Now I know....

[Quilter2]

My MANY FFM poor fit is due to top of head - a pinhead -ballooning out at mid ear. Flat head on back w/ smooth hair. Parallel or nearly parallel headgears slide down my head . Retruded mandible-this is why the 7 chinstraps(those w/ diagonal support and those w/ a more vertical approach )are so crappy and then as a bonus, interfere w/ fit of FFM chin area. Neck ache is due to all the mal-alignment of headgear. When I pull straps to stop chin leaks (remember RETRUDED mandible) it's over. Use the nice denier socks too and more..

After getting my reports (Nov 2009)on last split sleep study. It gets even more crazy. RX is ASV machine at 5/3/15. During diagnostic portion of night showed moderate severity obstructive and CSA associated w/ mild to moderate oxyhemoglobin desaturations.. During second half of night w/ ASV respiration normalized but sleep quality actually deteriorated. Follow up home oximetry recommended. I was not exposed to any of my reports or the O2 . Stopped w/new machine nearly right away,but now I hit the wall and can't ignore.(9-09---10-2-09)Faithfully ,15 nites in a row, followed by all day trying to fit a mask and read this forum + post

Did I give up on my initial CPAP trial at home too soon? ( 2008 first study). Too much of a wimp w/ masks,leaks and etc as described .Looking back w/ the problems I am trying to solve now,it looks like that was just a walk in the park.
My HUGE need for air + mouth opening.
On cpap wiki I learned about settings and discovered I was having the exact symptoms described w/ a minimum pressure that was too low. Feeling starved for air on my minimum pressure. I believe the migraine + headaches are borne by part of this issue. Also , such a huge range from 5- 12 caused a delayed response by machine,which in turn causes all the extreme mask bellowing and pulling on face and etc. + neck pull.
Has anyone had something similar? I can provide more details if needed. appt. w/ sleep dr is 1 month away. I keep records of each night+time usage.

[OutaSync]

Have you tried the PapCap? It doesn't pull your chin back, but rather keeps it up and since it doesn't stretch, you don't have to tighten it to keep the pressure up.

Are you saying that your current prescription is for 5/3/15? I didn't even know our machines would go that low. Do you know why your sleep deteriorated while on ASV during your study? Do you have a copy of that study?

[Quilter2]

Have you tried the PapCap? It doesn't pull your chin back, but rather keeps it up and since it doesn't stretch, you don't have to tighten it to keep the pressure up.

Yes, have tried pap cap, I liked its ability to provide a more vertcal and/or slightly diagonal chin control choice. It was not enough to keep my trap shut. quote="OutaSync"]Have you tried the PapCap? It doesn't pull your chin back, but rather keeps it up and since it doesn't stretch, you don't have to tighten it to keep the pressure up.

Are you saying that your current prescription is for 5/3/15? I didn't even know our machines would go that low. Do you know why your sleep deteriorated while on ASV during your study? Do you have a copy of that study?

[/quote]

From Dr. dictated notes "prescription for the ASV machine at 5/3/15". The EEP factory default can never be less than 4. Why wouldn't my Dr. know that and write RX w/ a correct range?
I have a copy of my polysomnography report( 1 page is lots of numbers and %'s and other page is interpretive).Have titration study and her dictated notes for my GP.
Respiration titration says...."There were periods of unexplained decrease in her oxygen saturation during both wakefulness and sleep in this part of the night and overall the oxygen saturation was below 90% for 2.1% of the time." On my personal questionnaire at end of night,and to my sleep technologist during the ASV portion ,I complained that humidity was not working. Evidence was such a dry nose it was clicking w/ every in breath and out breath. Offered to place hose on mirror,she was not interested and nothing changed. My Dr. happened to be there in the morning, inquiring as to how I did. I complained to her again about nose and no humidity.In Dr. followup appt after study I complained again, when asked about no humidity.Maybe ..this is reason for desaturation.?

[Guest]

Now you should learn.....


To actually put the subject of your post in the subject. Lots of people are here to help, but it's a tad rude when each of them have to go into your post to learn what you're talking about.

[Quilter2]

Now you should learn.....


To actually put the subject of your post in the subject. Lots of people are here to help, but it's a tad rude when each of them have to go into your post to learn what you're talking about.

Yes, I will learn. I thank everyone who read any or a part of my post.Sorry, never crossed my mind about being a tad rude. I will call my daughter or talk to husband about the ettiqutte computer rules. As you can tell, I am ignorant.

[BlackSpinner]

Now you should learn.....


To actually put the subject of your post in the subject. Lots of people are here to help, but it's a tad rude when each of them have to go into your post to learn what you're talking about.

Yes, I will learn. I thank everyone who read any or a part of my post.Sorry, never crossed my mind about being a tad rude. I will call my daughter or talk to husband about the ettiqutte computer rules. As you can tell, I am ignorant.

Not rude at all. Ignore guests who can't be bothered to sign up - they are the ones who are rude. Don't take critique from them - it is called learning to ignore trolls. You are doing fine.

[Quilter2]

Not rude at all. Ignore guests who can't be bothered to sign up - they are the ones who are rude. Don't take critique from them - it is called learning to ignore trolls. You are doing fine.

Trolls-what a funny concept. Thanks for your note.