Airway hurts

NeedinZs · Post by **NeedinZs** » Mon Aug 04, 2008 6:50 am

Hi Everybody,

I've been on CPAP a little over a year now and adapted pretty well.

For the last week, I've been experiencing my upper airway feeling very uncomfortable, day and night. It started out feeling like I had small feathers floating in my airway, as best as I can describe it.

I have had asthma before, but this feels a little different. Just kind of hurts to breathe. I also have had some mild flu feeling like symptoms that come and go, and slept MOST of the day yesterday.

I'm not sure if it's just a bug, or could be something with my CPAP? My breathing feels awful when I first wake up.

Anybody else experienced anything like this?

ozij · Post by **ozij** » Mon Aug 04, 2008 7:11 am

Time for the doctor.

The only times I experiecne something similar was pre-cpap, when I had bronchitis, or tracheaitis (that's between your throat and your bronchii) and last autumn, when the discomfort in my throat turned out to be tonsilitis.

A week is along time to feel that way - I think this calls for a physician.

O.

sleepydoll · Post by **sleepydoll** » Mon Aug 04, 2008 7:12 am

Gee, sure looks like some sort of lung/respiratory infection....maybe you got a "BUG" in your xpap....then they have direct acces into the lungs...I would definitely consult if I were you!

Also, if you slept most of the day,it seems that your system is trying to keep all its energy to help out your immune system!

definitely, I would consult...better safe than sorry....
D.

NeedinZs · Post by **NeedinZs** » Mon Aug 04, 2008 7:24 am

Thanks Sleepydoll and Ozij, for the replies.

I did make an appt. for tomorrow morning.

I do clean my mask and humidifier regularly, but have been a little lax on cleaning my Aussie heated hose, just because of the hassle. It never "seems" wet inside. I let it blow out daily. But I don't like thinking about what could be growing and hiding in there. I will break down and wash it today.

DreamDiver · Post by **DreamDiver** » Mon Aug 04, 2008 7:30 am

I'm allergic to feathers. When I use a feather pillow or blanket, my lungs hurt, sometimes on one side, sometimes all over. I have to call ahead to hotels to make sure I get a feather-free room. I suspect that may be less problematic now that everything I breathe goes through a fine filter, but I haven't put it to the test.

Do you have a feather pillow or blanket?

Guest · Post by **Guest** » Mon Aug 04, 2008 7:50 am

Hey DreamDiver,

You may be on to something! I just spent a few nights in 2 separate hotels. And I am highly allergic to down. Even though I took my own micro-bead pillow, there were other pillows on the bed. (I didn't even think about that!)
There were so many other issues with the rooms. And the ventilation system/AC systems were awful. The room was so wet, I felt like I was sleeping in a leaky water bed!

I HATE hotels. There always seems to be something in every room that always sets me off.

Someone told me there are now such things as "GREEN ROOMS" in some hotels, for people with breathing problems and allergies. I will do some serious research to find out which chains are offering them.

I plan to stay in one called Spring Hill Suites in the next few days. I'll post the outcome.

THanks so much for the tip about the pillows! I wouldn't even have remembered about THAT allergy. I will check that out, from now on!

sleepydoll · Post by **sleepydoll** » Mon Aug 04, 2008 7:51 am

[quote="I did make an appt. for tomorrow morning."]
_________________

PLEASE!

CONSULT EARLIER IF IT SEEMS TO GET WORSE,
OR IF YOU START A FEVER!

No reason to mess around with our lungs, even if they do come in pairs!

D.

NeedinZs · Post by **NeedinZs** » Fri Aug 08, 2008 6:08 pm

Just an update on this, in case anyone else experiences this.

My M.D. sent me to my ENT, who diagnosed me with Laryngesophagial Reflux.
I'm probably not spelling that right.

I've had GERD (reflux) in the past, but apparently when the reflux acid reaches your voice box, it can start bronchitis and asthma.

I am sure he is right, and I don't know why I didn't think about this being the problem, as the day before it started I ate something very greasy while traveling, and got so nauseated and heartburn worse than ever before.

I know there's been lots of discussions on here about GERD, but don't know how many people experience airway difficulties from it......

Has anybody had any luck with getting their insurance (BC/BS, in my case) to pay for the newer Acid Reflux pills, like Prevacid? They turned it down last year for me, even after my Dr. appealed it.

I can't take Prilosec. Guess I'm stuck with Zantac, until I can figure a way to score some Prevacid.

Thanks for all the replies. Hope this might help someone else.

sleepycarol · Post by **sleepycarol** » Fri Aug 08, 2008 6:18 pm

I have been taking two Prilosec for the last 2 and 1/2 years to help with reflux, GERD, ulcers, etc. It has stopped working and so last spring I had an upper scope (endoscopy) and things have gotten worse instead of better. Doctor prescribed Nexium and gave me some samples. I felt sooooo much better. Got the script and insurance refused. We appealed it and still lost. I was told (by the insurance company) that Prilosec was "the same thing and I should get the same results). Doctor became frustrated and gave me three months of samples and it did wonders. Of course I am now back to square one and insurance still won't pay.

NeedinZs · Post by **NeedinZs** » Fri Aug 08, 2008 6:36 pm

Thanks for mentioning that Carol, about asking for some starter samples.
My ENT was out, and told me to ask my M.D. for some, but I forgot about that.

He was quite irritated too, that the Ins. co.'s won't pay for the better drugs, but yet they don't mind paying for the patient to run around for years to different dr.'s trying to solve their problem.

Best of luck to YOU!

sleepydoll · Post by **sleepydoll** » Fri Aug 08, 2008 7:58 pm

[quote="My M.D. sent me to my ENT, who diagnosed me with Laryngesophagial Reflux.
Thanks for all the replies. Hope this might help someone else.[/quote]
_____________________________________________________________

Laryngopharyngeal reflux ( LPR) is the movement of the acidic contents of the stomach up the oesophagus to the larynx where it causes such symptoms as hoarseness, postnasal drip, sore throat, difficulty swallowing and chronic coughing and throat clearing.

(the following comes from JAMA: the journal of the american association)
http://jama.ama-assn.org/cgi/content/full/294/12/1534

Treatment
Patient Education and Behavioral Change. Patients with LPR should be educated as to the nature of the problem and counseled on helpful behavioral and dietary changes.
Important behavioral changes include weight loss, smoking cessation, and alcohol avoidance. Ideal dietary changes would restrict chocolate, fats, citrus fruits, carbonated beverages, spicy tomato-based products, red wines, caffeine, and late-night meals. Such behavioral changes appear to be an independently significant variable in determining response to medical therapy.
Education should include the optimal schedule for taking PPI medications (omeprazole, esomeprazole, rabeprazole, lansoprazole, and pantoprazole), which work best when taken 30 to 60 minutes before meals.

Medical Management seems to be very limited for LPR...
Hope this helps !
D.

sleepydoll · Post by **sleepydoll** » Fri Aug 08, 2008 8:23 pm

PPI medications (omeprazole, esomeprazole, rabeprazole, lansoprazole, and pantoprazole),

I forgot to add the brand names of the meds...here they are

omeprazole = used in the treatment of dyspepsia, peptic ulcer disease (PUD), gastroesophageal reflux disease (GORD/GERD) under the brand names Losec, Prelosec

esomeprazole = used in the treatment of dyspepsia, peptic ulcer disease (PUD), gastroesophageal reflux disease (GORD/GERD). Brand names; Sompraz, Zoleri, Nexium, Lucen, Esopral

rabeprazole = antiulcer drug under the brand names Aciphex and Pariet.

pantoprazole = used for short-term treatment of erosion and ulceration of the esophagus caused by gastroesophageal reflux disease. Initial treatment is generally of eight weeks' duration, after which another eight week course of treatment may be considered if necessary. It can be used as a maintenance therapy for long term use after initial response is obtained.
brand names ; Protium; Protonix; Pantozol; Pantor; Pantoloc; Astropan; Controloc;

pianomagoo · Post by **pianomagoo** » Sat Aug 09, 2008 8:27 pm

Needinz's

I have tried at least 3-4 PPI and had side effects. My doctor than gave me a box of Nexium sample but I broke out in a rash. He sent me to a GI specialist who prescribed Prevacid. It wasn't covered either but with doctors signature I was allowed to have a limited amount or a limited time.

Ask your doctor and your pharmacist regarding getting this limited time or amount. It only qualifies if you cannot tolerate any of the others. I haave been on it for over eight months and I still have 3 more refills left.

I live in Ontario.

Anne

Mask

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