BreatheX CPAP - user comments or reviews

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
steven0104
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BreatheX CPAP - user comments or reviews

Post by steven0104 » Wed May 24, 2006 1:26 pm

Anyone using the new BreatheX CPAP machine

Your comments or review would be greatly appreciated.

Thanks

Steven

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brasshopper
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Post by brasshopper » Wed May 24, 2006 7:43 pm

I am retired now - I used to be a consultant who would put an actual 150k miles annually on my most frequently traveled airline - before bonuses - and I would also do international travel on top of that. I had sleep apnea during that time, carried my CPAP everywhere, and while I don't travel much now, I'll answer this as if I were still doing the travel, since I see that as the major market for this sort of machine. All this was before 911.

My rule was that my CPAP was never checked - even though the airlines almost never lost my luggage (delayed less than once per month more like once every three months, despite my average of more than one flight per week - and never outright lost) - those delays were usually associated with me getting on the wrong flight coming home - the luggage took my original scheduled flight.) If the overheads were "too full to allow any more carry ons, all carryons must be checked, I explained that I would have to wait until the next flight myself - and they would let me get on after an explanation and noting my frequent flyer status - and the fact that I almost always flew full fare - but the pre-911 world was different). I lost more luggage on vacation than on business - and I never figured that one out at all.

No matter how low the chance of loss was, I wanted to be sure that it got there with me - that meant carrying CPAP, Laptop, and maybe a change of clothes.

I was somewhat surprised to see that the maximum pressure the machine could be set for is 12, and that the two sleep nights claim was with six hours per night at 10 CM H2O - you lose two hours runtime if you set it to 12. I was also surprised to see that you are not able to recharge the machine while running it - in fact, it can't be plugged into the wall at all while running, nor can it be hooked to DC while runing - it is charge or run - and it only runs from the internal batteries.

They claim it is for safety reasons, but seriously - people have been doing power bricks that can provide isolation and solidly isolated power with a wide range of inputs for a very long time. Something that is properly isolated is no more likely to shock you than something that is not attached to the wall at all.

Something like a wearable CPAP has to be able to be soaked and not shock the user - it has to have the same sort of capability as an electric blanket. Yes, battery only achieves that - but the downside of the design - that you lose ALL use of the CPAP when the battery is dead or non-functional, is rather important.

I find it hard to imagine that they could not have supplied a brick that would have been able to recharge AND run the machine - it would have been more expensive because they needed more amps - or they could have provided a switch so that you could have done A or B. They could even have limited the input so that the circuitry would have allowed the machine to run or to charge based on whether it was blowing ot not. I have gadgets which do this as well.

It makes no sense that they could not have run the machine while it was connected to external power safely - after all, my laptop has L-Ion batteries and it charges and runs - would you buy a laptop that needed to be shut down while it was rechaged? My GPS will either charge OR run from the external power supply because it needs to limit input. No big deal - the switchover is automatic.

Anyway, whatever their excuse was, what might have been an interesting machine for travel suddenly becomes much less interesting. Now, instead of being a second machine, it needs a backup.

Reality: Batteries go bad. If the batteries in this machine are bad, you can't use it. Batteries sometimes go bad slowly - and they sometimes go bad suddenly. Batteries are designed for a certain number of charge discharge cycles - sometimes they last longer, sometimes shorter. But on the average the failure point is somewhat predictable - and for any particular battery pack, the failure point is unpredictable. The batteries in this machine are warranted for only a year, while the machine is warranted for two years. My guess is that this means that, even at best, you can only get about 400 discharge-recharge cycles out of these batteries - or maybe it is 700, but it is probably less than 800, because if you could generally get 800, the batteries would likely be warranted for two years like the rest of the machine.

And, when the batteries go bad. there you are, in some strange foreign land where you don't speak the native language, like, well, Cleveland, and you are looking for a replacement CPAP, or parts, or, if this is not your only CPAP, you are calling your home and begging your SO to rush to whatever overnight company you contract with and begging them to forward you the working machine from your house (remember to dump the humidifier, please, dear!). Maybe you can carry extra batteries - I have no idea how expensive that is - but the point is that you have an extra failure point, and because of the way the machine is designed, the failure mode changes from "Will not run portably" to "will not run at all".

Reality: International travel involves long periods of time where you are separated from outlets. So, you start with a charged machine and if you are lucky, you get a few hours, twice, while you are on your red-eye to Japan. You arrive there, and transit to your hotel, where you hope to go to sleep - whoops, you have to charge the machine BEFORE you can use it.

You can get a 70% charge on your batteries in an hour, that will be good for 7 hours, too bad you need 10 to make up for the exhaustion of the trip - better not fall asleep there, bud. Can you stay awake with TV on that you can't understand? DomoAningato, Mr. Robato - over and over again, and you understand 10 words of Japanese. Unfortunately, they are not the 10 that this historical soap opera is using.

Heck, read those exciting customer briefing documents... zzzzz.... zz... z.. wha? The sun's up? But I'm still tired! I feel like I have not slept a wink!

What is your untreated AHI again?

Reality - In the past, I've been ill - as have most of us. Illness means that I sit and doze in bed while reading or watching TV - and that at least three times during the day I'll fall asleep - So I sit there with my machine on. Simple, no? If and WHEN I fall asleep, I'm covered. And if I get nasal congestion, the CPAP helps control it - at least for me. This has happened to me while traveling - gotten the flu, too sick to travel - tip the bellhop big to go and get you some pills from the nearby pharmacy, order pots of hot tea and soup from Room Service and lay there waiting to get better.

Except that now I have to do active CPAP charge management - I have to toggle between charging and being able to doze.

I'm also not sure why a travel machine would not have no automatic altitude compensation. This is a machine you are supposed to use on an airplane. Quick, what is the altitude in the airplane? That depends on a number of things - the airplane, the pilot, the real altitude, the model of the airplane. I was on an airplane in the Caribbean and I noticed my ears were not popping - asked the captain after the flight and was told that they tried to keep it at sea level - lots of scuba divers and heart patients there. That is rare, though.

Usually it will be: Excuse me? M[r|s] Flight Attendant? Can you tell me what the inside altitude equivalent will be for this flight? Why? I plan on sleeping with my special travel CPAP and even though you would think it is mostly designed to be used on an airplane, I have to manually set the altitude compensation. By the way, please wake me up on descent so that I can reset it or put it away. I know that there are only very few airplanes and even fewer commercial airplanes that are pressurized to sea level at altitude but the internal pressure varies all over based on brand, even company policy. I guess you could ask the Captain - all he has to do is navigate and stuff - he can be interrupted for this.

How rich am I to justify buying this? If 12 cm H2O worked for me (it will), and were I still fillling my passports in three years, I'd be willing to carry this on board and then pack another travel machine, the one that had C-Flex and APAP and all that stuff - the stuff that improves my treatment, in my checked luggage - and I'd use this when I HAD to - to sleep on airplanes, or in business class lounges and the like, and I'd be able to arrive refreshed - because of my Apnea I had an exemption from doing the Red-Eye to meeting thing that most of the guys in my consulting practice were expected to do because I could not sleep on airplanes - but sometimes one had to do this sort of thing and it honestly affected my work performance anyway. Clients don't like it when you fall askeep in meetings - even if your are fresh off a redeye. At $250-$400/hour you can hardly blame them,

This machine would have put me back on par with the people I worked with who didn't have Sleep Apnea. It would have allowed me to get sleep on an airplane that was more than token sleep.

The rate that they billed for me at was high enough that this machine would have been paid for by just a couple hours - not that I saw much of that money. I probably could have found a client I could bill it to (Gosh, if you want me to make it to that morning meeting I need to take the red eye and sleep on it - I need you to approve this equipment buy).

The point is that this machine would have allowed me to sleep on airplanes - and my billout rate would have paid for the machine in a couple hours - not including the extra cost of the hotel night and all that. When I traveled, there was nothing like this available.

But with this machine as a *third* machine for international and red-eye travel, I would have been covered. My packed travel machine would have covered me in the hotel no matter what the charge state of this machine was.

My point is that this machine is a tertiary machine. It is probably not a primary machine, for anyone, because you can't use it to doze all day while you are sick. It is not a secondary machine because it has no "emerency" mode that allows it to work through battery failure. I don't want to arrive in Portugal and have to make a long distance call, "Look, I'm in Lisbon - pack the CPAP machine, bring it to DHL and have them deliver it to me ASAP no matter the cost - my CPAP's rechargable battery failed on the last leg from London to Lisbon and I can't get it to charge and I can't figure out how to get one from a local DME - so use their fastest, most expensive service and I'll make excuses to the clients as to why they have to either put up with me pushing the stuff 2 days or for falling asleep in the middle of my presentation.

Make this machine able to run off the wall wart in an emergency, and give it automatic altitude compensation, and give it just a little more battery - 14 hours off a charge at 10 cm and it is 100% more valuable. It is now no more or less inherently reliable than a non-battery operated machine when plugged into the wall. Automatic altitude compensation eliminates stupid conversations with flight attendants. The battery only adds to the value of the machine rather than being something that subtracts.

Change the machine so that the default is to plug the machine in and the battery is only used when the power fails and the switchover is dynamic and the whole setup becomes a lot more valuable and intuitive.

I vacationed in Utila once - power was turned off, as a matter of course, at 11 PM each night. Now, if the power failed and it was after 8:30 PM (about 1/2 the time) then it was even odds that the power company guy wouldn't bother to go up and restart the generator - or if he did, it would probably be overheated and it would need to cool for an hour before it restarted - so it would not crank until 9:30. He was prompt about restarting the power at 7 AM every day. Why would you need power at night? You were asleep.....the resort had a generator that they ran at night for the air conditioner, and I was able to use it for my CPAP. This has gotten way too long.


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Post by Guest » Thu May 25, 2006 4:18 am

Great commentary brasshopper. Makes you wonder if these guys are in the business of selling CPAPs or selling batteries. Like to see the cost of the batteries to be able to factor that in to the real cost of the machine, which seems to be unaffordable to most folks.

Which also makes me wonder how proprietary the batteries are. Some weird voltage that you can only get from Breathex? What happens if the company goes under? Then you have to have the batteries custom-fabricated?

If you can get the whole Aura Everest package for less money, then...?


HP
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BreatheX

Post by HP » Thu May 25, 2006 9:20 am

I just got my BreatheX last Monday night. I'm putting it through some testing now. Maybe next week I'll post again much more info including photos, if I can post them. There is a note not to use the BreatheX with the ComfortCurve nasal mask. Don't know why. So I pulled out my untried Aura, did the rubberband trick, and everything worked fine.

Brasshopper is right. This product has some problems for the air traveler. The other battery operated lower priced solutions handled by CPAP.com appear to be better for those focused on air travel. But I am more hopeful than he is because my mobility application is different.

14.4 volts is not weird for a 4-cell lithium-ion battery pack. That's the voltage you get when you string 4 cells in series. From what I have seen so far, it is clear that Hoffman Labs deliberately designed the BreatheX not to simultaneously charge the battery and run the unit, and not to run the unit with 120vac.

It appears to be exactly what I need for my activity. I am a wilderness canoe camper. Weight is an issue when portaging between lakes. It would likely be a good fit for the multi-night backpacker as well. The photovoltaic scene is doable, but the price is higher and the weight is still greater. I travel a week at a time and there is no possibility to access electrical power. The unit plus a couple spare batteries should give me therapy through a week. CPAP.com has not announced that they are carrying spare batteries, probably waiting to confirm some degree of sales success first. Hoffman Labs told me that spare batteries are available.

This is clearly a new niche market not so well defined. I expect later products from Hoffman Labs to address more of these challenges. By the way, I'm not connected with Hoffman Labs nor anyone else in this industry. I'm just one of the hoseheads with a little dangerous technical background.....lol.

More later.

HP


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brasshopper
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Niche

Post by brasshopper » Thu May 25, 2006 7:31 pm

I can sure understand why, in that niche, you would want it - and with spare batteries, a lot of the issues go away.

How hard are the batteries to change?

Do you need one of their packs (is there some "communication" with a smart pack), or are you simply hooking some lugs or a special connector to battery terminals?

Can you tell me how many amp-hours or whatever the NiMH cells are? A 4 NiMH cell battery of a certain capacity should be available commercially, and you might not be restricted to their replacement batteries. You might even be able to get a larger battery that could simultaneously use an external charger - then again, why go through all that trouble if there are alternatives?

Will their charger charge the battery pack when it is not connected to the CPAP? I'm thinking of having two sets of batteries and charging them alternately. While somewhat more of a pain, this kind of setup would eliminate a lot of my objections.


wabmorgan
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Post by wabmorgan » Thu May 25, 2006 9:38 pm

I'm sure the reason for not using the comfort curve mask is that it leaks like hell.


steven0104
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Post by steven0104 » Fri May 26, 2006 1:07 am

Thanks HP for your reply

I am seriously considering purchasing a BreatheX.
For me, assuming it lives up to expectations, BreatheX might just be the solution to my situation.

I look forward to hearing your opinion after you have had a chance to try BreatheX out.

Hope to hear from you in a week or so.

Steven

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tomhoffmanlabs
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Comfort Curve fix

Post by tomhoffmanlabs » Fri May 26, 2006 6:18 pm

Hi guys,
I guess the reason for the note about the Comfort Curve not working with the unit came about because of their proprietary hose set up. It comes with their special six-foot hose that plugs into the end of the adapter. The adapter is made to only plug into this special six-foot hose. Ordinarily masks have a pretty universal adapter that allows you to connect any CPAP hose into it.
HP, I may have a fix for you. It is less than elegant but “so far” all masks have been designed to be used with six-foot hoses. Anyway here it goes.
First, get out some duct, electrical, or similar tape. (Ouch, this is killing me. )
Second, take out the 8” hose that came with your unit.
Third, stick the end of the hose firmly into the end of the adapter. If you try to stick the adapter into the hose (if you can) it won’t hold well.
Next, wrap tape around the hose where the adapter and the hose meet. This should keep it from falling off.
Finally, plug the hose into the unit.
The tubes should face forward. If you use the 21” hose instead of the 8” you would then be able to wrap it around.
I hope this helps.
Regards,
Tom


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rested gal
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Re: BreatheX CPAP - user comments or reviews

Post by rested gal » Tue May 30, 2006 10:21 am

steven0104 wrote::?: Anyone using the new BreatheX CPAP machine

Your comments or review would be greatly appreciated.

Thanks

Steven
Hi Steven,

Yes, I'm using a BreatheX and like it very much. I wanted to wait until I'd used it long enough, and in enough of the situations I wanted it for, to be sure it worked well for me before commenting on it.

You can click here to see my review of the BreatheX