for a while. Go back and reread it or just ignore it completely.

And take the time to re-read posts that are teaching you new information more than once. There's a whole language that you don't know yet because you are new to the forum and your sleep medicine team has not been particularly helpful in educating you about your OSA.

I'll write more later about the multiple problems and meds and how they might be influencing some of what's going on in your sleep. But I gotta go to supper and hubby is taking me out to eat.

so thanks[/quote]

[this-sucks]

wow you like long ones lol

thank you very much for the kind easy to follow information its still confusing but i am getting the importance of leaks and effects on threapy

There's a lot to learn. But you can take it as slowly as you need to. By the way, we're pretty patient with new members who ask the same question more than once. We all know what it's like to be sleep deprived and cranky and not at our best in terms of learning stuff.

thanks

my machine is here it is straight off the machine

ok the front Philips Respironics bipap auto biflex

bottom same bipap auto REMstar heated humidifier

Please check out my thread at viewtopic/t72302/Respironics-Confusing- ... wbies.html to figure out whether your biPAP is a Series 50 or a Series 60. Since you've had at for three years, my guess is that it's a Series 50 System One BiPAP Auto. Check the pictures in the above link and fill in your profile. It will save time when you are asking for help because you won't have to keep telling us over and over what machine you have.

humidifier has broken door still seems to seal it was making lots of different leak noises but cut a plastic piece out and duct tape seems to seal but prob not a good one

main machine humidifiers malfunctions wont run it second bad main board it has a tend to eat cards shut off etc like said it needs a 3rd repair im on medicare but now after two they want cahs for 3rd repair temp mach when medicare covers it

What keeps happening to the machines???? Are you by chance pulling them off the table at night in your sleep?

right now i sleep in a recliner and the machine is on one of those small storage tubs with the supplies in it

when i was able to sleep in the bed 3 or so feet a small table

whats happening the humidifier i just opened the dam thing and pop the lid came off and one side wouldnt go back in right it was normal no fall not rough jut opened like always pop

as for the main machine dont ask me like in my posts my masks machines everything tlc and no drops im just one of those suckers i have had only two or so drops less than a foot

they just are not fixing using quality parts i really dont know

it has to be the machine like i said mask is so tight even with beard i feel no leaks

No, the mask does NOT need to be so tight as to trigger headaches---even with a beard. There are men on here who have full beards and can seal their masks without overtightening them. I suggest that you post a thread with the title: Need tips for sealing mask with full beard. In the first post you need to tell people what kind of mask you have.

To start with: Does your mask cover just your nose? Or does it cover both your nose and face?

i have res fit life basically fireman's mask

i have a filter between mask and hose due to allergies it just slows air and water no leaks in plastic or connections

This is not a standard set up. Where did you get the filter? Many of us do have allergies, but the filters in the back of the machine are usually enough to take care of pollen, pet, and dust allegergens.

its not standard but i do know only fault it causes is needs more pressure and humid has to be set higher my medicare companie tosses those to me for free without it i gag in the mourn im hypersyns everything is over board hearing taste allergies etc

now i know what why and all and that my ap could be managed better wont be miricals from day one its never been perfect but it did help a small bit more than it does now

Just like your many other medical condititions, OSA takes some effort to manage it well, but the payoff in terms of improved daytime functioning is worth it. The hard thing for you is that you've got so many conditions, any one of which would be difficult enough by itself. But ce la vie. yea if i showed full report its am before its on sometimes 24 up it has 7 6 and even 5 hours a night

i am screwed though im only at my 3 year mark and it has to be 5 to get new machine and no one will fix this so i may just be stuck or more super glue and duct tape

Again: Exactly what happened to break the machine? Has the DME told you why they will not fix the machine?

ok again it does it with no warn the humid weeks ago machine hadent moved for months boom humid lights flashing the shop says is pressure sensor on boar whole board may be bad again it makes a loud beep when it wants stops air exhale its starts to many to list dme dont know that term i had original place i got it from fixed it second time with tones o complaints and slandering to medicare

anyway they refuse the 3rd repai and want a credit card to cover rental wtf medicare and public aid pays rentals so months of fighting a shop in my town took me in spent from 12:30 to 2:30 just to find the same scam they wanted $10 ship and $ 300 a week medicare covers they even showed me and said it would be done in the time medicare allows

now there are none left withing a hundred or more miles


thanks allot and to sum it i have no clue why its taking a crap maybe it dont like me

[this-sucks]

and my machine profile is up to date and correct it is a 50 i got it before the 60s came out

[chunkyfrog]

Would it be inappropriate to put a bag of corn in the microwave?

[mgaggie]

Would it be inappropriate to put a bag of corn in the microwave?

go ahead chunky, I am curious about how this will play out.

[DoriC]

Would it be inappropriate to put a bag of corn in the microwave?

Extra Large?

[ems]

Would it be inappropriate to put a bag of corn in the microwave?

People.. give the guy a chance for God's sake. Don't be so quick to hand out the popcorn until you know for certain it's a popcorn popping thread!

[mgaggie]

People.. give the guy a chance for God's sake. Don't be so quick to hand out the popcorn until you know for certain it's a popcorn popping thread!

I think some of us have been quite restrained in what we've said. The OP has not done themselves any favors by 'speaking' to people who are trying to HELP him the way he has.

[DoriC]

[quote="this-suckswhats happening the humidifier i just opened the dam thing and pop the lid came off and one side wouldnt go back in right it was normal no fall not rough jut opened like always pop

i have a filter between mask and hose due to allergies it just slows air and water no leaks in plastic or connections

This is not a standard set up. Where did you get the filter? Many of us do have allergies, but the filters in the back of the machine are usually enough to take care of pollen, pet, and dust allegergens.

its not standard but i do know only fault it causes is needs more pressure and humid has to be set higher my medicare companie tosses those to me for free without it i gag in the mourn im hypersyns everything is over board hearing taste allergies etc

ok again it does it with no warn the humid weeks ago machine hadent moved for months boom humid lights flashing the shop says is pressure sensor on boar whole board may be bad again it makes a loud beep when it wants stops air exhale its starts to many to list dme dont know that term i had original place i got it from fixed it second time with tones o complaints and slandering to medicare
thanks allot and to sum it i have no clue why its taking a crap maybe it dont like me[/quote]

I'd really check into your filter setup, it doesn't sound right at all and might be causing inferior therapy and breakages.

[BlackSpinner]

People.. give the guy a chance for God's sake. Don't be so quick to hand out the popcorn until you know for certain it's a popcorn popping thread!

I think some of us have been quite restrained in what we've said. The OP has not done themselves any favors by 'speaking' to people who are trying to HELP him the way he has.

Yep.

There is ADHD and then there is "cutting off your nose to spite your face". I came close to thinking "troll pulling our leg" except that there is a certain consistency and similarity to speech patterns of people I have known in soup kitchens and phone counselling. The need to blame and put down those that offer help is common.

[ems]

People.. give the guy a chance for God's sake. Don't be so quick to hand out the popcorn until you know for certain it's a popcorn popping thread!

I think some of us have been quite restrained in what we've said. The OP has not done themselves any favors by 'speaking' to people who are trying to HELP him the way he has.

Could be that the OP is doing the very best he can. He also apologized several times. A wait and see approach is not out of order.

[this-sucks]

you know what say what you want

popcorn me whatever that means

i dont care im not that person and dont enjoy when the old side i have worked so hard on comes back

i made my piece i maid my try to earn back trust etc appologies dont cover that

you eathier want to be a bigger person and forgive and see if im worth the time or you hold a grudge

you know judgement on forums used to get that all the time because of pressing my short commings

and bigger fights and war than that i was not polite no etikate manners just rude and wrong

i have made my peace and my peice offering and all

the bunch of you can play i wont so judge resent grudges hey its you your heart and if you even care about being that way


thanks yall have a great one