Pressure sore.

[khauser]

[Watch me side-step the sniping...]
If you have developed a sore on your nose continuing to irritate it will make things eventually get to the point that it becomes infected. That is a PRIME reason to avoid doing so.

I would prefer you see your DME and find a different mask than stop xPAP therapy. Is there no possibility of seeing the DME before Thursday? Is that your schedule or theirs? If it is theirs and you've made it clear that continuing with the current mask is a non-started then a new DME is in order!

[Madalot]

My current mask (F&P 431) caused a horrendous sore on the bridge of my nose. Aside from that, however, the mask worked very well.

I treated the sore, loosened the mask for a couple nights, used bandaids over the area, and tightened the mask up when the sore began to heal properly. The area completely healed, but I kept using bandaids for a couple months.

Then I decided to try it without the bandaids -- and I have been fine ever since.

I WAS able to adapt to the mask that initially turned my nosebridge into raw meat....

[yoyoyomonica]

That is their schedule. I think maybe I call him back and see if he can fit me in. Anywhere. Thanks for the sidestep and support.

[yoyoyomonica]

OUCH girl. I know I am not raw meat yet. just a open wound. The bandaids seem to help. if u loosen the mask u get leaks. isnt that counterproductive? I want this to work. But the pain is alot to handle. I have alot of other medical problems. I dont want pressure sores too, right in the open, There is a mask out there that will work for me. I just need to find it. I am using a bandaid with neo now. I hope it will heal quickly

My current mask (F&P 431) caused a horrendous sore on the bridge of my nose. Aside from that, however, the mask worked very well.

I treated the sore, loosened the mask for a couple nights, used bandaids over the area, and tightened the mask up when the sore began to heal properly. The area completely healed, but I kept using bandaids for a couple months.

Then I decided to try it without the bandaids -- and I have been fine ever since.

I WAS able to adapt to the mask that initially turned my nosebridge into raw meat....

[Madalot]

OUCH girl. I know I am not raw meat yet. just a open wound. The bandaids seem to help. if u loosen the mask u get leaks. isnt that counterproductive?

Yes, but for me, it was either loosen the mask a bit, get leaks and compromise my therapy, for a couple days, just long enough for the wound to heal, then tightened it up and get back into the right therapy. If I hadn't the wound wouldn't have ever healed. My other choice was to stop therapy completely.

I'm glad the bandaid is helping. That's what finally worked for me (after trying cotton pads and an assortment of other things).

[BlackSpinner]

Thanks for all of the advice. I am seeing my DME on Thursday. I took a break from the mask on saturday and used a bandaid last night. it worked ok. Having a sore on my nose isnt a option and a callous isn't going to happen. I will quit cpap before I start developing scars. I take vit D already but only 2000 iu 2 times a day. So maybe I need to increase it.

Yeah I would agree. You don't want to tear up your skin or develop scarring from an untreated pressure sore. Totally nuts to do that.

Yes because scar on the face is so much worse then strokes or heart attacks. Must keep the outside pure while the inside disintegrates - makes for a prettier corpse.

:O OH wow. I didnt expect this from you. That really hurts my feelings.

Yes. Reality sucks sometimes. Excuse me while I go and change my mothers Depends, she sometimes forgets to tell us when she needs the toilet.

[yoyoyomonica]

you know u dont have to be crabby with me. but scaring me isnt going to make me more compliant with a painful mask. If this is reality then it really bites. How long have u been on Cpap? Did u receive support from this site? That is all I am trying to do here. Get advice and read and learn. I am new here. and you coming out at me like this isnt appreciated.

Thanks for all of the advice. I am seeing my DME on Thursday. I took a break from the mask on saturday and used a bandaid last night. it worked ok. Having a sore on my nose isnt a option and a callous isn't going to happen. I will quit cpap before I start developing scars. I take vit D already but only 2000 iu 2 times a day. So maybe I need to increase it.

Yeah I would agree. You don't want to tear up your skin or develop scarring from an untreated pressure sore. Totally nuts to do that.

Yes because scar on the face is so much worse then strokes or heart attacks. Must keep the outside pure while the inside disintegrates - makes for a prettier corpse.

:O OH wow. I didnt expect this from you. That really hurts my feelings.

Yes. Reality sucks sometimes. Excuse me while I go and change my mothers Depends, she sometimes forgets to tell us when she needs the toilet.

[Denial Dave]

please do yourself a favor and read the blog at the link below!!!!

it tells you all about how loose is better and how to overcome the dreaded red nose syndrome on the Mirage Quattro

http://maskarrayed.wordpress.com/taming ... e-quattro/

[yoyoyomonica]

Yes. I am totally doing what this blog says to do. I have watched videos the bandaid helped some. So I will keep using that for now. I appreciate you watching out for me.

please do yourself a favor and read the blog at the link below!!!!

it tells you all about how loose is better and how to overcome the dreaded red nose syndrome on the Mirage Quattro

http://maskarrayed.wordpress.com/taming ... e-quattro/

[Phil_in_CA]

Don't get upset, Monica. Communicating with a computer keyboard is hard, as it is almost impossible to convey whether someone is joking... being ridiculous for effect, or what... that is why so many boards like this one use imoticons...

Sometimes we forget to use them, and our jokes, or jibes take on the wrong meaning, or a different meaning, depending on the mood of the person typing, or reading.

I wonder if the comment was meant for the poster above, not you?

Don't worry about this, there is more for us to spend energy on...

How is that sore nose getting on???

[Suddenly Worn Out]

Are you extremely picky about everything? You mentioned you are bipolar originally? Have you ever stuck with any medical treatment before?

Honestly, I was extremely thankful to get a CPAP unit when I originally got one. The fact I got a blister and callous on the bridge of my nose for a month or two was small stuff compared to the relief I got otherwise. I honestly did not even care about the nose blister and callous. That went away. Its like when you start a backpacking trip and you are real out of shape. Some blisters and callouses and aches and pains are inevitable. Its "just part of it."

Now if you get skin breakdown after you get thru the initial adjustment phase and get a permanent pressure sore, thats a different ball of wax that does usually have to be dealt with. I'd suggest dealing with it offline, with your sleep doctor and your RTs and DME in real life. Not from strangers on the Internet.

I have heard that compliant CPAP therapy can REALLY help bipolar disorder. Did you know that untreated sleep apnea can cause psychosis? Thats because untreated sleep apnea causes chronic sleep deprivation and chronic sleep deprivation from ANY CAUSE, usually results in psychosis developing. Just a titbit to throw out there. As bipolar often is treated with anti-psychotic medications, in addition to mood stabilizers. I honestly cannot see any mood disorder of any type getting better if there is even mild untreated sleep apnea existing. You must be 100% compliant.

[SleepingUgly]

Here on this forum, we have a wide menu of approaches to choose from. There's the kick-in-the-pants/2x4 approach with a side helping of tough love, there's the empathy/validation approach with a side helping of hugs, and the whole gamut in between. It's a menu and you can pick what you want from it, and leave the rest.

[SleepingUgly]

Are you extremely picky about everything? You mentioned you are bipolar originally? Have you ever stuck with any medical treatment before?

Also, you are welcome to an appetizer of insults here on cpaptalk. Take it or leave it!

Honestly, I was extremely thankful to get a CPAP unit when I originally got one. The fact I got a blister and callous on the bridge of my nose for a month or two was small stuff compared to the relief I got otherwise.

Well, lucky you, but I got a pimple farm on a red welt AND no relief with the Quattro.

Now if you get skin breakdown after you get thru the initial adjustment phase and get a permanent pressure sore, thats a different ball of wax that does usually have to be dealt with. I'd suggest dealing with it offline, with your sleep doctor and your RTs and DME in real life. Not from strangers on the Internet.

I wouldn't. You can ask the DME and you can ask the doctor (bwahahaha!), but they won't have nearly as good or as as many recommendations for how to deal with a sore nose as the good folks (and prior threads) here.

Did you know that untreated sleep apnea can cause psychosis?

No, I did not. I haven't seen a single thing that even indicates the two are correlated, let alone that there's a causal relationship. Could you please post a reference to that?

Thats because untreated sleep apnea causes chronic sleep deprivation and chronic sleep deprivation from ANY CAUSE, usually results in psychosis developing. Just a titbit to throw out there. As bipolar often is treated with anti-psychotic medications, in addition to mood stabilizers. I honestly cannot see any mood disorder of any type getting better if there is even mild untreated sleep apnea existing. You must be 100% compliant.

Not only do we have a menu of everything you might want from tough love to unconditional love, every waiter in this restaurant is a psychologist or psychiatrist!

[Suddenly Worn Out]

I am honestly irritated when someone who is new comes on and complains about a red bump on their nose when starting CPAP. Honestly, who cares? I got that, I continued using CPAP. I got a lot better. I lost a lot of weight after that and only BECAUSE of my compliant CPAP use. If I had not used CPAP, I would have probably died in all honesty.

Now like I said, if your mask is so tight that you are getting chronic pressure sores, and your sinuses and ear canals are getting infected from too tight of a mask, thats a different ball of wax. You cant live like that, going from infection to infection. But you CAN go around with some redness on the bridge of your nose if you have to. Or redness on your chin or around your face. Ive done it in the past. I did not care. I was happy to have my CPAP and to be able to sleep and honestly, was thankful I was staying alive.


Eric

[yoyoyomonica]

my nose is a lil better. It is sore still. But I guess that is part of the program according to the people in this thread. Thanks for checking in with me.

Signed the neighborhood whiner.

Don't get upset, Monica. Communicating with a computer keyboard is hard, as it is almost impossible to convey whether someone is joking... being ridiculous for effect, or what... that is why so many boards like this one use imoticons...

Sometimes we forget to use them, and our jokes, or jibes take on the wrong meaning, or a different meaning, depending on the mood of the person typing, or reading.

I wonder if the comment was meant for the poster above, not you?

Don't worry about this, there is more for us to spend energy on...

How is that sore nose getting on???