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Mitzi · Post by **Mitzi** » Sat Jan 26, 2008 11:22 pm

Hi I am from Montana, and I have had sleep apnea for about 5 years now..my pressure is 19 and the Dr. said it still is not doing what it should be...I was wondering what others pressure is? My sleep dr. said he doesn't know what else to do except surg. if it doesn't work..I have not gone back to him for another study yet..I still am not sleeping very good..
Just wanted to talk to someone that uses one...
thank you

deglorious · Post by **deglorious** » Sat Jan 26, 2008 11:30 pm

Hi Mitzi, be sure to fill out your profile so that the forum gurus can help you with your problems. You need to list the machine and mask you are using and if you have any software.

Good luck

Deglorious

Mitzi · Post by **Mitzi** » Sat Jan 26, 2008 11:41 pm

thank you for letting me know this...tomorrow I will get the information and put it on here..right now I think I will go to bed and try to sleep..

Moby · Post by **Moby** » Sun Jan 27, 2008 4:06 am

Looking forward to your next post, Mitzi!

regards

Di

Wulfman · Post by **Wulfman** » Sun Jan 27, 2008 9:39 am

Mitzi wrote:Hi I am from Montana, and I have had sleep apnea for about 5 years now..my pressure is 19 and the Dr. said it still is not doing what it should be...I was wondering what others pressure is? My sleep dr. said he doesn't know what else to do except surg. if it doesn't work..I have not gone back to him for another study yet..I still am not sleeping very good..
Just wanted to talk to someone that uses one...
thank you

Hi Mitzi.

Welcome to the forum.
There are quite a few folks on this forum from this part of the country.

There are some surgeries you do NOT want to have......UPPP comes to mind......it'll make the problems worse instead of better.

One of the keys to making this therapy successful is to have a machine that records nightly statistics and the software to decipher what's going on at night. Far too many DME shops hand out the cheapest equipment to maximize their profits and the users end up suffering. Without the information, you don't know if you're leaking air out your mouth or your pressure is wrong.
If your pressure is 19 and you're leaking air out your mouth, that would be the reason your therapy isn't working.
Do you use a nasal-type mask?
Do you wake up with a dry mouth?
Let us know what equipment you have and a little more about your past therapy experiences.

Best wishes,

Den

Wulfman · Post by **Wulfman** » Sun Jan 27, 2008 9:49 am

Guest-Mitzi wrote:I use the ff mask and I can breath through my nose but at night I find myself breathing through my mouth and I get dry mouth plus I find I wake up because I am biting my tonuge..I have bit it so much that I had to go into the Dr. and they put 10 stitches on one side and 5 on the other..now I am having problems with where they stitched it because it has scar tissue now...what kind of tape do you all use that use it? Mitzi

I presume this was your post in another thread?......OUCH!

We need to figure out how to help you with this one, too.

Again, when you put your equipment in your profile, please let us know if the machine also has exhale relief like C-Flex or EPR.

Hang in there.

Den

Mitzi · Post by **Mitzi** » Sun Jan 27, 2008 11:24 am

I am having problems getting the information on so it will show the machine etc that I am on...can someone help me please? thank you. Mitzi

Mitzi · Post by **Mitzi** » Sun Jan 27, 2008 11:32 am

Guess what I finally got it working...Now I will go read the posts...Mitzi

sleepycarol · Post by **sleepycarol** » Sun Jan 27, 2008 12:41 pm

How long have you had the Plus machine?

Unfortunately it doesn't provide you with any data. With a pressure as high as yours I would want a better machine that would provide the doctor with more details. If you haven't had your plus machine long let us know and we can offer suggestions on how you can possibly upgrade.

rwalther · Post by **rwalther** » Sun Jan 27, 2008 12:57 pm

I agree with my buddy SleepyCarol ... it really is ALL about seeing the data and adjusting to what you see.

Rusty

ozij · Post by **ozij** » Sun Jan 27, 2008 2:54 pm

With a pressure as high as that, you really should be re-titrated on a bi-level machine. Bi-level machines can give you higher pressure for inhale (up to 25 if necessary) and lower level on exhale - where it is possible you don't need it so high. That will make the treatemnet bearable.

And nowadays, bi-level machines have full data capability.

A bi-level titrtation and a bi-level trial are something reversible - surgery is not.

If you're sure your machine is a Remstar Plus, then I think you may have to consider looking for a doctor who is more up to date about possible solutions for people with your pressure needs.

O.

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CPAPopedia Keywords Contained In This Post (Click For Definition): Bi-Level Machine

Mitzi · Post by **Mitzi** » Sun Jan 27, 2008 10:38 pm

they just got me a new one and I have had it less then a year...or almost a year..somewhere in there.. the Dr. I am going to just came back from going to school for sleep apnea...but I do wonder at times because he said he has never had anyone that had to have this hi of pressure..he
added oxygen onto my cpap now...there are only 2 Dr. in that take care of sleep apnea..we already travel 86 miles to get to the Dr. and that is the closest one to us...we live in a rural area..Mitzi

Mitzi · Post by **Mitzi** » Sun Jan 27, 2008 10:44 pm

I forgot to say to that I tried the tape last night and it did keep my mouth shut but boy did I ever bite my tongue bad...My neurapathy Dr. said it was because of my pain being so high...I clench my mouth tight..I am on oxycontin for the pain but it really doesn't help much...thank you all for trying to help me out...Mitzi

cflame1 · Post by **cflame1** » Mon Jan 28, 2008 6:15 am

Mitzi,
Try a bite guard (you can usually get them at most pharmacies)... you're going to make the pain worse, clenching them that hard.

Mitzi · Post by **Mitzi** » Mon Jan 28, 2008 3:30 pm

thank you I have tried a mouth gaurd that you can buy at the store and I can't get it tight enough as my tongue pushes it out but my dentist just made impressions of my teeth for a mouth gaurd...Mitzi

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