Hi there....newbie with questions--of course

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Mist
Posts: 9
Joined: Thu May 14, 2009 6:23 pm
Location: Willamette Valley, Oregon
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Hi there....newbie with questions--of course

Post by Mist » Thu May 14, 2009 6:35 pm

Hi.

My name is Melissa and I have OSA.

I was very recently diagnosed and began therapy right away.

I want to be compliant. I want to feel better.

But.....

I keep taking off my mask in the middle of the night and not realizing it till morning! I use the Mirage Swift II - medium pillows.

Help!!!!

My RT from the DME is coming out tomorrow to demo a chin strap (I have issues with my mouth dropping open and then feeling like I am suffocating). Will the chin strap make it more difficult for me to remove the mask?

Also does the Sandman Auto turn itself off. If not I am turning the machine off too.
~Melissa
Proud hosehead (I think LOL) since 4/09

Made my own fleece cozy for a hose for $4.

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Kiralynx
Posts: 2415
Joined: Wed Oct 08, 2008 5:42 am

Re: Hi there....newbie with questions--of course

Post by Kiralynx » Thu May 14, 2009 7:19 pm

Welcome to the board, Melissa! You'll find that you're not the only one who pulls her mask off in the middle of the night -- lots of people here have fought that issue!

If you aren't already a member of the Forum, you might want to register. (It's free.)

Filling out your profile help us help you. It also saves you from having to tell us what machine you have every time, and cuts back on us having to ask you before we can answer your questions. Once registered,

1. Look for the User Control Panel, just below the Search box, which is, in turn, just below the CPAPTALK.Com logo.

2. Click on the tab just below the black User Control which says, "Profile."

3. Look to the left, and click on the bar which says, "Edit Equipment."

4. Fill in your equipment, and select "Text" as the display method.

This will help us help you... I don't know anything about the Sandman Auto, but I'm sure someone will be along who does, and can offer suggestions.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5

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Julie
Posts: 20056
Joined: Tue Feb 28, 2006 12:58 pm

Re: Hi there....newbie with questions--of course

Post by Julie » Thu May 14, 2009 9:01 pm

Hi, there are definitely more effective options to chin straps so try doing a search on them here and look into full face masks and taping. And do fill in your profile as suggested so we can have a better idea all round about what you have in order to help you.

Mist
Posts: 9
Joined: Thu May 14, 2009 6:23 pm
Location: Willamette Valley, Oregon
Contact:

Re: Hi there....newbie with questions--of course

Post by Mist » Thu May 14, 2009 11:05 pm

I have filled out my profile earlier. Maybe it takes a while to show up.

A full face mask makes me clausterphobic. They tried it on my for my sleep study. Drove me crazy.

Someone (on another forum) mentioned that the hybrid might be a good mask for me. I have an appointment with the RT tomorrow and plan to talk to her about it. I would be willing to try a FF mask in my home and see how it goes. Maybe it would be different.

It just freaks me out to wake up and my mask not be on. I have no recollection of taking it off. My hubby sometimes notices it. I have asked him to wake me so that I can put it back on.

Thanks for the kind welcomes.
~Melissa
Proud hosehead (I think LOL) since 4/09

Made my own fleece cozy for a hose for $4.

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rested gal
Posts: 12881
Joined: Thu Sep 09, 2004 10:14 pm
Location: Tennessee

Re: Hi there....newbie with questions--of course

Post by rested gal » Thu May 14, 2009 11:38 pm

Welcome to the board, Melissa.

Taking the mask off in one's sleep without realizing it, or remembering having done it, happens to quite a few people.

You're doing right to ask your husband to wake you any time he notices you're asleep with the mask off:
Mist wrote:My hubby sometimes notices it. I have asked him to wake me so that I can put it back on.


As you get more and more accustomed to sleeping in this crazy new way, you'll probably start leaving the mask on more. Right now it's probably a rather normal "half-awake" but "not-awake-enough-to-remember-it" response to SOMETHING'S ON MY FACE! It's normal to try to brush off something off one's face.

You might try a little chant over and over to yourself as you're drifting off to sleep each night:

"This mask is saving my life."
"I'm going to keep it on allllllllll night."

Mist wrote:I have issues with my mouth dropping open and then feeling like I am suffocating
Sounds like you're mouthbreathing in your sleep when your jaw relaxes. That certainly could cause a person to feel a need to get the mask off. Mouthbreathing is a problem for many people. A Full Face mask would allow you to get therapy pressure either way, through nose or mouth.

If a chin strap doesn't solve the mouthbreathing problem, or if you try FF masks and don't find them as comfortable as your present mask, here's a link to many ways people have dealt with preventing mouthbreathing:
LINKS to: Mouth leaks - Air Leaks - Tape - DIY Guard
viewtopic.php?t=8011
ResMed S9 VPAP Auto (ASV)
Humidifier: Integrated + Climate Control hose
Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
ALL LINKS by rested gal:
viewtopic.php?t=17435

Mist
Posts: 9
Joined: Thu May 14, 2009 6:23 pm
Location: Willamette Valley, Oregon
Contact:

Re: Hi there....newbie with questions--of course

Post by Mist » Fri May 15, 2009 10:02 am

Thank you for the link!

I appreciate the help. I actually do love how I feel when I get a decent amount of time on the machine. I know that this will be worth it.

I got 5.5 hours last night. I am very excited.

I actually had my hose over my headboard and I am wondering if turning at night might have helped with taking off my mask. Maybe it wasn't me at all...I took the hose off the headboard last night and it didn't happen.
~Melissa
Proud hosehead (I think LOL) since 4/09

Made my own fleece cozy for a hose for $4.