Whining paid off....

[Bons]

I went to the DME today because of a problem with my mask and dumped my frustration on the therapist. At least I warned her first that I was exhausted and apologized in advance! I told her I was having problems trusting the shop because they'd sent me home the first day knowing I had leak issues with the mask they gave me instead of fitting it for me or having me try a different one- and had the leak alarm turned off. And that the second mask wasn't fitted with the machine even though I asked if I could bring it in. Got a replacement for that one today because a valve was leaking.

Anyway, I whined about not being able to see any data to see if I was getting anything out of the treatment since I'm still exhausted and waking up many, many times during the night. Tech said I was probably not waking up as often as I thought, but then to show me that she printed out the data for the past couple of nights. I never fell into a decent breathing rhythm/sleep pattern for more than half an hour at a time, and it appears that whenever I go into REM I am still having 2-3 obstructions. So tomorrow I graduate from a CPAP to either an APAP or BIPAP after she consults my sleep doctor to see which he wants and what pressures to set.

[Hospiceangel]

Good for you!!!
Sometimes we HAVE to be the squeaky wheel in order to get what we need. Yay!!!!!
I feel for those who are too tired and worn out to fight, or haven't found this forum and don't know any better!!!
Let us know how it goes.
Shar:)

[pdean44]

Awesome glad it worked out. Looking forward to hearing how the new gear works for you!

[elena88]

oh wow...

I wonder if you can ask for the "loaner" machines and try

one apap


one bipap and see which you like better?

do you have a high pressure, or do you struggle breathing against the machine, or have a bit of a lung dysfunction..

bipap might be a good choice then..

I have tried cpap, apap, bipap... my favorite is bipap