Great Forum!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
lowpsi
Posts: 2
Joined: Sat Sep 11, 2010 2:37 pm
Location: Virginia
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Great Forum!

Post by lowpsi » Sun Sep 12, 2010 10:46 am

I just wanted to thank everyone that has gone before me. You've blazed the trail and made my CPAP journey much shorter. I was recently diagnosed with apnea (My wife got concerned when she noticed that I stopped breathing repeatedly while sleeping.) and have been "outfitted" with an S9 and a Swift FX. My pressure is 10 and I was struggling to stop the leaking. (It was driving both my wife and I nuts!) I was given permission by my Doc to enable the EPR and AutoStart. Not having to exhale as hard has made the difference and I have virtually no more leaks - even when I sleep on my back. I actually look forward to going to sleep! Having the pressure self-adjust while I sleep is great and the FX is so comfortable, I almost feel guilty for having it so easy.

Again, thanks to this Forum, I knew some of the questions to ask and had an idea of what equipment to start with.

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Emilia
Posts: 1873
Joined: Mon Jul 12, 2010 8:56 am
Location: Florida, USA

Re: Great Forum!

Post by Emilia » Sun Sep 12, 2010 10:55 am

Congratulations on a great start! I could not agree with you more about the wonderful folks on this forum. I stumbled across it just as I was diagnosed, and it became my guide through the entire process of dealing with insurance, researching machines, learning fixes to leaks, etc. I cannot imagine trying to navigate this process without their guidance! No doubt that is why so many fail to comply.....they have not found this wonderful resource to help them!
Yes, that blue eyed beauty is my cat! He is a seal point, bi-color Ragdoll. I adopted him in '08 from folks who could no longer care for him. He is a joy and makes me smile each and every day.

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elena88
Posts: 1650
Joined: Sun Feb 28, 2010 2:25 pm
Location: california

Re: Great Forum!

Post by elena88 » Sun Sep 12, 2010 11:20 am

Good for you!

Glad youre getting everything situated.. a little information goes a long way with this therapy

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: sleep study: slept 66 min in stage 2 AHI 43.3 had 86 spontaneous arousals I changed pressure from 11 to 4cm now no apap tummy sleeping solved apnea

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Hawthorne
Posts: 3972
Joined: Tue Oct 19, 2004 4:46 am
Location: London Ontario -Canada

Re: Great Forum!

Post by Hawthorne » Sun Sep 12, 2010 11:27 am

I was 6 years on cpap before I got involved in this forum! I found it after about 2 years on cpap but just read. I was 100% compliant from day 1 so didn't feel I needed much help. I certainly was not getting any help from my Provider or sleep doctor! I had a plain Remstar Pro - no c-flex, no nothing!

In 2008 I began to feel sleepier again and was looking at a long wait for another sleep study. While waiting, I began to look at this site more seriously and it lead to me asking for an inhome sleep study with an autopap. I then bought an autopap and software online. I was still waiting for the sleep study. With the help of the forum, I got it set so that I had my leaks under control and my AHI almost always below 1 and I was doing fine again.

I went for the sleep study (finally) anyway, to be sure nothing else sleepwise was going on. In Ontario, you can get a new prescription after 5 years and another sleep study. We also have a Provincial Government program that pays 75% of a new machine every 5 years.

Only my pressure had changed so my sleep doctor would not write a new prescription. I told him I had found out about exhalation relief and would like a machine with that on it, and autopap (didn't tell him I bought one on my own with flex settings). I was hoping to get a backup machine for the one I had bought. In Ontario, even if you are willing to pay the total cost of a machine by yourself (about 4 times+ as much as the one I got on line) you can't without a new sleep study and a recent prescription.

My sleep doctor said I would get a new prescription "if and when" my current machine (the old tank compliance only) got broken beyond repair!

I went ahead and bought a backup auto machine on cpapauction.cm and have purchased many masks there and at cpap.com since.

Without this forum, I would be using my old tank and paying big bucks for masks still!
I wouldn't have known that I could get machines at a much more reasonable price and that I could have all these comfort features and a machine and software that I could use to get optimal therapy with my old original prescription! They also helped me interpret my software data and get set up for optimal therapy.

I am so grateful to have found this forum!!!

_________________
Machine: DreamStation Auto CPAP Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments:  Backups- FX Nano masks. Backup machine- Airmini auto travel cpap

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DoriC
Posts: 5214
Joined: Sat Sep 13, 2008 9:28 pm
Location: NJ

Re: Great Forum!

Post by DoriC » Sun Sep 12, 2010 9:32 pm

Hawthorne wrote: They also helped me interpret my software data and get set up for optimal therapy.

I am so grateful to have found this forum!!!
Hawthorne, so many of us are grateful you found this forum too!

_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L,
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08

gpk111
Posts: 215
Joined: Sun Mar 21, 2010 9:30 am
Location: Florida

Re: Great Forum!

Post by gpk111 » Mon Sep 13, 2010 8:29 am

What is it with all the cat pictures? I'm starting to think there's a distinct correlation between cat lovers and OSA. I guess I'm an exception.

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: ResScan v3.10, Contec CMS50-F wrist oximeter
Gerry in Florida

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Emilia
Posts: 1873
Joined: Mon Jul 12, 2010 8:56 am
Location: Florida, USA

Re: Great Forum!

Post by Emilia » Mon Sep 13, 2010 9:34 am

I think we are all jealous of how well cats sleep!
Yes, that blue eyed beauty is my cat! He is a seal point, bi-color Ragdoll. I adopted him in '08 from folks who could no longer care for him. He is a joy and makes me smile each and every day.

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howkim
Posts: 482
Joined: Fri Mar 06, 2009 8:36 am
Location: South Florida

Re: Great Forum!

Post by howkim » Mon Sep 13, 2010 10:05 am

Emilia wrote:I think we are all jealous of how well cats sleep!
Maybe, but one of mine snores. And, of course, he's the one that sleeps by my pillow. He's my avatar here.

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Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Encore Basic Software; Pressure >7
Howkim

I am not a mushroom.