Is this normal?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
jazzmynn1

Is this normal?

Post by jazzmynn1 » Sat Jun 20, 2009 11:07 pm

I have been on cpap or three months. I feel better, but I have days when I wake up feeling tired, irritable or depressed. I have severe apnea, but wonder if it can take awhile to get over most of this.

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kteague
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Re: Is this normal?

Post by kteague » Sat Jun 20, 2009 11:18 pm

Hi Jazzmynn. Glad you are still hanging in there. I remember you had some struggles early on, and I apologize, but I don't remember your status at the time of your last post. Data capable machine? Just wonderng if your data reflects a worse night on the days you feel bad as described. Occasional not-so-great nights can happen to any of us, whether due to congestion, allergies, whatever. But if it's happening regularly, I'd have to wonder if the therapy is fully effective. A night of mouth breathing (wthout a full face mask) could negate a night's treatment and make for a bad day. Recovery (to varying degrees) from the ravages of the time of untreated OSA can be expected after the therapy is effective and adequate sleep on the treatment happens consistently.

Let us know a little more detail so we can try to help.

Kathy

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Muse-Inc
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Re: Is this normal?

Post by Muse-Inc » Sat Jun 20, 2009 11:56 pm

Doc says I have severe, mine are mostly hyponeas with desaturation of oxygen levels. I think apnea appeared in the late '90s with diagnosis in '07. First night of CPAP stopped my 7-10 nightly trips to pee; I slept 9 hours straight! 1 month my exhaustion lightened to just plain tired. 4 months mood and attitude improved to 50-60% pre-apnea. Another month and I started to wake up feeling refreshed -- I cried when I realized I hadn't felt that in nearly a decade. I continued to make improvements in all those areas. My energy levels were the last to be mostly restored and that occurred around 9 months when I was able to start doing more than a few minutes of exercise; at that time, I began losing weight. I've read that this is an unusually long period but I'd had apnea for a long time, long enough for apnea's side effects/complications to begin. My docs kept telling me to have faith, that some people take a year to recover. I kept reminding myself to be grateful there's effective therapy for apnea.
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jazzmynn1

Re: Is this normal?

Post by jazzmynn1 » Sun Jun 21, 2009 9:33 am

Thanks for your posts. I don't have a data capable machine so I don't know exactly what I'm doing.

I just know that I am not having bad days every day, but drs want to put me on different anti depressant drugs for the depression.
I think I need more time, and will talk to sleep doc about a data capable machine.

Thanks

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Re: Is this normal?

Post by BeanMeScot » Sun Jun 21, 2009 9:39 am

If you can't get a data capable machine, at least request an at home sleep study with an APAP to see what is going on. It is likely that something is going on. Without the data, you are flying blind. The DME can loan you a data capable machine (at the request of the doctor) to find out what is going on and fix it.

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Wulfman
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Re: Is this normal?

Post by Wulfman » Sun Jun 21, 2009 9:42 am

While it can take some time to feel some solid results from this therapy, one of the "usual suspects" in posts like yours is that the person is using a nasal mask and is leaking air out their mouth at night.......thereby nullifying much of their therapy.
Gotta make sure the "pie hole" is sealed. Chin straps are "iffy", so that leaves taping or full face masks for better solutions.

Having a data-capable machine (and the software to interpret the data) takes a lot of the guesswork out of this therapy.


Den
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jazzmynn
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Re: Is this normal?

Post by jazzmynn » Sun Jun 21, 2009 11:27 am

I have a full face mask and I think it is pretty air tight.

Anyone else without a data capable machine?

Also, whats a good one to ask for?

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Wulfman
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Re: Is this normal?

Post by Wulfman » Sun Jun 21, 2009 11:51 am

jazzmynn wrote:I have a full face mask and I think it is pretty air tight.

Anyone else without a data capable machine?

Also, whats a good one to ask for?
Except, your profile shows this: Mask: Zest Nasal CPAP Mask with Headgear


Go to this site and start looking at machines and their specifications:

https://www.cpap.com/

Respironics has the M Series Pro and the M Series Auto.

ResMed has the Elite and Elite II and the S8 Autoset II models.

DeVilbiss has the IntelliPAP

Covidien has the Sandman Auto


Den
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
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GumbyCT
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Re: Is this normal?

Post by GumbyCT » Sun Jun 21, 2009 12:17 pm

Wulfman wrote:
jazzmynn wrote:I have a full face mask and I think it is pretty air tight.
Anyone else without a data capable machine?
Also, whats a good one to ask for?
Except, your profile shows this: Mask: Zest Nasal CPAP Mask with Headgear
Which is why I always ask for people to put in the text what equipment they are using - to be sure we are talking about the same thing. Look - we are sleep deprived trying to help sleep deprived.

Often we change equipment and forget to change in our profile and I know it's hard to believe we could even list the wrong equipment but "sleep happens".

So if you see me asking what equipment you are using, even tho it's listed in your profile - well, that IS why.

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Wulfman
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Re: Is this normal?

Post by Wulfman » Sun Jun 21, 2009 12:27 pm

GumbyCT wrote:
Wulfman wrote:
jazzmynn wrote:I have a full face mask and I think it is pretty air tight.
Anyone else without a data capable machine?
Also, whats a good one to ask for?
Except, your profile shows this: Mask: Zest Nasal CPAP Mask with Headgear
Which is why I always ask for people to put in the text what equipment they are using - to be sure we are talking about the same thing. Look - we are sleep deprived trying to help sleep deprived.

Often we change equipment and forget to change in our profile and I know it's hard to believe we could even list the wrong equipment but "sleep happens".

So if you see me asking what equipment you are using, even tho it's listed in your profile - well, that IS why.
Except, I've seen it "wrong" both ways.......pictures AND text. To my way of thinking, the "pictures" should enable that user/member/poster a way to make sure they have the right equipment listed......visual verification. Whereas, the text may not mean anything to them if they aren't familiar with older models that are still in the equipment lists.

How many times have you seen something like a "REMstar Pro 2" listed with a "M Series humidifier".....in the "text" or "pictures" format?

It always pays to have the person re-confirm their equipment.


Den
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

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GumbyCT
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Re: Is this normal?

Post by GumbyCT » Sun Jun 21, 2009 1:02 pm

No NO I mean written in the post - along with other info - even IF it is listed in the profile. IN THE POST again. Yea just to confirm ie. be clear, so we are all talking about the same thing. IN THE POST.

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Humidifier: HC150 Heated Humidifier With Hose, 2 Chambers and Stand
Additional Comments: New users can't remember they can't remember YET!
BeganCPAP31Jan2007;AHI<0.5
I have no doubt, how I sleep affects every waking moment.
I am making progress-NOW I remember that I can't remember
;)
If this isn’t rocket science why are there so many spaceshots?
Be your own healthcare advocate!