CPAP numbers are good, still brain fog..

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
GreenSleeper
Posts: 12
Joined: Mon Apr 15, 2013 2:21 pm

CPAP numbers are good, still brain fog..

Post by GreenSleeper » Wed Apr 17, 2013 1:28 pm

Here are my SleepyHead graphs from the last night.
Are they as good as they get? Can't really complain about the therapy itself, comfortable with the mask and compliant for the last two years.
However, the only thing it really helped was daytime sleepiness. Also no more old apnea symptoms like night restroom breaks or sore throat in the morning.
Still had fragmented sleep (waking up often) until the doc prescribed gabapentin 4 months ago; now the sleep is better.
But headaches are still there, memory is poor, any mental activity makes me tired in minutes, it's very difficult to concentrate on anything, or follow a long verbal conversation
Now pumping myself with vitamins (D was on a low side with the last lab test) but don't really know at this point what else to explore..

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Pugsy
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Re: CPAP numbers are good, still brain fog..

Post by Pugsy » Wed Apr 17, 2013 2:06 pm

Well....can't get much more boring than that report can we?

Do you take any medications besides the gabapentin? Even OTC? If so have you careful researched all the possible side effects?
Are you aware that fatigue is a common side effect along with drowsiness (that's probably how come it helps you sleep) associated with gabapentin?

It's obvious that the OSA is well treated and you mention seeing
GreenSleeper wrote:However, the only thing it really helped was daytime sleepiness. Also no more old apnea symptoms like night restroom breaks or sore throat in the morning.
so there are those symptoms that have been eliminated. Your cpap therapy is working...it just isn't working like you hoped it would work.

You know not every problem or ailment that we have is related to OSA. There are other things that cause the same sort of symptoms that OSA seems to have. If what we have going on isn't related to OSA then effective cpap therapy doesn't stand much chance of helping reduce symptoms that are unrelated to OSA because the machine's main job is sleep apnea prevention.
We like to put every thing wrong with us in the OSA basket and expect with good reports that we shouldn't have any of those symptoms we have put in the OSA basket but the cold hard truth is that not all of what ails us is related to OSA.

I think that this probably explains why so many people give up on cpap therapy....unrealistic expectations.
When cpap therapy doesn't rid us of all that bugs us "it just isn't working so why do it" mentality takes over. It must not be working because other people say they feel like a million bucks.."why can't I".."it must not be working".

Maybe the headaches aren't related to apnea events. I still have some bad headaches but they come from my cervical spine..muscle tension type of headaches most often when I sleep with my neck in a bind.
Maybe your headaches aren't related to OSA.

There's a pretty standard speech that we give to people who come here and say they just aren't feeling the "miracle" that they have read about or desire.
Here's my version of that speech.

Your OSA seems to be well controlled on paper. The reports don't scream out anything that points to something needing fixing. So you look good on paper but don't feel as good as you think the reports say you should.
Sometimes there is a lot of truth to "give it time"...for some people improvements are very gradual and not nearly as remarkable as other lucky people have.
So you have seen some improvements but not enough.
You still have to give it time...we don't have much choice about it and maybe that is all that is needed but while you are giving it time (like you have a choice, which you don't because you must use the machine) you might as well make use of that time to see if there is something else going on that is affecting how you feel that is simply unrelated to cpap therapy and the machine doesn't do such a great job of fixing stuff that is unrelated to cpap therapy. That's just a cold hard fact of life.
So what to do? Well while you are giving it time you can take that time to take a hard look at other things that might produce the same symptoms we like to blame on OSA. The list is long.
First isolate what your unwanted symptoms are.
Then if you take any medications at all...research them thoroughly multiple sources as to any possible side effects that might account for the unwanted symptoms.
Most SSRI meds for anxiety or depression have a nasty little side effects that lasts during the day that mimic OSA symptoms.
Some blood pressure meds do the same thing.
In fact if one looks closely...a lot of meds have side effects that mess with how we might feel during the day or mess with the quality of our sleep at night.
So start with meds...detective work...see if any of them could possibly be a factor...may not totally to blame but maybe a factor.
Then start with sleep quality detective work...Short hours of sleep. Fragmented sleep. Insomnia, etc
Then consider general comfort..bed comfort..mask comfort..leaks, etc.
General health issues...aches and pains.. other health problems like diabetes or thyroid? Fibromyalgia? Depression?
Talk to your doctor..had the routine physical lab test recently for the usual like thyroid? The unusual like hormones of vitamin D?

I think you get the idea here. I wish that a near perfect report like yours above guaranteed the miracle but unfortunately it simply doesn't. Now it may just take time but since we never know how much time...make use of the time and do some detective work to see if something else may be also involved that the machine can't fix.
There is just so much more to feeling better than the AHI numbers. Getting good numbers is really the easy part. The hard part is figuring out what might be going on that is unrelated to OSA itself.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

GreenSleeper
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Joined: Mon Apr 15, 2013 2:21 pm

Re: CPAP numbers are good, still brain fog..

Post by GreenSleeper » Wed Apr 17, 2013 3:56 pm

Pugsy, thank you for your support
There are no meds to blame, gabapentin is the only one I take, and recent lab test came up just fine. A little low on VitD but nothing really concerning.

I guess many people are shocked or frustrated hearing about their OSA diagnosis; I was actually super happy.
After years of gradually declining mental abilities, stopped career development, being unable to enjoy my own life, actually being even unable to recall a big portion of it, and seeing doctors over and over again only to hear "you're fine, I don't see any problem" - I thought "finally, I found it"
So many hopes were put into the CPAP machine. Now, well.. probably it's time for another trip to neurologist, and for some more patience...

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Pugsy
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Re: CPAP numbers are good, still brain fog..

Post by Pugsy » Wed Apr 17, 2013 4:23 pm

GreenSleeper wrote:A little low on VitD but nothing really concerning.
I am not up so much on all the Vitamin D stuff and I imagine those here that are will come by and chime in but there's been some discussion that maybe what was commonly thought of in the past as "normal" is perhaps not quite as acceptable as once thought.
It's something to look at and not totally discount immediately. Never hurts to did a little deeper.

FWIW I wasn't one of those people who has seen the miracle either. Now I have had some really good days especially if I compare them to some other days and my killer morning headaches and the nocturia have gone away.
I never really had the brain fog stuff so can't relate much to that.
I did discover that on the nights that 45 minutes more sleep makes a remarkable difference in how I feel. Unfortunately I can't always get that extra 45 minutes because life gets in the way but I can see a direct correlation and I purely stumbled on that fact while analyzing some long term data.

So I don't wake up feeling like running a marathon either but I am 61 years old with a broken down back and it's unlikely that I would be wanting to run a marathon anyway.
I can now say that at least I don't wake up feeling like a have run a marathon and while I wish I felt 25 again...I have see some improvements. Last summer I went on a little trip and forgot to pack my machine's long hose and didn't realize it until 10:30 at night. So I spent the night without my machine. First time in over 3 years. I got a rude wake up call as to just how bad I could feel. I had sort of forgotten just how bad it used to be but I got a dose of reality. I feel absolutely wonderful now compared to that day after the night without my machine.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

billgamble
Posts: 31
Joined: Wed Mar 27, 2013 6:00 pm

Re: CPAP numbers are good, still brain fog..

Post by billgamble » Wed Apr 17, 2013 8:00 pm

Have they checked you for your oxygen levels yet? Thinks could be working great on the CPAP but you still may have low oxygen levels. Check with your sleep study specialist.