young new user-wishes to hear tips from experts

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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zoocrewphoto
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Re: young new user-wishes to hear tips from experts

Post by zoocrewphoto » Thu Aug 16, 2012 3:44 am

BlackSpinner wrote:
lilbean95 wrote:Thank you! I seemed to get a very negative response when I first mentioned surgery. I thought it was a good idea because of maybe and the tonsils and adenoids were causing issues with other things anyway. I can already breathe a little better through my nose already so I hope for good things to come.
The reason for the negative responses is that it should be the last resort and people wanted to make sure you had evaluated all the options. Surgery is always risky and the concept of "success" is never the same between doctors and patients. Getting the tonsils dealt with now was a good idea, one of my exs had them out in his 30's because they were causing constant strep throats and his recovery took 3 weeks or more (of course it didn't help that they scheduled it on the day we were moving)
My sister got her tonsils out at age 44 last summer. She had constant problems with them, and finally decided it was worth the pain to get rid of them, and she is happy with that decision. But it would have been easier years ago. She does not have sleep apnea.

I had my adenoids out when I was 5 years old. I barely remember anything, other than getting sick in the hospital, and the poor nurse having to change my sheets multiple times. And a milkshake on the way home

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Who would have thought it would be this challenging to sleep and breathe at the same time?

Random
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Re: young new user-wishes to hear tips from experts

Post by Random » Fri Aug 17, 2012 9:54 am

Hi lilbean,

I just wanted to say that I was also in a similar situation to yourself. I was diagnosed with sleep apnea when I was 19 when I was not at all overweight. I was also told this was due to throat issues and later had a tonsillectomy. It did not help me sleep or breathe easier, but I did stop getting the constant strep throat I was getting before.

I was also seriously considering the UPPP surgery, but after hearing stories on here I've been scared away. My doctor also said this was a bad idea because it can make it worse for many people.

The CPAP was really difficult to get used to, and I still don't feel 100% but I've been using it for two years now and do feel slightly better.

Good luck! I'm sorry I don't have much advice, I just wanted you to know you're not the only young person who has had to suffer through this.

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CentralScrutinizer
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Re: young new user-wishes to hear tips from experts

Post by CentralScrutinizer » Fri Aug 17, 2012 11:03 am

Lilbean,

First, I hope that maybe having the adenoids and tonsils removed helps you to the point where you don't need to use CPAP, however if it doesn't completely work... my advice is to stick with the CPAP for at least a month before you'd consider giving up on it. For me, I felt horrible for the first month, I was very very close to giving up but didn't... Eventually I got used to it, and now... well I really hardly even know I'm using CPAP most nights, I pretty much enjoy using CPAP now, I am fortunate enough to be able to use nothing but a nasal pillow system, and I'm currently using the Swift Fx. I started with Swift II and did fine with that, then my DME could no longer get me the Swift II, I was really mad because I had just really come to be quite comfortable with the Swift II. I was forced to switch to the Swift LT when the DME could not get me the II, it took me a while to get used to that one too, but eventually came to like the LT just fine... Then they came out with the Swift Fx... I don't know why it took so long for them to come up with the Swift Fx design... it's so simple and at least for me, so darn effective and comfortable.

So, if you do need to keep using CPAP... Keep with it, don't give up... someday you'll very likely not mind it at all.

it seems you already have been using Auto PAP... That would be my only other advice... Demand AutoPAP... I really don't know why they don't give this as the norm for all CPAP users, it's my understanding that the actual costs to get the AutoPAP isn't that much more then standard CPAP, and the Auto makes things SOOOOO much easier to get used to.