New here - Newly diagnososed - Brief Introduction

Cyngen · Post by **Cyngen** » Tue Aug 02, 2005 10:03 am

Hi,

Just found this board a week or so ago and have been reading as much as I can.

I was recently diagnosed with sleep apnea. I have my sleep test (or should I say no sleep test) on June 29. Being wired up like I was I did manage to get about 30 minutes of sleep in which the doctor said I had 28 events.

I have a followup consultation to go over the sleep test in detail in a few weeks. However, he did prescripe a cpap for me ahead of that.

I have the mixed feeling I'm darth vader or the victim of one of the face sucking aliens from the movie Aliens with the mask on.

After about a week with the cpap, I found I've had about 60% good nights where I sleep very well and wake up feeling somewhat human again. Other nites, I seem to wake up, take a bio break and then glare at the mask as I roll over to sleep without it... seems I have some getting used to this thing to do yet.

yawn · Post by **yawn** » Tue Aug 02, 2005 11:10 am

Hi Cyngen,
Welcome!!! Keep reading the advice on the Board especially about what masks work and why. There are so many different masks and machines out there...you should be able to find one that works best for you. I've tried about 8 different mask so far and have settled on the Activa. I'm still going to investigate the Swift because it's gotten alot of favorable comments and I like the idea of not having so much "stuff" on my face. In the meantime, the Acitva works well enough for me.
Feel free to ask questions as they arise. You'll almost always get some good advice.
Keep us updated on your progress....Amy

sleepy gal · Post by **sleepy gal** » Tue Aug 02, 2005 11:31 am

Hi Cyngen and welcome.

It will probably take a while to get used to the darn contraption on your face!

Someone on the site mentioned that their doc said "Don't do that!" about taking off the mask during the night (the person was doing it without even knowing it) And it worked!

What mask are you using? And what machine at what setting?

As Yawn mentioned. you may need to try various masks before you find the one that is right for you!

Hang in there and keep trying.

ozij · Post by **ozij** » Tue Aug 02, 2005 11:54 am

Hi Cyngen,
Welcome!
...and try not to sleep without you mask. Outglare it, tell it that if it won't behave itself you'll leave the bedroom and do something else - that's hard in the beginning, but try. Convince yourself that "sleeping without the mask is not an option".

It takes time.

O.

4Katie · Post by **4Katie** » Tue Aug 02, 2005 12:52 pm

I think you're doing very well. It took me much more than a week to get to where you are.

This board will be your new best friend. You'll learn so much, and somebody here will likely have an answer to any question you might come up with.

Welcome!

CharlesJ · Post by **CharlesJ** » Tue Aug 02, 2005 12:56 pm

Pasted bad URL in attempt to insert image.

CharlesJ · Post by **CharlesJ** » Tue Aug 02, 2005 12:58 pm

Cyngen · Post by **Cyngen** » Tue Aug 02, 2005 2:52 pm

Thanks for the welcome and Charles that it is exactly!!!

When I get home tonite from the office, I'll dig up the equipment I have. I know the cpap is able to run on battery as I asked for that for the motorcycle camping trips I'll be taking.

~Cyngen

rested gal · Post by **rested gal** » Tue Aug 02, 2005 3:24 pm

LOL!! CharlesJ!

Wonder how many "nightmares" topics there'll be tomorrow?

GoodKnight · Post by **GoodKnight** » Tue Aug 02, 2005 4:36 pm

Welcome Cyngen,

This board will indeed be your best friend.

Ozij is right on. Refuse to sleep without it. Keep trying. It is ok to sleep for awhile and then take it off, and sleep for a little bit without it, but then keep going back to it. You will eventually use it more and more.

Try to idenify any problems you have and then look here for answers.

FairSpirit · Post by **FairSpirit** » Tue Aug 02, 2005 4:47 pm

Welcome Cyngen!

You've found a fantastic group here, everyone is so helpful. Keep at it and the CPAP will soon be your very best friend!

dsm · Post by **dsm** » Tue Aug 02, 2005 5:27 pm

Welcome Cyngen,

You chose wisely in joining in here. Great team.

The folk here can help make CPAP seem a 'breeze' (weak pun )

Cheers

DSM

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CPAPopedia Keywords Contained In This Post (Click For Definition): CPAP

mcdunde64 · Post by **mcdunde64** » Tue Aug 02, 2005 6:45 pm

Hi my name is mike and i have been on machine for over a year and I have been told it is not a life saving device cause when electric goes out then what do you do but I say it is a life saving device and I have back up power for when electric goes out I also have 115 events in a hour and I thank God I have cpap machine and I have times when I dont feel rested for reasons shuch as I roll over and my arm turns off machine and then I am in trouble cause when I wake up I feel like I have not slept for weeks and I drive a truck which stinks cause instead of having physical every two years I now have to have physical every year and from a day of work I am tired and sometimes fall asleep but I thank God for a loving wife who cares so much she dose what ever she has to to wake me up but if I do fall asleep thats when the machine helps so I will be rested for next day hope what I have said helps you and please keep working at using your machine for it really helps

CharlesJ · Post by **CharlesJ** » Wed Aug 03, 2005 4:44 am

Mike,

Congratulations! I think you just set the record for the world's longest sentence.

Chuck

Cyngen · Post by **Cyngen** » Wed Aug 03, 2005 7:58 pm

OK, someone asked what equipment i have, so here goes:

Remstar Auto w/ C-Flex
Humidifier
Mirage Activa mask

C

Mask

Mask	Humidifier