Update on James Skinner
- SleepingUgly
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Re: Update on James Skinner
Kelly,
Does James have regular access to a computer now? I read something he wrote about moving in with his parents and not having regular access to a computer except "in town". Are you going to be going with him to the States? When will he be going?
Thanks,
SU
Does James have regular access to a computer now? I read something he wrote about moving in with his parents and not having regular access to a computer except "in town". Are you going to be going with him to the States? When will he be going?
Thanks,
SU
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Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
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Re: Update on James Skinner
SleepingUgly wrote:Kelly,
Does James have regular access to a computer now? I read something he wrote about moving in with his parents and not having regular access to a computer except "in town". Are you going to be going with him to the States? When will he be going?
Thanks,
SU
He was staying with me at a friend's place. They did not have internet, which was very hard for him. He is now staying at his parents' new apartment that they will move into in September. I am trying to find him a new apartment for September. Hopefully it will be closer to his friends and community of support.
So yes, he does have regular internet now.
We are both going on the 7th of August and his appointment with Dr. Houser is on the 8th. We will leave on the 13th, we are hoping to get a followup appointment before we leave but he can't book a second appointment.
Re: Update on James Skinner
http://www.case-ent.org/2_houser.html
I'm so glad James has an appt with the top specialist in this field. Sending good vibes his way.
I'm so glad James has an appt with the top specialist in this field. Sending good vibes his way.
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- rested gal
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Re: Update on James Skinner
Ditto.DoriC wrote:http://www.case-ent.org/2_houser.html
I'm so glad James has an appt with the top specialist in this field. Sending good vibes his way.
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viewtopic.php?t=17435
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
ALL LINKS by rested gal:
viewtopic.php?t=17435
- SleepingUgly
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Re: Update on James Skinner
He's just having an appointment or surgery/procedure?Evangeline wrote:We are both going on the 7th of August and his appointment with Dr. Houser is on the 8th. We will leave on the 13th, we are hoping to get a followup appointment before we leave but he can't book a second appointment.
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Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Rescan 3.10 |
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
Re: Update on James Skinner
If I remember correctly James has a sister and brother in law who live in the Cleveland vicinity. Or did 4-5 years ago anyway.
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- jskinner
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Re: Update on James Skinner
Thank for all your kind words of support and encouragement.
I've posted a bit of an update on my situation on this thread
I've posted a bit of an update on my situation on this thread
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- jskinner
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Re: Update on James Skinner
As I prepare for my trip to Cleveland tomorrow I wanted to thank each of you who sent me a donation to help with the trip.
Its extremely moving to have people from here reach out to help. Your generosity brought me to tears. Thank You.
Its extremely moving to have people from here reach out to help. Your generosity brought me to tears. Thank You.
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- SleepingUgly
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Re: Update on James Skinner
How did it go, James?
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Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Rescan 3.10 |
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly
Re: Update on James Skinner
I too wonder how you're doing. My thoughts and prayers are with you.
Re: Update on James Skinner
Thinking of you and good thoughts for you, James. Prayers have been w/you all along.
_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Additional Comments: PR SystemOne BPAP Auto w/Bi-Flex & Humidifier - EncorePro 2.2 Software - Contec CMS-50D+ Oximeter - Respironics EverFlo Q Concentrator |
Women are Angels. And when someone breaks our wings, we simply continue to fly.....on a broomstick. We are flexible like that.
My computer says I need to upgrade my brain to be compatible with its new software.
My computer says I need to upgrade my brain to be compatible with its new software.
Re: Update on James Skinner
James, you hang in there brother! The world needs people like you.
- jskinner
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Re: Update on James Skinner
The trip to Cleveland went as good as could be expected I guess. I was hoping for a miracle but of course that didn't happen. Nothing can be done to cure the damage done to my nose in March. I'm having a very hard time accepting that fact and living with the physical agony. I will return to Cleveland in March to have some injections put in my nose to try and improve the sensation of airflow but it won't be a dramatic improvement.SleepingUgly wrote:How did it go, James?
The local community put together a wonderful benefit concert for me recently. Here are some pictures from that event:
https://facebook.com/media/set/?set=a.1 ... .884605710
http://youtube.com/watch?v=arYNDnmRu4o
Thanks to everyone who has sent me messages, donations, and have been so kind.
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- rested gal
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Re: Update on James Skinner
Thanks so much for the update, James.
So sorry to hear the Cleveland doctor couldn't hold out a miracle for you, but you were mentally prepared going into the appointment. Hoping, hoping...but realistic at the same time.
You sure have wonderful friends supporting you and continuing to pull for you. Will keep hoping you get some relief.
So sorry to hear the Cleveland doctor couldn't hold out a miracle for you, but you were mentally prepared going into the appointment. Hoping, hoping...but realistic at the same time.
You sure have wonderful friends supporting you and continuing to pull for you. Will keep hoping you get some relief.
ResMed S9 VPAP Auto (ASV)
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
ALL LINKS by rested gal:
viewtopic.php?t=17435
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
ALL LINKS by rested gal:
viewtopic.php?t=17435
Re: Update on James Skinner
James, wishing you the strength and courage to deal with this challenge. Remember, they say that those of us who struggle need to share what we experienced so that others learn of the journey. Thank you for all you've shared.
ResMed S9 range 9.8-17, RespCare Hybrid FFM
Never, never, never, never say never.
Never, never, never, never say never.