Thank you so much SU!
I am seeing a neurologist at UM. I have had my studies done at their lab. I'll make sure to route my son through that program. I'll also do as much research as I can, and contact Dr Chervin if I need to!
The nuerogy resident that I have been talking to at UM is also focusing on pediatrics. I really like him - he has been very concerned to see how much I was suffering, and did his best to help me. I am sure he will also help me navigate the system with my son!
Looks like I have another round of learning to do! Right after I finish taxes tomorrow!
Thank god my brain is finally up to this now that I am sleeping! I also need to work on getting my brother and dad tested and treated.
Thanks again! It is nice **not** to be alone on this one!
Michael
A little about my life with sleep apnea.
Re: A little about my life with sleep apnea.
VPAP ASV: BiPaP ASV: Quattro FF: Activa LT: Swift FX
Re: A little about my life with sleep apnea.
The symptoms of Executive Dysfunction closley fit the difficulties
my son is having. My wife does agree about that (his teacher too.). As I mentioned, he snores loudly. This from Chervin:
Cognitive Executive Dysfunction in Children with Mild Sleep-Disordered Breathing
Ronald D. Chervin, MD, MS
In children, moderate or severe sleep-disordered breathing (SDB) may impair cognitive executive functions (EFs), including working memory, attention, and mental flexibility.
Just one of many articles, 100% on target! It will be so much better to address the root cause, instead of having him labelled and punished for years ....
He loved school until 5th grade, when he was always being punished for things relatd to this (he does his homework, but can't stay organized and never turns it in, etc.) - name on the board, no recess as punishment, etc. He thought the teacher was always mad at him, other kids and teachers start to label him as stupid, which is self perpetuating, etc.
Sorry to hijack the thread! I saw the OP's interest I'm sleep apnea in children.
Thanks!
Michael
my son is having. My wife does agree about that (his teacher too.). As I mentioned, he snores loudly. This from Chervin:
Cognitive Executive Dysfunction in Children with Mild Sleep-Disordered Breathing
Ronald D. Chervin, MD, MS
In children, moderate or severe sleep-disordered breathing (SDB) may impair cognitive executive functions (EFs), including working memory, attention, and mental flexibility.
Just one of many articles, 100% on target! It will be so much better to address the root cause, instead of having him labelled and punished for years ....
He loved school until 5th grade, when he was always being punished for things relatd to this (he does his homework, but can't stay organized and never turns it in, etc.) - name on the board, no recess as punishment, etc. He thought the teacher was always mad at him, other kids and teachers start to label him as stupid, which is self perpetuating, etc.
Sorry to hijack the thread! I saw the OP's interest I'm sleep apnea in children.
Thanks!
Michael
VPAP ASV: BiPaP ASV: Quattro FF: Activa LT: Swift FX
Re: A little about my life with sleep apnea.
Wow! I didn't expect that kind of welcome! I sure appreciate you all, and look forward to talking with you all! I've noted the questions you all have asked. I will answer them as I formulate the answers....since I don't know everything, I've got to confer with my colleagues. I will answer the first question as best I know how...
"Over an average of 10 days in each setting, I get an Obs/Cnt AHi of between 2.0 and 2.4.
Is there a measurement - 0.1, 0.2, 0.3 or 0.4 or perhaps even more, where the difference becomes significant in terms of general well-being in regard to the therapy. On a personal level I cannot tell a difference.
It's kind of like the cutoff safe AHi of 5.0, would there be a legitimate need to do something if the AHi was 6, or 7, or 8. Where did the wisdom come from that it was safe to have 5 events an hour?"
My Answer:
You need to remember a few things when thinking about an AHI. First, it is exactly that, an average. Some hours you have more apnea, some fewer. A ".2" or a ".4" isn't much of a difference. A .5 or higher means you're closer to having the next number up of apneas. If you're having 4.5 AHI, I'd call that an average of 5, personally. I'd be looking at having a sleep study with anything over 5. Where did that wisdom come from? I don't know. It's just a generally accepted number in the community, the AASM and doctors. Although, that number can differ between doctors. I do, however, believe it has something to do with the possible cumulative damage a person could have from an average number of apnea, with an average desaturation, lasting an average length of time over an average period of time. In other words, a person can live a long, happy life with x amount of apneas average a lifetime, but not more. Somebody, somewhere has done a scientific study for this....they had to. I am of the opinion, however, that the number of apneas is less important than desaturation and duration. But that's a whole different kettle of worms.
Look forward to talking with you all soon! Thanks again for the welcome!
Jim
"Over an average of 10 days in each setting, I get an Obs/Cnt AHi of between 2.0 and 2.4.
Is there a measurement - 0.1, 0.2, 0.3 or 0.4 or perhaps even more, where the difference becomes significant in terms of general well-being in regard to the therapy. On a personal level I cannot tell a difference.
It's kind of like the cutoff safe AHi of 5.0, would there be a legitimate need to do something if the AHi was 6, or 7, or 8. Where did the wisdom come from that it was safe to have 5 events an hour?"
My Answer:
You need to remember a few things when thinking about an AHI. First, it is exactly that, an average. Some hours you have more apnea, some fewer. A ".2" or a ".4" isn't much of a difference. A .5 or higher means you're closer to having the next number up of apneas. If you're having 4.5 AHI, I'd call that an average of 5, personally. I'd be looking at having a sleep study with anything over 5. Where did that wisdom come from? I don't know. It's just a generally accepted number in the community, the AASM and doctors. Although, that number can differ between doctors. I do, however, believe it has something to do with the possible cumulative damage a person could have from an average number of apnea, with an average desaturation, lasting an average length of time over an average period of time. In other words, a person can live a long, happy life with x amount of apneas average a lifetime, but not more. Somebody, somewhere has done a scientific study for this....they had to. I am of the opinion, however, that the number of apneas is less important than desaturation and duration. But that's a whole different kettle of worms.
Look forward to talking with you all soon! Thanks again for the welcome!
Jim
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Re: A little about my life with sleep apnea.
That is a great point that I have often wondered about. AHI is the number we have access to on data-capable machines, so I think as users we tend to focus on that as "the number" to be concerned with. I find that the apneas I do have are just slightly over 10 seconds... and I know that if I hold my breath for 10 or 12 seconds when I'm awake, it's really no big deal. So, why would it be different when I'm sleeping (so long as they are not happening all of the time of course)?74snowman wrote: I am of the opinion, however, that the number of apneas is less important than desaturation and duration. But that's a whole different kettle of worms.
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(yet another Jeff)