Newbie from Malaysia

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Marietjie
Posts: 572
Joined: Tue May 13, 2008 7:30 am
Location: Port Elizabeth, South Africa

Re: Newbie from Malaysia

Post by Marietjie » Sun Feb 13, 2011 8:45 am

flattyre wrote:I couldn't find any in Malaysia
Difficult to find anyone in Malaysia with sleep apnea ? ? ?
Try this - have a T-Shirt made with the words: Do you Snore? I've got the answer!
Wear your T-Shirt to the Saturday Market - (maybe you can include your telephone number - people are sometimes shy about
this 'problem'.
I am positive it won't be the snorer that will ask you for an answer - but the sleeping partner!
(It's a beginning) - good luck!
Best among people are those who benefit mankind

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flattyre
Posts: 12
Joined: Thu Jan 27, 2011 10:07 pm
Location: Petaling Jaya, Malaysia

Re: Newbie from Malaysia

Post by flattyre » Sun Feb 13, 2011 7:22 pm

dtsm wrote: Once you learn how to use the software, check for leaks. That is one of the key/important factors in getting good therapy and insuring 'optimal' pressure. If you leak too much, pressure will increase to compensate and lots of fluctuations. No rush but once you get settled in, your 95th percentile pressure setting should remain fairly constant.
DreamDiver wrote: If you're using your smart-code to check out your numbers on the Devilbiss site, take a look at your 95th and 90th percentile pressure for the last 30 days. A good place to put your minimum pressure might be somewhere between the 90th and 95th percentile.
DreamDiver wrote: I absolutely agree with Robysue that if your pressure is as 7, you probably don't need any ramp.
Hi dtsm & DreamDiver,

Thanks for the pointers. Yes, I just learned how to use the smartlink module and trying to make sense of the figures. I did notice of the leak numbers and am slowly trying to read and understand the figures so as to find the optimum setting. You guys are definitely helping me in the right direction. Thanks a million.

Am going to meet my Dr hopefully this week, with the data in hand. Perhaps he will also be able to shed some light on the proper setting for me. Especially as I will be travelling next week. Will be my first travel bringing the APAP along!! Going to be an experience.

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flattyre
Posts: 12
Joined: Thu Jan 27, 2011 10:07 pm
Location: Petaling Jaya, Malaysia

Re: Newbie from Malaysia

Post by flattyre » Sun Feb 13, 2011 7:29 pm

Marietjie wrote: Try this - have a T-Shirt made with the words: Do you Snore? I've got the answer!
Wear your T-Shirt to the Saturday Market - (maybe you can include your telephone number - people are sometimes shy about
this 'problem'.
I am positive it won't be the snorer that will ask you for an answer - but the sleeping partner!
Hahahaha.. good one Marietjie! Am sure to get plenty of stares if i were to do that. Maybe i should team up with the Sleep Specialist and device provider and make a few bucks out of it while i'm at it..

Thing is, you don't find that many support groups here for specific matters, such as OSA. Am sure you would have seen it for yourself. Hence the leap to find support half way across the world for it. Thank god for the Internet!

Costs of xPAP's here also doesn't help, and that insurance doesn't cover also makes people turn off from going for it. I guess that even if people did have OSA, not many would be able to actually fork out double what they pay in the States, with the amount of salary that they earn here in Malaysia

dtsm
Posts: 1097
Joined: Sun Mar 08, 2009 8:34 am
Location: CT

Re: Newbie from Malaysia

Post by dtsm » Mon Feb 14, 2011 6:14 am

flattyre wrote: Am going to meet my Dr hopefully this week, with the data in hand. Perhaps he will also be able to shed some light on the proper setting for me. Especially as I will be travelling next week. Will be my first travel bringing the APAP along!! Going to be an experience.
Usually a follow-up visit with Doc doesn't take place until you've had a solid 6-8 wks with cpap [unless you are having any major problems]. So if money is an issue, if you're slowly settling in with the machine, the apap range is working [i recall from previous post 6-9?] and your numbers appear solid, might wait a little longer before your visit. Remember, if you're leaks aren't under control, then the pressure readings aren't entirely 'valid'.

POV.

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flattyre
Posts: 12
Joined: Thu Jan 27, 2011 10:07 pm
Location: Petaling Jaya, Malaysia

Re: Newbie from Malaysia

Post by flattyre » Sat Feb 26, 2011 2:54 am

dtsm wrote: Usually a follow-up visit with Doc doesn't take place until you've had a solid 6-8 wks with cpap [unless you are having any major problems]. So if money is an issue, if you're slowly settling in with the machine, the apap range is working [i recall from previous post 6-9?] and your numbers appear solid, might wait a little longer before your visit. Remember, if you're leaks aren't under control, then the pressure readings aren't entirely 'valid'.
Hi dtsm,

Sorry but I just realised your post.

It's a follow up check since I was first diagnosed, but not on xpap. Had it sourced from the States, hence took a little while to get it. Visit to Dr is insured, hence no issue on money. On the device isn't covered

Thought with whatever little data I have, would be good to see if things are going well as am running blind, but of course with you and other forum members assistance.

Just came back from a week of travelling and so far it has been good. Luckily my device is quite small, and not too cumbersome to bring. In fact, I educated 2 other colleagues on OSA during the trip and they might be going for sleep tests themselves. Hahaha. I should arrange for a referral fee from the Dr!!