Hi Everyone,
My name is Judy and I live in Central West Texas. I've been using my CPAP since August. I started out using the nasal pillows, but kept taking them off during the night. Now I'm using the nasal mask, and that seems to be better for me, I haven't taken it off durning sleep not even once. I haven't noticed any improvement since starting all of this, infact I feel worse than before. I'm so tired all of the time, that all's I want to do is sleep, which is something I can't do because I take care of my two Grandkids every day. I do manage to get them to take a nap during the afternoon, but even that does not help. Going to bed early is out of the question too. My daugther {the grandkid's mother} works afternoons at the hospital, so she doesn't pick the kids up until 10:30pm. every night. I feel so exhausted all of the time. I was told that I would start feeling better and have more enegry, I haven't seen any of that yet! Any way, I'm hoping to learn a lot here, to help me deal with all of this. Thanks for letting me share.
Hello, another newbie here.
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nutzybirdlady
- Posts: 1
- Joined: Mon Feb 11, 2008 9:41 am
- Location: Abilene, Texas
Hello, another newbie here.
JudyR.
{aka}-nutzybirdlady
{aka}-nutzybirdlady
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DreamStalker
- Posts: 7509
- Joined: Mon Aug 07, 2006 9:58 am
- Location: Nowhere & Everywhere At Once
Welcome birdlady!
I don't hear many use the term Central West Texas but I am very familiar with that area
First thing you need to do is learn how to read your machine's efficacy data. Since you have a nasal interface mask, you may very well be loosing your treatment out your mouth (mouth leaks). You may think you are not leaking but when you are sound asleep you really don't know. The only way to tell is by looking at your data to see what the leak rate is and compare it to the intended or designed CO2 exhaust leak rate for your particular mask at your particular pressure.
There is a lot to learn about htis treatment and most folks cannot depend on their health professionals to teach them.
You have found your way to the best place for learning about your condition and it's treatment. Read read read ... the more the sooner, the better. You may want to start by clicking on the yellow light bulb icon at the top of the forum page. Ask lots of questions.
Not give up and may you have a speedy adventure to optimal treatment!
I don't hear many use the term Central West Texas but I am very familiar with that area
First thing you need to do is learn how to read your machine's efficacy data. Since you have a nasal interface mask, you may very well be loosing your treatment out your mouth (mouth leaks). You may think you are not leaking but when you are sound asleep you really don't know. The only way to tell is by looking at your data to see what the leak rate is and compare it to the intended or designed CO2 exhaust leak rate for your particular mask at your particular pressure.
There is a lot to learn about htis treatment and most folks cannot depend on their health professionals to teach them.
You have found your way to the best place for learning about your condition and it's treatment. Read read read ... the more the sooner, the better. You may want to start by clicking on the yellow light bulb icon at the top of the forum page. Ask lots of questions.
Not give up and may you have a speedy adventure to optimal treatment!
President-pretender, J. Biden, said "the DNC has built the largest voter fraud organization in US history". Too bad they didn’t build the smartest voter fraud organization and got caught.
newbie
Hi Judy,
I too started in Nov. As was previously mentioned we have to learn about all of these different things. The life saver for me was the chat room. At first I found it a little scary because everyone seemed to know each other well and I felt like an outsider. But I soon realized that by asking a few questions everyone is so helpful. There is no such thing as a stupid question. I have learned a lot about my treatment and machine and have a lot more to learn.
Don't fret or give up hope, there's a reason your treatment doesn't seem to be working and you will find it with the help of a lot of good people here.
Diane
I too started in Nov. As was previously mentioned we have to learn about all of these different things. The life saver for me was the chat room. At first I found it a little scary because everyone seemed to know each other well and I felt like an outsider. But I soon realized that by asking a few questions everyone is so helpful. There is no such thing as a stupid question. I have learned a lot about my treatment and machine and have a lot more to learn.
Don't fret or give up hope, there's a reason your treatment doesn't seem to be working and you will find it with the help of a lot of good people here.
Diane
Hi, it seems that a lot of people here went through various versions of what's happened to you, but then tried either a 'full-face' mask (it's just a longer version of the nasal and covers your mouth as well), or mouth taping (with special easy-peel tape from the pharmacy) or Poli-dent strips because they (we, actually) turned out to be losing all their effective treatment air through their mouths when asleep, even though half of us never thought we breathed like that when asleep. You might want to investigate the possibility and try one of the above, and then see how you feel. I wouldn't trade my UltraMirage II now for a million bucks!
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