Yes I know I got to wear it

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
DreamOn
Posts: 1920
Joined: Fri Oct 23, 2009 10:13 am

Re: Yes I know I got to wear it

Post by DreamOn » Tue Dec 01, 2009 2:17 am

YELOOCD wrote:Do you think this mask would be intended to wear with dentures or without? I have had uvualplasty, septualplasty, exended tonsilectomy, spelled all of them wrong... I dont need a sedative, I usually can fall asleep fairly easily, and have been told I am up drinking soda or eating something every couple hours though I rarely leave the house (except during a ambien episode which is why I stopped taking it) I tried benydryl to maybe sleep deep enough to NOy pull it off ...I take IBU 400 mg it dont make he tired and lithium for bipolar, niacin, ...not sure ...no drugs or alcohol for 8 years
YELOOCD,

I know that some masks (nasal, for instance) do rely upon the front teeth as a point of support, so users of those types of masks may need to wear their dentures. I know that you use a full face mask -- either the ResMed Quattro or Forma. I assume that type of mask would not need the support of the teeth, but I'm really not certain as I'm not familiar with those. Perhaps someone here knows more about that than I do.

Do you get a lot of mask leaks? Do you EVER make it through the night wearing your mask? If so, what kind of results are you getting -- such as AHI, AI and HI? Those numbers are available on the machine's LCD screen.

In a past post, you mentioned that you have difficulty with choking (on phlegm or saliva, you said). I believe I also read that you do not use any humidification. You may want to try using the humidifier, perhaps starting at the lowest setting and gradually increasing it over a week or so until you find a level that's comfortable. I don't know for certain, but it seems like that may help to thin your mucus or whatever. I have a ResMed machine and humidifier, and I'm comfortable between 1.5 and 2, but other people report needing more humidity. It also depends on climate, so you may need to experiment with that a little. If you get any condensation in the hose, you will need to wrap it or purchase a hose cover to insulate it.

I know that you've been trying to make this work for many months. You have said that you needed to wait to see your doctor until after January. If there is any way you can see your physician within the next few weeks, I would strongly recommend that. I think that you need to write down a list of all the specific problems you're having with CPAP and discuss each item with the doctor. He/she needs to know exactly what's happening -- that you take your mask off, you sleep through the alarm, you choke, that you just aren't getting the sleep you need, and anything else you can think of that may help him figure out what's going on. Let him know that you don't want to give up and you would like his help in finding solutions. Have him review your medications. And it may also be a good idea to have your blood lithium level tested, just to make sure that is where it should be, as that could be off a bit and causing you some problems. It's important to have that checked regularly.

I don't know how much your wife is involved with your CPAP treatment, but perhaps you can involve her and problem-solve together since she knows exactly what you're going through on a daily basis. It would be great if she could learn more about sleep apnea through this forum in order to troubleshoot with you.

I hope that one of the ideas I've mentioned will help you, or someone else here can offer other suggestions. Give these things a try for a while and please talk with your doctor. I'd like to see you succeed at this!

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TrueBlue
Posts: 37
Joined: Tue Jun 16, 2009 2:14 am
Location: Melbourne, Australia

Re: Yes I know I got to wear it

Post by TrueBlue » Tue Dec 01, 2009 3:10 am

Let's face it, we would all sooner NOT have to be using CPAP ! It's taken me ages to get comfortable with it and even now I often pull the mask off in the early hours of the morning - often waking later without knowing why I pulled it off ! But I will persist with CPAP because I know sleep apnea is bad for my heart, my blood pressure and heaven knows what else, and that is enough to keep me motivated ! I'm getting used to putting my nasal pillows on each night and it's not becoming such a big thing. I play around continually with the humidification and can't quite seem to master that but as they say.....practice makes perfect !

YELOOCD
Posts: 53
Joined: Thu Oct 15, 2009 11:04 pm

Re: Yes I know I got to wear it

Post by YELOOCD » Tue Dec 22, 2009 4:21 pm

I Havent gotten on here in a while, no change except I am more wore out ...if that is even possible, tried to find a hypnotist that could help me out by either wearing the mask or possibly somehow maybe I could keep my airway open ...dunno ... no luck, I am broke like most people and therapist, drs, all want money... dont think there is anything I havent tried...but if you happen to think of something let me know. happy whatever holiday your having.

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Mask
Additional Comments: HUMIDIFIER/SOFTWARE BUILT IN

DreamOn
Posts: 1920
Joined: Fri Oct 23, 2009 10:13 am

Re: Yes I know I got to wear it

Post by DreamOn » Tue Dec 22, 2009 4:57 pm

Hello YELOOCD,

I'm sorry to hear that you continue to have such a difficult time. In my last message on this thread, I had some suggestions for you. One of the things I suggested was that you try using your machine's humidifier, as it was my understanding that you weren't using any humidification. This could help to make CPAP therapy more comfortable for you, so I hope you've tried that recently. It may take some experimentation to find just the right level.

I understand that money's tight, but when you are able to consult with your doctor I hope that you will discuss the things I mentioned in my last post with him/her. There may be other issues affecting you, in addition to the sleep apnea, that need to be resolved in order for this to work well for you.

Best wishes to you and your wife during this holiday season. I hope you have a much brighter New Year, and that you'll be feeling better soon!

~ DreamOn

YELOOCD
Posts: 53
Joined: Thu Oct 15, 2009 11:04 pm

Re: Yes I know I got to wear it/

Post by YELOOCD » Wed Dec 23, 2009 10:51 pm

Well some progress, I did fill up the humidifier, and was able to put the mask back on every time I took it off ...I noticed its roughly every hour and a few min, between strangely waking up ... I have no explanation, I didn't feel like I had been woke up but none the less I would walk the hallway then back to bed. felt fair which is way better than usual lately. maybe I can get a sleep study for a discount ... or ask them to go over the original to see what happens an hour or so into sleep. thanks you all.

_________________
Mask
Additional Comments: HUMIDIFIER/SOFTWARE BUILT IN

DreamOn
Posts: 1920
Joined: Fri Oct 23, 2009 10:13 am

Re: Yes I know I got to wear it/

Post by DreamOn » Wed Dec 23, 2009 11:15 pm

YELOOCD wrote:Well some progress, I did fill up the humidifier, and was able to put the mask back on every time I took it off ...I noticed its roughly every hour and a few min, between strangely waking up ... I have no explanation, I didn't feel like I had been woke up but none the less I would walk the hallway then back to bed. felt fair which is way better than usual lately. maybe I can get a sleep study for a discount ... or ask them to go over the original to see what happens an hour or so into sleep. thanks you all.
Good to hear that you've experienced some improvement! I do hope that you will make steady progress and get to feeling much better. I know that it's been very difficult for you. Like I said, there may be multiple things going on that are affecting your sleep, and you may have to tackle each challenge one by one until everything falls into place. Please let us know how you're doing once you talk with your doctors and get things figured out.

Guest

Re: Yes I know I got to wear it

Post by Guest » Thu Jan 27, 2011 7:54 pm

YELOOCD wrote:sleep rider if you know my machine I have and can recall how to set the alarm I can try that without spending more money...