Something is just not right....help

[Audge]

Folks...I am worse than I ever was. I was diagnosed with severe CompSA. I have been 100% compliant using an Auto Bipap for over 2 months now with an average of 7-8 hours per night. RT says my numbers are great (she reads my data, not me) but I am feeling far worse now than before I started therapy. I am far more tired than I ever was and I have developed this brain fog. I am feeling more sleep deprived than before therapy, I am forgetful and I feel like a truck hit me when I get up in the morning. I am walking around in a daze, running red lights and sometimes forgetting where I was going. Is this sleep debt or something more sinister to worry about. Has this happened to anyone else...and will it right itself?

Audge

[cflame1]

have you at least asked her for a copy of the report that she's reading?

[Audge]

Yes, she shows me the reports and circles the numbers explaning to me how good they are. I don't have copies of the reports but I think she sends them to my family doctor. According to her I should be feeling right as rain. I have made an appointment with my doctor for this Thursday coming. I just wondered if my reaction to this is normal.

Audge

[cflame1]

get a copy of them for yourself... scan it (and post it), let us see if we can help

[Audge]

Will do...thank you

[msradar65]

When I first started. I felt great the first few days...the progressively worst until for the next few weeks. Then it seem to level out and I just felt tired...needing naps. This went on for a total of 3 months...then it stopped. I asked my doctor about it. My numbers also looked great. His response was it took years to do all the damage and it will take time to heal and undo the damage. Listen to your body. If it says nap...then nap. In time things will level out. Well...now 8 months into therapy....no more naps...and I am feeling great. I have a super full plate working two jobs and going to school full-time. There is no way I could have attempted this before CPAP.

[kteague]

I'm with cflame1. Require everything in detail. Was the RT saying your compliance (usage) numbers are great, or were they saying your treatment data is great? And even if your AHI is ok, how about the duration of events? Gotta get specific. Miscommunication or ommission is so common. It would be interesting to see exactly what data they put in your file.

For instance, I was recently in the ER to get checked for an irregular heartbeat that persisted. They did the routine blood tests along with one that can reflect if there's been a heart attack. The doctor came in and said my tests looked good, I hadn't had a heart attack. When the discharge nurse came in I had the presence of mind to ask if all my results were in the normal range. She looked and said except for my potassium being low. Well duh, low potassium can cause irregular heartbeat. But the doc had focused only on the one ruling out a heart attack. Had I not asked for specifics, I wouldn't have known to increase my potassium intake.

Some people initially feel worse because they lose sleep while getting used to the treatment. However, I would not assume that's the only thing going on. With you having severe CompSA, your situation may take some more sorting thru in great detail to get it to a therapeutic level. I would not delay in getting the info from the doctor, or even taking your card in asking them to print out a detailed report (not summary). Let us know how this progresses.

P.S. Just saw the comments since I started typing. Still want to know exactly what details she's showed you.

[OutaSync]

Folks...I am worse than I ever was. I was diagnosed with severe CompSA. I have been 100% compliant using an Auto Bipap for over 2 months now with an average of 7-8 hours per night. RT says my numbers are great (she reads my data, not me) but I am feeling far worse now than before I started therapy. I am far more tired than I ever was and I have developed this brain fog. I am feeling more sleep deprived than before therapy, I am forgetful and I feel like a truck hit me when I get up in the morning. I am walking around in a daze, running red lights and sometimes forgetting where I was going. Is this sleep debt or something more sinister to worry about. Has this happened to anyone else...and will it right itself?

Audge

If you have severe CompSA and you are using the M Series machine shown in your profile, you will never feel better. You need to get a machine that is designed to treat your condition. The MSeries Auto cannot do it.

[cflame1]

Folks...I am worse than I ever was. I was diagnosed with severe CompSA. I have been 100% compliant using an Auto Bipap for over 2 months now with an average of 7-8 hours per night. RT says my numbers are great (she reads my data, not me) but I am feeling far worse now than before I started therapy. I am far more tired than I ever was and I have developed this brain fog. I am feeling more sleep deprived than before therapy, I am forgetful and I feel like a truck hit me when I get up in the morning. I am walking around in a daze, running red lights and sometimes forgetting where I was going. Is this sleep debt or something more sinister to worry about. Has this happened to anyone else...and will it right itself?

Audge

If you have severe CompSA and you are using the M Series machine shown in your profile, you will never feel better. You need to get a machine that is designed to treat your condition. The MSeries Auto cannot do it.

Profile machine doesn't match the machine that OP listed in the first post.

[Audge]

I am so sorry...I didn't even think to update my equipment profile. I started on a rental from my RT. I have gone in and updated now.

[Emilia]

Be sure you have been checked out for any other fatigue causing issues like hypothyroidism or low Vitamin D3 or Magnesium levels. My D3 was in the basement and is now in the recommended good zone of 50-75.

I agree that with CompSA, you have to be patient and give it time. I am just entering my 11th month on cpap with low/moderate SA and I still have not felt as energetic as I had hoped. Definitely better than before I started, but not where I want to be.

Get those reports.... you are entitled to copies of them, and they will tell the story, I am sure!

[ameriken]

When I first started. I felt great the first few days...the progressively worst until for the next few weeks. Then it seem to level out and I just felt tired...needing naps. This went on for a total of 3 months...then it stopped. I asked my doctor about it. My numbers also looked great. His response was it took years to do all the damage and it will take time to heal and undo the damage. Listen to your body. If it says nap...then nap. In time things will level out. Well...now 8 months into therapy....no more naps...and I am feeling great. I have a super full plate working two jobs and going to school full-time. There is no way I could have attempted this before CPAP.

I appreciate your post msradar. I just started breathing again on June 9 when I got my machine so I'm only 2-1/2 weeks into this. I expected to be dancing in the streets within a couple of days, however I found myself needing naps from time to time and wondered if it was even working. Short naps, maybe 30 to 40 minutes and when I woke up I felt better, not like before when I'd wake up feeling like a train wreck with a headache. But I still was wondering why I would feel so sleepy.

So, when I read something like this (that it may take months) I actually feel inspired because it let's me know that it just may take time and good days are still ahead. Thanks!

[Wulfman...]

Folks...I am worse than I ever was. I was diagnosed with severe CompSA. I have been 100% compliant using an Auto Bipap for over 2 months now with an average of 7-8 hours per night. RT says my numbers are great (she reads my data, not me) but I am feeling far worse now than before I started therapy. I am far more tired than I ever was and I have developed this brain fog. I am feeling more sleep deprived than before therapy, I am forgetful and I feel like a truck hit me when I get up in the morning. I am walking around in a daze, running red lights and sometimes forgetting where I was going. Is this sleep debt or something more sinister to worry about. Has this happened to anyone else...and will it right itself?

Audge

You may STILL have the wrong machine to treat your condition.
You may actually need an ASV machine (Adaptive Servo-Ventilation).


Den