Newbie...looking for help

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
oneofsevendwarfs
Posts: 16
Joined: Tue Aug 19, 2008 1:26 pm

Newbie...looking for help

Post by oneofsevendwarfs » Tue Aug 19, 2008 2:05 pm

Hi,

It's a been a long road to this point as I'm sure you all can appreciate. I had my first clear-minded day last Wednesday but can't seem to get back there. I wake up a few times throughout the night, as well as in the morning, to find my mask off. I've experienced some moisture in the mask so I'll take steps to prevent that, but is there something I'm missing? I feel like I'm so close.

Any advice would be greatly appreciated.

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Slinky
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Location: Mid-Michigan

Re: Newbie...looking for help

Post by Slinky » Tue Aug 19, 2008 2:12 pm

Moisture in the mask is what we refer to as "rain out". There are several remedies to try:

1] Place your xPAP and humidifier LOWER than your mattress level
2]Turn the humidifier down a notch or two
3] Take your hose under the covers w/you
4] Run your hose above your head
5] Make or buy a hose cover (try some of hubby's old hunting socks w/the toes cut out and tape to hold them on)
6] Buy an Aussie heated hose

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: PR SystemOne BPAP Auto w/Bi-Flex & Humidifier - EncorePro 2.2 Software - Contec CMS-50D+ Oximeter - Respironics EverFlo Q Concentrator
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Babette
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Re: Newbie...looking for help

Post by Babette » Tue Aug 19, 2008 2:16 pm

It takes everyone some time to adjust to therapy. I was like you - I'd have one clear day, then back to the fog. Took me 6 weeks just to get to where I could wear my mask 100%, all night, every night. Then a few more months before I started to see consistent improvement.

And it's still a work in progress. Be patient with yourself.
Babs

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Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap.
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oneofsevendwarfs
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Joined: Tue Aug 19, 2008 1:26 pm

Re: Newbie...looking for help

Post by oneofsevendwarfs » Tue Aug 19, 2008 2:17 pm

other than Rain Out...what are some reasons that you'd remove your mask and not even realize it? I feel like I fall asleep somewhat comfortably.

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Slinky
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Location: Mid-Michigan

Re: Newbie...looking for help

Post by Slinky » Tue Aug 19, 2008 2:22 pm

Its only happened to me 4 times is 22 months - but - the first two times and the fourth time I got up during the night for a bathroom trip, went back to bed and laid there promising myself I would put the mask back on "in a minute" - and woke up the next morning w/o it on! That third time I assume I did the same thing but darned if I remember it!

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: PR SystemOne BPAP Auto w/Bi-Flex & Humidifier - EncorePro 2.2 Software - Contec CMS-50D+ Oximeter - Respironics EverFlo Q Concentrator
Women are Angels. And when someone breaks our wings, we simply continue to fly.....on a broomstick. We are flexible like that.
My computer says I need to upgrade my brain to be compatible with its new software.

oneofsevendwarfs
Posts: 16
Joined: Tue Aug 19, 2008 1:26 pm

Re: Newbie...looking for help

Post by oneofsevendwarfs » Tue Aug 19, 2008 2:49 pm

know of any tricks to keep it on?

ozij
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Joined: Fri Mar 18, 2005 11:52 pm

Re: Newbie...looking for help

Post by ozij » Tue Aug 19, 2008 3:06 pm

Slinky wrote: 5] Make or buy a hose cover (try some of hubby's old hunting socks w/the toes cut out and tape to hold them on)

Guess one of the seven dwarves must have updated his profile after Slinky's reply.... or maybe Slinky didn't have her glasses on....



O.

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Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks.
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Slinky
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Re: Newbie...looking for help

Post by Slinky » Tue Aug 19, 2008 3:09 pm

Its the steroid in the Advair, Ozij. Its got my pressure up.

That's my story and I'm sticking to it.

At least until a better one comes along.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: PR SystemOne BPAP Auto w/Bi-Flex & Humidifier - EncorePro 2.2 Software - Contec CMS-50D+ Oximeter - Respironics EverFlo Q Concentrator
Women are Angels. And when someone breaks our wings, we simply continue to fly.....on a broomstick. We are flexible like that.
My computer says I need to upgrade my brain to be compatible with its new software.

alnhwrd
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Location: Hood River, Oregon

Re: Newbie...looking for help

Post by alnhwrd » Tue Aug 19, 2008 3:25 pm

Lots of people have trouble keeping the mask on. There is something about trying to sleep with a hunk of plastic and rubber strapped to your face that causes the subconscience mind to occasionally revolt, rip it off and throw it across the room. For most, this seems to subside in time as they adapt to the treatment and become more comfortable with it. Some machines come with High Leak alarms that will sound off if you take you mask off. Some people have tried attaching the strap of their mask to their face with a band aid so if they try to pull the mask off the band aid hurts just enough to wake them up. Time and patience will also solve the problem, if nothing else does. Good Luck!

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echo
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Re: Newbie...looking for help

Post by echo » Fri Aug 22, 2008 2:20 pm

some people have reported that using pur-sleep helps them stay asleep and keep the mask on. Maybe something having to do with the comforting smells ??
http://www.pur-sleep.com/
It was created by Sleepguy, one of our great forum members here!

(i'm the pur-sleep pimp without even having tried it )
PR System One APAP, 10cm
Activa nasal mask + mouth taping w/ 3M micropore tape + Pap-cap + PADACHEEK + Pur-sleep
Hosehead since 31 July 2007, yippie!