Sleep study numbers---help please

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Babbie
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Sleep study numbers---help please

Post by Babbie » Sun Oct 30, 2005 9:19 pm

I finally got my sleep studies from my doctor (I had to ask for a copy!) the other day but I have no idea what any of this means and she's never gone over anything with me (other than to tell me I need a CPAP).

The first one was without a CPAP and this is what they have:

Sleep efficiency: 91%
Latency to stage 1 sleep: 21 minutes
Latency to REM sleep: 76 minutes
Obstructive apneic events: 60
Obstructive hypopneic events: 68 (for an index of 20 events per hour)
Oxygen Saturation: There were several clusters of oxygen desaturation. The lowest recorded oxygen saturation was 84%
Cardiac events: remained in sinus rhythm
Other events: 199 arousals for an index of 31 events per hour. There were 9 awakenings, very occasional leg jerk leading to arousal
The sleep profile revealed slight excessive REM sleep which is unusual.

Then the study with the CPAP:

Sleep efficiency: 70%
Latency to stage 1 sleep: 15 minutes
Latency to REM sleep: 121 minutes
Commenced at 4 cm of water pressure and raised to 8 cm of water pressure. At 8 cm of water pressure there would be no apneic events and 1 hyponetic event was recorded. The apnea-hyponeic index was 0.8 events per hour.
Oxygen saturation: maintained normal oxygen saturation on CPAP
Remained in sinus rhythm
92 arousals for an index of 19 events per hour and no periodic limb movement disorder.

I don't know how to read this exactly and I know a lot of you know much more about this than I do. Any input would be appreciated----and I know you're not doctors. Thanks!!
Kathy


SirSnorzALot
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Post by SirSnorzALot » Mon Oct 31, 2005 6:17 am

Check out this link:
http://www.suite101.com/article.cfm/sleep_apnea/57133
I found it most helpful.

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ozij
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Re: Sleep study numbers---help please

Post by ozij » Mon Oct 31, 2005 11:47 am

Babbie wrote:I finally got my sleep studies from my doctor (I had to ask for a copy!) the other day but I have no idea what any of this means and she's never gone over anything with me (other than to tell me I need a CPAP).

The first one was without a CPAP and this is what they have:

Sleep efficiency: 91%
Latency to stage 1 sleep: 21 minutes
Latency to REM sleep: 76 minutes
Obstructive apneic events: 60
Obstructive hypopneic events: 68 (for an index of 20 events per hour)
Oxygen Saturation: There were several clusters of oxygen desaturation. The lowest recorded oxygen saturation was 84%Cardiac events: remained in sinus rhythm
Other events: 199 arousals for an index of 31 events per hour. There were 9 awakenings, very occasional leg jerk leading to arousal
The sleep profile revealed slight excessive REM sleep which is unusual.

Then the study with the CPAP:

Sleep efficiency: 70%
Latency to stage 1 sleep: 15 minutes
Latency to REM sleep: 121 minutes
Commenced at 4 cm of water pressure and raised to 8 cm of water pressure. At 8 cm of water pressure there would be no apneic events and 1 hyponetic event was recorded. The apnea-hyponeic index was 0.8 events per hour.
Oxygen saturation: maintained normal oxygen saturation on CPAPRemained in sinus rhythm
92 arousals for an index of 19 events per hour and no periodic limb movement disorder.

I don't know how to read this exactly and I know a lot of you know much more about this than I do. Any input would be appreciated----and I know you're not doctors. Thanks!!
Kathy
Hi Kathy,
I marked in red the things that changed from your regular study to your titration.
They mean that with cpap at a pressure of 8, you have no breathing obstructions.
They also mean that without CPAP there are times when your blood contains far less oxygen than it should - 84% oxygen saturation is low - and that is no good for your body.
Your heart is not affected by your apneas - no arythmias, which is good.

I don't know about the arousals - by even they seem better with cpap.

As for your sleep efficiency - without the cpap, you spent a bigger part of your time in bed asleep. That's not very surprising.

The sleep profile revealed slight excessive REM sleep which is unusual.
means that you dreamed (or is it dreamt?) more than the usual. REM stands for "Rapid Eye Movement" which is what happens when a person dreams. At the same time you EEG changes - and they identify your REM sleep from the EEG, not from watching you eyes. By the way, dogs and cats also have REM sleep - and possibly dream - but they can't tell us about it.

O.


Edited some typos that got through the spellchecker...
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CPAPopedia Keywords Contained In This Post (Click For Definition): Titration, Arousal, CPAP

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Last edited by ozij on Mon Oct 31, 2005 3:54 pm, edited 2 times in total.

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Roger...
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Post by Roger... » Mon Oct 31, 2005 2:21 pm

Kathy,
Did they also give you a couple of graphs?

Graphs give a better understanding of what is happen while you are asleep.

My last sleep study graph is available by clicking HERE. The graph is large so you'll need to expand the browser to full screen to see it clearly. With this kind of information, you'll get a better sense of what happened when, and can then be in a better position to understand the agregate numbers of the simple report you were given when you go to the link given by SirSnorzALot in a previous posting to you.
Roger...

Babbie
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Post by Babbie » Mon Oct 31, 2005 2:34 pm

Roger - no I got no graphs and the copies I did get are hard to read - in fact there are a couple of places that I can't read it at all - just a bunch of dark jumbled up looking stuff (poor copier I guess).

ozij--thanks for helping me "wade through the muck". From the numbers of the first study and the one with the cpap, it almost looked like I was doing better without the thing--that is if you don't count the oxygen thing. And, I was thinking that 84% wasn't that bad but apparently it is. I know I didn't get much sleep with the mask on during the second one--I don't know what it was but Satan himself must have designed it!!

SirSnorzALot--I did go to the website and found it to be very helpful and interesting. Still a lot of that stuff that just goes above my head but I'm getting the gist of it.

Thanks to all of you for your help-- you guys are the best!!


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Roger...
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Post by Roger... » Mon Oct 31, 2005 2:46 pm

To get my information, I had to ask the Sleep Center. If you haven't tried that approach yet, give that some thought and ask them to mail you the copies so you won't have to struggled with poor copies of poor faxes.

Good Luck!
Roger...

Babbie
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Post by Babbie » Mon Oct 31, 2005 3:00 pm

When I had my studies done, I didn't go to a "sleep center" per se. Someone came to the local hospital where they have a room designed especially for sleep studies. I know this sounds ridiculous but I don't even know what the name of this place was that did the sleep study!! Yes, Roger - the copies I have are just poor quality faxes. I think I'll call my MD's office and see if I can get the name of the folks who actually did the studies and maybe get something better than what I have. I did look at your graph and I would think something like that would be much easier to read than what they gave me. I just talked to my DME and right now all her autopaps are being loaned out but she has me on the list. I'll know more when I'm able to use that for awhile and see how things are really going. I started using an Activa a couple of weeks ago and I think it's leaking much, much less but who actually knows unless it's recorded. I'm still so green trying to learn all this stuff---thanks to everyone for not and being so helpful.


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Roger...
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Post by Roger... » Mon Oct 31, 2005 3:31 pm

I avoided dealing with my sleep problem over 15-years and it took its toll. When I went to the sleep center I was far from happy with their quality of performance, partly because when I got my first pass of the sleep report, there were blatant errors on the summary report. That is the probably the same style report you received. In my case, I had to call the sleep center and ask them why they said what they put on the report. They couldn't defend it once they looked at the sleep test notes and the graph, however they mentioned that the MD who writes the report does the work as a second job when he gets home from his sleep center business. Put this image in your mind, Sleep doctor writes the report between passing the salad and the Chardonnay.

When I mentioned the report problems and their response, with my MD he sat down with wide eyes. Maybe it was something about the liability of him working from the the report with errors while I'm walking around with a different report. Seeing two versions of the report had him more than dumbfounded and grumbling.

After that visit I pressured the sleep center to get him the right report without errors. I guess if there is a message in all this, it is to take charge and don't let sloppy performance, or a don't care attitude get in the way of your well being.

As for being new, we are all learning here. I've only been hosed for a week. However, I've been studying this stuff for the last 9-months. 6-months into my discovery process, I decided I could commit to it, but so far I've not been successful as my last chart in this posting indicates:
"Getting Hosed", Day-5, A Data View

What happens next for me is just more discovery with the hope that this journey won't be so engrossing as time on the hose accumulates.
Roger...

Babbie
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Post by Babbie » Mon Oct 31, 2005 3:47 pm

Roger ---Sounds to me like I need to do more "digging" and see what I come up with. I envy some that actually have sleep doctors. My MD as well as the DME haven't been very helpful. In fact, while talking with my MD the last time I was in, I mentioned that I'll be in Australia this winter for my daughter's wedding and I'm unsure of taking the CPAP because I'm afraid they won't check it through. Know what she said? "Oh, you don't have to take it if you don't want to." Yep, that's what she said. Now I'm sitting there thinking to myself, do I really need it if she's saying that??? Obviously I do or she wouldn't have prescribed the thing in the first place. I'm hopeful that after I do the autopap for awhile I'll have more answers than what I have now. Also - as an aside---did I read that you gave up your Activa for awhile and are trying the Comfort Curve now? How's that working? I have the Activa and have considered trying the Comfort Curve myself.


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Roger...
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Post by Roger... » Mon Oct 31, 2005 5:05 pm

Going down under with xPAP:
First, there are tags you should have gotten with your equipment that show the xPAP is a medical device. It should also state that fact on the label on the bottom of the machine. In addition, the manual that came with it should talk about this point. I know my REMStar Auto w/CFLEX has a tag, a note in the manual and a label on the bottom.

With those items, and the manual packed with the machine, you should be able to wrestle your way through the checkpoint gauntlets. Because your going down-under, bring some form of purchase information with you in case some person on the way back gets an emotional need to levy a tithe for taking your toys back home. With proof of purchase you’ll be able to cut them off before they get too attached to the idea.

If you don’t have a tag that says “Medical Equipment”, ring up your machine provider and grind them until they surrender it. These tags are just stiff cardboard with red letters that would easy to duplicate in a pinch, but having them on stiff cardboard helps to keep them attached during transit.

Also ring up the airlines and ask them about how it will affect your ability to bring the toys on board with you. For certain the insurance coverage the airlines hint at won’t cover the cost of the machine, so moving your wind-machine across the puddle to down under needs to be considered broadly. You’ll also probably need some form of power converter, but this is a question for daughter. She is in a good position to know as its been over 20-years since I went chasing “Roos” in the outback. I also recommend you practice saying, “Fosters!” It will keep you from going dry.

Sleep Doctor:
My MD isn’t a sleep doctor, but he listens and is unusually bright. I like this guy most of the time except when it comes time for my physicals, but we won’t get into that discussion here.

In any event, after my fiasco with the sleep center I mentioned a “go it alone” strategy believing I couldn’t do any worse. He asked a few questions, I responded and talked about what needed to be on the prescription. After that and with the stroke of a pen, my “Getting Hosed” adventure began in earnest.

I would like to have access to a sleep MD that wasn’t asleep, or so busy they were in multi-tasking mode and shallow in their response. However, I fear that critter may not exist these days. What does exist is a lot of information and the ability to ask questions of the doctor when I visit. When I couple those benefits along with the experience of this forum, I’m thinking this is a deal that can see some airtime. However, it is important to remember that out-of-study and anecdotal evidence isn’t science and needs to be viewed and vetted before being accepted.

Comfort Curve:
I sure do want to like this mask. I can’t say that more emphatically, and I certainly would like it if I could only get it to sit still while I was sleeping. In the link I posted before this posting there is a graph of my sleep performance from last night. In the lower section is a graph of the leaks I experienced last night with the Comfort Curve.

Even though I want to like this mask, it is hard to like something that leaves me gasping. I can’t tell you how often it falls off, or moves so far out of place, that the wind for my nose diverts to the sheets, or the dust on the wall. I mean I could count the number, but that is a lot of counting as the black marks on the reference graph indicates.

What makes this mask so difficult for me to use is my sleep gymnastics. If you look at the lowest graph on my sleep center test reference above, you’ll see that I sleep like tumbleweed in a hurricane. On the graph in the sleep test report, the Blue letters on the bottom graph indicate as follows:
L = Left Side, P = Prone, PL = Prone Left, S = Supine (Back), SL = Supine Left, R = Right Side, SR = Supine Right, PR = Right Prone. I’m rather busy sleeping and this mask isn’t cut out for people who sleep on their sides like I do.

In that same graph you’ll see I spent 34.7% of the night with massive/large leaks. Leaving me with 65.3% of the night dealing with moderate to smaller leaks. The funny part of this is that this mask is very comfortable on the face, if you don’t mind the vise like grips the side pads put on your check bones. Of the few masks I’ve tried, including the Activa, this mask adorns easily, fits quickly, gives good vision to the clock and the spots on the ceiling and is easy to sleep with it. Although in my case, it gets real easy when it pops off and I don’t notice it went away.

If you decide to go this route and are a side sleep you’re going to get real good at finding it in the pillows and getting it back on with your eyes closed. Now, if you plant on your back in between the sheets like many people and don’t wonder to your sides, this might be the ideal mask. My Mirage Activa needs a larger beak cover because the one I had was polishing my lower nose area to a very bright red finish. I stopped using that when the red glow in the night garnered me the nickname of “Rudolph”. There is only one “Rudolph” so that would mean I’d be stuck in the second of worse row in the team. I just could deal the prospects of what that in-flight vision might entail.

Hope this helps!
Roger...

Babbie
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Post by Babbie » Mon Oct 31, 2005 5:47 pm

Doesn't sound like the Comfort Curve is for me. The leaks just about drive me nuts---I've been through 3 and the Activa is my 4th. I know tons of people swear by the Swift nasal pillows - didn't work for me. I've tried every size they come with and within a couple of hours I'd have air swooshing everywhere, spent 1/2 the night fiddling with it and ended up with a mighty sore nose. I liked the breeze (with the mask, not the nasal pillows) but that too was leaky. My first was the Comfort Gel --I laugh out loud at the name "comfort"---no, it wasn't at all. Keep posting on the Comfort Curve--it "looks" like it'd be comfortable. Most of this is a crap-shoot, sometimes you win, sometimes not.

I'll have to take a good look at my equipment and do some research on taking it down under. There's probably a good thread on here somewhere, just have to look. Yes, I'll definitely have to get a converter for it. Guess I'm not as dedicated to this, as I am thinking of just leaving it home. I know, not a good idea but it is looking more attractive than trying to get it there and back, etc.

Good luck with the Comfort Curve and thanks for all your help!


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rested gal
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Post by rested gal » Mon Oct 31, 2005 7:02 pm

Roger wrote:
if you don’t mind the vise like grips the side pads put on your check bones.
I minded that a LOT, as well as the way the cheek slabs pushed the skin under my eyes up into my eyes. Those slabs, plus the CC's penchant for leaking with the smallest movement...not for me.

I've been experimenting some with having taken the dreadful thing apart and using homemade soft, stretchy straps. Have almost succeeded in making it usable, but still getting too many black blocks of Large Leaks just like you did, Roger. If I ever get the little nasal piece to behave all night, I'll post my fixes. Currently enlisting the aid of a friend who may have solved how to hold it in place reliably.

Babbie, you got this absolutely right!
Most of this is a crap-shoot, sometimes you win, sometimes not.

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Roger...
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Post by Roger... » Tue Nov 01, 2005 11:14 am

I do think the Comfort Curve is a fairly comfortable mask, but because it is so unstable as a sleeping device it keeps me thinking about it all night long. When I'm over tired, I get charts like I posted for Sunday. Black lines everywhere and wrong results in the numbers.

As for a harness, I have a good idea on how to harness the interface, but there is some sewing involved and the machine for doing that belongs to the bride so I don't mess with it. In reality, I haven't had to either so it isn't a loss.

When I showed the bride how I thought we could harness this interface she said we would need to go to the fabric store and pick out some stuff. I could cut it out and she'll stitch it together. She's doing an end of month close and goes right into an annual audit so I may not get much accomplished until after the holidays in January.

For what it is worth, I find the headgear from ResMed's Activa mask to be very stable on my head and believe that approach with some small changes to accept the small tubing of the Comfort Curve would make the Curve useable. At least I hope it would, but only a long night will tell. However, on the Curve, there needs to be a way of tilting the mask interface slightly. The notch positions on the side pad holders are designed to keep the interface in place and to also tilt the angle that the interface makes to the nose. There isn't a lot of room for movement, but enough that it can make the difference between a seal and leak. Handling the tilt might be possible with a "Y" strap arrangement, but this is where testing is needed to see how practicle all this home brewing can be worth.
Roger...