Ok, so if you read my home from the doctor post you know that my pressure of 9 which according to my data they download I was only having like 0.7-1.7 episodes or something like that but yet I keep waking during the night some and I am still tired by afternoon adn I just don't feel like the pressure at times is strong enough. My doctor raised my pressure to 11 and I questioned if that could be too high and she said no that you can't make the pressure too high the worst that would happen is you would have a hard time trying to sleep. She said she thinks once I have another sleep study my pressure will end up being 13 or 14 thats a HUGE jump from 9 in my opinion.
I tried to take a nap earlier for an hr as I was soooo tired and well the pressure didn't really bother me. I had them set my ramp from 8 to 11 in 10 mins so it wasnt full 11 for the first few times. I had no problem but ear pressure. I did however when I woke up feel HORRIBLE! It was like I just could not open my eyes and function for about 45 mins or so and I still feel bad...Is this normal in adjusting to a new pressure? I am kinda worried how I will be after sleeping ALL night with it...I guess I will see...
Adjusting to a new higher pressure?
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MissAmethyst2U
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guest5731
doctors revenge
Can you say "devil doctor tomm " got her revenge after your little "heart to heart" this morning? You asked her to bump it up, now you complain that it's too high. Seems like maybe you got what you asked for.
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Barb (Seattle)
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Re: Adjusting to a new higher pressure?
I've heard that too high of a pressure can cause "central" apneas. Not sure why someone would tell you that it isn't a big deal when the pressure is too high. Mine is 12, and it's not covering all the apneas Do you know why you are waking during the night? Is it because of apneas, do you think? As far as jumps...my titration was 8, and I'm on 12. Go figure *shrug* I read somewhere that when you reach deep sleep during a nap, that you feel groggy when you awake. That might be a good sign! You might have slept deeply during your nap
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sleepylady
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Barb's right, I've heard the same thing. If the pressure goes too high for you then you can get central apneas so a higher pressure than you need isn't a good thing.
Miss Amethyst how long have you been on CPAP? Why don't you feel you're getting enough pressure? It takes time for your body to heal so if you're just at the beginning, then the fact you are still tired by the afternoon might be normal. I found I'm still working on getting to the point where I'm not waking up tired. Granted many days I wake up almost "normal," but if I'm not careful with my sleep schedule than it can really mess me up. You may want to try this pressure one night and then judge how you feel. You can always contact your doctor and have them lower your pressure.
Barb are you still haven't a lot of apneas? I was told during my CPAP setup that I would still likely have some apneas at night, but they would be greatly reduced. I do know I still have them as I downloaded my data last week, however, it only averages a couple a night which is a good thing. If you aren't having a lot of apneas and you're feeling better then you shouldn't be too concerned.
Melinda
Miss Amethyst how long have you been on CPAP? Why don't you feel you're getting enough pressure? It takes time for your body to heal so if you're just at the beginning, then the fact you are still tired by the afternoon might be normal. I found I'm still working on getting to the point where I'm not waking up tired. Granted many days I wake up almost "normal," but if I'm not careful with my sleep schedule than it can really mess me up. You may want to try this pressure one night and then judge how you feel. You can always contact your doctor and have them lower your pressure.
Barb are you still haven't a lot of apneas? I was told during my CPAP setup that I would still likely have some apneas at night, but they would be greatly reduced. I do know I still have them as I downloaded my data last week, however, it only averages a couple a night which is a good thing. If you aren't having a lot of apneas and you're feeling better then you shouldn't be too concerned.
Melinda
It sounds like you Doc, swims in the lake and eats bugs. "Quack" It takes a while of full treatment to get into the swing of feeling awake, your body has a lot of bad times to make up for. Too high a pressure will cause centrals, but most people are treated at 10 cm or under, but a lot of us require more.
Lucky you have the sofeware to monitor your treatment, it sounds like Doc, either doesn't care or has no clue. Jim
Sorry I assumed you had the software, I went back and didn't see it listed, you really need to monitor how you are treated and the results.
Lucky you have the sofeware to monitor your treatment, it sounds like Doc, either doesn't care or has no clue. Jim
Sorry I assumed you had the software, I went back and didn't see it listed, you really need to monitor how you are treated and the results.
Last edited by Goofproof on Fri Mar 10, 2006 8:15 pm, edited 1 time in total.
Use data to optimize your xPAP treatment!
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
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MissAmethyst2U
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My doc's office doesnt want me to have the software as they say they have had two machines get messed up with ppl downloading their own software or some mess like that. I have been on CPAP for just about a year. I did great at first and adjusted JUST fine. After sleeping last night with the pressure of 11 I felt ok this AM. I didn't wake up totally out of it like I did with my nap yesterday. I will give it through the weekend and see how I feel by Monday morning and if not any better or if I am feeling crappy I will get them to lower my pressure back til I have a sleep study.
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Sleepless on LI
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Heather,
What really bothers me about the whole thing is how this doctor is just picking a number out of the air to put your pressure at now. You can't just pick a random number between 4 and 20 and use it as though it has some significance. Also, I don't find comforting the fact that this doctor discredits having your own software because they've had people mess up the machines with it. How? If a machine is meant to take the software, there shouldn't be a problem. I would think the worst that could happen would be that you wouldn't get the software to function for you. But mess up the machine? Sounds like they are just anti anything you can do yourself. Might mean less visits to them if you are taking care of your own therapy (to an extent, anyway).
I think you should go when your dad goes for a new PSG and find out the proper way what pressure you should have your machine set at. Taking a stab at any old number just isn't sitting well with me. E me when you have a chance, please.
What really bothers me about the whole thing is how this doctor is just picking a number out of the air to put your pressure at now. You can't just pick a random number between 4 and 20 and use it as though it has some significance. Also, I don't find comforting the fact that this doctor discredits having your own software because they've had people mess up the machines with it. How? If a machine is meant to take the software, there shouldn't be a problem. I would think the worst that could happen would be that you wouldn't get the software to function for you. But mess up the machine? Sounds like they are just anti anything you can do yourself. Might mean less visits to them if you are taking care of your own therapy (to an extent, anyway).
I think you should go when your dad goes for a new PSG and find out the proper way what pressure you should have your machine set at. Taking a stab at any old number just isn't sitting well with me. E me when you have a chance, please.
L o R i
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MissAmethyst2U
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SnoozeHunter
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I was titrated twice in a row at 19/15 but my doc put me on 17/12. I was having a hard time with it so he dropped it to 13/8.
Recently, I switched masks and was having some problems so I asked if I needed a different mask or a change in settings. It felt like I wasn't getting enough air with the new mask. He bumped my settings to 15/8.
So, I gotta wonder what the point of titration is if the numbers can be switched like that anyway.
Recently, I switched masks and was having some problems so I asked if I needed a different mask or a change in settings. It felt like I wasn't getting enough air with the new mask. He bumped my settings to 15/8.
So, I gotta wonder what the point of titration is if the numbers can be switched like that anyway.
[quote="SnoozeHunter"]I was titrated twice in a row at 19/15 but my doc put me on 17/12. I was having a hard time with it so he dropped it to 13/8.
Recently, I switched masks and was having some problems so I asked if I needed a different mask or a change in settings. It felt like I wasn't getting enough air with the new mask. He bumped my settings to 15/8.
So, I gotta wonder what the point of titration is if the numbers can be switched like that anyway.
Recently, I switched masks and was having some problems so I asked if I needed a different mask or a change in settings. It felt like I wasn't getting enough air with the new mask. He bumped my settings to 15/8.
So, I gotta wonder what the point of titration is if the numbers can be switched like that anyway.
Use data to optimize your xPAP treatment!
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
When I take a rare nap I almost always wake up and feel like crap for 30 -45 min. Like hung-over. (I don't drink ) Later in the evening I feel better since I don't get tired but waking up after the nap is rude.
I don't see how you can be titrated during a nap. Unless you went into all sleep stages and they monitored where you were at.
I agree with the others that your pressure is not and should not be an arbitrary number pulled out of the air.
IMHO, you should be more proactive and monitor your pressure so you can correlate the events with how you feel. One may not have a lot to do with the other, unless the data substantiates it.
Also, if the pressure is bothering you, do you have C-Flex?
IS it the pressure or leaks that are disturbing you?
"Knowledge is Power"
"Ignorance is Poorer Treatment"
THe more proactive you become the less you'll be guessing about what works for you.
Good luck,
Tom
I don't see how you can be titrated during a nap. Unless you went into all sleep stages and they monitored where you were at.
I agree with the others that your pressure is not and should not be an arbitrary number pulled out of the air.
IMHO, you should be more proactive and monitor your pressure so you can correlate the events with how you feel. One may not have a lot to do with the other, unless the data substantiates it.
Also, if the pressure is bothering you, do you have C-Flex?
IS it the pressure or leaks that are disturbing you?
"Knowledge is Power"
"Ignorance is Poorer Treatment"
THe more proactive you become the less you'll be guessing about what works for you.
Good luck,
Tom
"Nothing To It, But To Do It"
Un-treated REM AHI: 71.7
Almost All Hypopneas
OXY Desat: 83.9%
Trying To Get It Right
Un-treated REM AHI: 71.7
Almost All Hypopneas
OXY Desat: 83.9%
Trying To Get It Right
MissAmethyst2U,
I've been moving my pressure up over time trying to find where I can keep the expiration blockage from blocking and forcing air out my mouth. To get the my current pressure setting of Min = 13.0 & Max = 15.0, I've used the AHI vs Pressure profile that Derek's software so easily creates:
Up until last Sunday, my pressures were Min = 12.5, & Max = 14.0, but my daily 90-Percentile results kept pushing up against the upper max pressure setting and the blockage would still occur at min pressure value:
From this graph I probably could have set the upper limit at 14.5 and still been fine, but I wanted to see how the pressures were working within the range before I move the upper limit down.
My point in all this is to show that if you can get a sense of how your AHI results are responding to the various pressure settings, you'll be in a better position to evaluate the recommendations you are getting. In my case, I'll need to let the data accumulate to see if I've now moved past the low point of AHI results. While the first image shows the bottom to be around 12.5, the blockage still occurs there and doesn't get relieved until it gets up around 13.5.
Nothing in all this is simple, but I think if you had more information you would have more confidence or concern about the information your getting.
I've been moving my pressure up over time trying to find where I can keep the expiration blockage from blocking and forcing air out my mouth. To get the my current pressure setting of Min = 13.0 & Max = 15.0, I've used the AHI vs Pressure profile that Derek's software so easily creates:
Up until last Sunday, my pressures were Min = 12.5, & Max = 14.0, but my daily 90-Percentile results kept pushing up against the upper max pressure setting and the blockage would still occur at min pressure value:
From this graph I probably could have set the upper limit at 14.5 and still been fine, but I wanted to see how the pressures were working within the range before I move the upper limit down.
My point in all this is to show that if you can get a sense of how your AHI results are responding to the various pressure settings, you'll be in a better position to evaluate the recommendations you are getting. In my case, I'll need to let the data accumulate to see if I've now moved past the low point of AHI results. While the first image shows the bottom to be around 12.5, the blockage still occurs there and doesn't get relieved until it gets up around 13.5.
Nothing in all this is simple, but I think if you had more information you would have more confidence or concern about the information your getting.
Roger...
ROger:
Thanks for posting those graphs.
It looks like 13.0 is your sweet spot. Is that right?
If that 's the case tehn wouldn't you set your min around 12 - 12.5 and your high end around 13.5 -14?
Now I read other here who find the sweet spot and then give it 2cm each side.
What's your thoughts?
Thanks,
Tom
Thanks for posting those graphs.
It looks like 13.0 is your sweet spot. Is that right?
If that 's the case tehn wouldn't you set your min around 12 - 12.5 and your high end around 13.5 -14?
Now I read other here who find the sweet spot and then give it 2cm each side.
What's your thoughts?
Thanks,
Tom
"Nothing To It, But To Do It"
Un-treated REM AHI: 71.7
Almost All Hypopneas
OXY Desat: 83.9%
Trying To Get It Right
Un-treated REM AHI: 71.7
Almost All Hypopneas
OXY Desat: 83.9%
Trying To Get It Right
Hello Tom,
I find the low side of 12.5 is where I would like to have the Min setting, but that low pressure keeps me from being able to sleep on my back. Unless my pressure gets to just above 13.0, the blockage happens and it wakes me up. What is causing the blockage will be the subject of my next doctor visit, but for now I'm finding I can once again sleep on my back with the higher pressure. By the way, this is the first full week I've been able to get to sleep on my back when I get into bed. Previously, I would always need to roll onto my side to sleep, and after a while my arm would be numb waking me to roll over. As you can see from that scenario my sleep cycle is only as long as it takes for my arm to go numb.
As for the high end, I'm thinking 14.5 is probably a good number. This allows the machine to react to the nights when I'm exhausted. On nights where I'm really knocked out, my AHI values climb, so having some upside helps to keep them under control better.
After more data accumulates, I'll be able to see how the data is affecting the numbers. Previously, the low spot was 9.5 and the results at 11.0 were much higher than they show now because the amount data collected previously at that pressure was too small a sample to get a good gauge of the possible population values. This is probably happening right now with the values at or above 14.0. In simple terms, insufficient data can lead to curve fitting and misleading results.
I'm hoping that the doctor can give me some insights into what is causing the blockage so I can do something about it and move the pressures lower or not need them. My OSA problem has never been about being able to inhale. With that in mind I've been doing a lot of reading and think that maybe if my adenoids might be the cause of the blockage I might have mechanical approach to consider, but that is another project.
Unfortunately at my current pressures I can't contain the pressure with the use of just a nasal mask. In the morning I've started getting the cotton mouth that is famous with air blowing out through my lips. This issue is also causing me to whistle, which also wakes me up. So while sleep is getting better, it isn't where I would like.
I find the low side of 12.5 is where I would like to have the Min setting, but that low pressure keeps me from being able to sleep on my back. Unless my pressure gets to just above 13.0, the blockage happens and it wakes me up. What is causing the blockage will be the subject of my next doctor visit, but for now I'm finding I can once again sleep on my back with the higher pressure. By the way, this is the first full week I've been able to get to sleep on my back when I get into bed. Previously, I would always need to roll onto my side to sleep, and after a while my arm would be numb waking me to roll over. As you can see from that scenario my sleep cycle is only as long as it takes for my arm to go numb.
As for the high end, I'm thinking 14.5 is probably a good number. This allows the machine to react to the nights when I'm exhausted. On nights where I'm really knocked out, my AHI values climb, so having some upside helps to keep them under control better.
After more data accumulates, I'll be able to see how the data is affecting the numbers. Previously, the low spot was 9.5 and the results at 11.0 were much higher than they show now because the amount data collected previously at that pressure was too small a sample to get a good gauge of the possible population values. This is probably happening right now with the values at or above 14.0. In simple terms, insufficient data can lead to curve fitting and misleading results.
I'm hoping that the doctor can give me some insights into what is causing the blockage so I can do something about it and move the pressures lower or not need them. My OSA problem has never been about being able to inhale. With that in mind I've been doing a lot of reading and think that maybe if my adenoids might be the cause of the blockage I might have mechanical approach to consider, but that is another project.
Unfortunately at my current pressures I can't contain the pressure with the use of just a nasal mask. In the morning I've started getting the cotton mouth that is famous with air blowing out through my lips. This issue is also causing me to whistle, which also wakes me up. So while sleep is getting better, it isn't where I would like.
Roger...
[quote="roztom"]When I take a rare nap I almost always wake up and feel like crap for 30 -45 min. Like hung-over. (I don't drink ) Later in the evening I feel better since I don't get tired but waking up after the nap is rude.
I don't see how you can be titrated during a nap. Unless you went into all sleep stages and they monitored where you were at.
I agree with the others that your pressure is not and should not be an arbitrary number pulled out of the air.
IMHO, you should be more proactive and monitor your pressure so you can correlate the events with how you feel. One may not have a lot to do with the other, unless the data substantiates it.
Also, if the pressure is bothering you, do you have C-Flex?
IS it the pressure or leaks that are disturbing you?
"Knowledge is Power"
"Ignorance is Poorer Treatment"
THe more proactive you become the less you'll be guessing about what works for you.
Good luck,
Tom
I don't see how you can be titrated during a nap. Unless you went into all sleep stages and they monitored where you were at.
I agree with the others that your pressure is not and should not be an arbitrary number pulled out of the air.
IMHO, you should be more proactive and monitor your pressure so you can correlate the events with how you feel. One may not have a lot to do with the other, unless the data substantiates it.
Also, if the pressure is bothering you, do you have C-Flex?
IS it the pressure or leaks that are disturbing you?
"Knowledge is Power"
"Ignorance is Poorer Treatment"
THe more proactive you become the less you'll be guessing about what works for you.
Good luck,
Tom
Use data to optimize your xPAP treatment!
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire