HI there everyone. I have been 100% cpap compliant for 6 months now and I don't feel any different. My pressure is set at 10. I'm still falling asleep all over the place and I have to really have trouble when I drive.I'm wondering if I need to increase the pressure but I don't have insurance now so I can't afford to go see the doctor. Just want to know what you all think.
cpap 6 months and no relief
7 posts
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yellowcason
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- Location: Carbondale, KS
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MaskedMan
I would personally do everything humanly possible to get back into the doctor. At least in my area, the doctors will try to work with you if cost of a visit is an issue.
Having been down that road of falling asleep anywhere, anytime. I would cancel my Internet, cancel my cable TV, buy generic groceries, drive less, save aluminum cans etc, etc to afford that visit. And I am not kidding, I would exhaust all avenues before giving up how I feel now that I am being treated.
IMO, its just too important for your health and quality of life to not get back in there. Its been a night and day difference for me.
Having been down that road of falling asleep anywhere, anytime. I would cancel my Internet, cancel my cable TV, buy generic groceries, drive less, save aluminum cans etc, etc to afford that visit. And I am not kidding, I would exhaust all avenues before giving up how I feel now that I am being treated.
IMO, its just too important for your health and quality of life to not get back in there. Its been a night and day difference for me.
Do you have an autoPAP for "fine tuning" your therapy?
Did you ever get checked for sinus problems or Restless Leg Syndrome or anything else that might be interfering with sleep or therapy?
Have you done searches on this and other forums for any tips on the equipment you are using or problems you are having?
its a bummer not having insurance for sure, but you need to be all more self-directed and self-motivating on figuring it out in that case.
Did you ever get checked for sinus problems or Restless Leg Syndrome or anything else that might be interfering with sleep or therapy?
Have you done searches on this and other forums for any tips on the equipment you are using or problems you are having?
its a bummer not having insurance for sure, but you need to be all more self-directed and self-motivating on figuring it out in that case.
Remember:
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.
Wow - I can't wait to be able to say that!MaskedMan wrote:I would personally do everything humanly possible to get back into the doctor. At least in my area, the doctors will try to work with you if cost of a visit is an issue.
Having been down that road of falling asleep anywhere, anytime. I would cancel my Internet, cancel my cable TV, buy generic groceries, drive less, save aluminum cans etc, etc to afford that visit. And I am not kidding, I would exhaust all avenues before giving up how I feel now that I am being treated.
IMO, its just too important for your health and quality of life to not get back in there. Its been a night and day difference for me.
One soft, sweet song's just enough to clear my head...
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Sleepless on LI
- Posts: 3997
- Joined: Mon May 30, 2005 6:46 pm
- Location: Long Island, New York
Period Limb Movement Disorder, where it can fragment your sleep worse than OSA, at least it was the main cause of my disruption when I got studied, is a major cause of what you describe. My doctor said if the CPAP did not take care of it in a month, then I would need to go on medication to help with it. The way my sleep study report read, and I'll quote:
My study showed 4 hypops, no apnea, but 14+ PLMDs per hour. A lot of times, the therapy will fix this. But my doctor said to give it one month and if I was still tired after I had been compliant with the CPAP therapy, that she would then prescribe something to help with it. Mirapex, commonly used to treat Parkinson's, and Clonazepam are two effective drugs that are used to treat PLMD.
If it's not that, I would see if I could find out how to tweak the pressure on my machine a little bit higher and see if that helps. What type of machine do you use? I'm sure someone on this site will know how to do that and share the info with you. After six months, if it's not PLMD or a pressure that is too low, then you really need to find a doctor who will accept you for at least a consult and offer you some advice as to what else could be causing this problem for you.
There are numerous periodic limb movements throughout the study; these appear to be significantly fragmenting her sleep architecture and efficiency.
My study showed 4 hypops, no apnea, but 14+ PLMDs per hour. A lot of times, the therapy will fix this. But my doctor said to give it one month and if I was still tired after I had been compliant with the CPAP therapy, that she would then prescribe something to help with it. Mirapex, commonly used to treat Parkinson's, and Clonazepam are two effective drugs that are used to treat PLMD.
If it's not that, I would see if I could find out how to tweak the pressure on my machine a little bit higher and see if that helps. What type of machine do you use? I'm sure someone on this site will know how to do that and share the info with you. After six months, if it's not PLMD or a pressure that is too low, then you really need to find a doctor who will accept you for at least a consult and offer you some advice as to what else could be causing this problem for you.
L o R i
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rested gal
- Posts: 12881
- Joined: Thu Sep 09, 2004 10:14 pm
- Location: Tennessee
yellocason,
snork1 wrote:
I'd be scouring the auction sites for a relatively inexpensive used autopap. Other message board users can help you with software after you get an autopap.
Even a regular cpap that can give more data than just "compliance" (hours of use) would help you see whether the pressure you currently are using is enough. Again, you'd get help with software, I'm sure.
snork1 wrote:
An autopap and software for it are absolutely essential, imho, for a person who does not have insurance, thus may not be able to consult with a doctor as often (or at all!) as the luckier insured can.Do you have an autoPAP for "fine tuning" your therapy?
I'd be scouring the auction sites for a relatively inexpensive used autopap. Other message board users can help you with software after you get an autopap.
Even a regular cpap that can give more data than just "compliance" (hours of use) would help you see whether the pressure you currently are using is enough. Again, you'd get help with software, I'm sure.
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Guest
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