x-Ray of Cause of obstruction

Guest · Post by **Guest** » Wed Nov 21, 2007 9:52 pm

Hi James,

I have to search thru the libray on the information of Injection to reduce the neck fats etc in the library. It was in the local research news about 3-4 months ago. I need to go to the library search thru the stacks of newspapers most likely weekend.

Mckooi

jskinner · Post by **jskinner** » Sun Nov 25, 2007 4:36 pm

Some of you might find the this paper on MMA interesting. It was authored in part by the surgon that I saw last week.

jskinner · Post by **jskinner** » Thu Nov 29, 2007 9:26 pm

Today I managed to get my hands on the CT Scan done on my head/neck back in August. I've been having fun exploring my head in 3D this evening I basically wanted to see if that CT scan showed a similar obstruction as last weeks xray did. It does look similar.

It also gave me a chance to look at my slightly deviated septum that I have been told about but never saw before.

socknitster · Post by **socknitster** » Fri Nov 30, 2007 2:15 pm

James,

I am glad to hear you are still working hard at finding answers to your medical problems.

So the problem with your nose is not resolved then? The anti-fungals didn't work?

I can't see the difference between your xray and the one from Stanford. How are they different. It would seem to me that MMA/GA would be your best bet.

I was just looking at the aspire study again myself this morning. I haven't been able to tolerate my TAP appliance. It is just too big for my small mouth. I feel claustrophobic with it in and it is hard to get out of the mouth. Cpap and tape just seems easier and less stressful. And I never even got a chance for the thing to be turned.

You were using a dental device, weren't you? It would be VERY interesting to see an xray of you with THAT in your mouth to see if your airway was more opened. It might give the doc a better idea about whether the MMA surgery would work for you. Weren't you having success with that dental device? I know it wasn't the permanent solution. But it did help some, no?

Jen

Guest · Post by **Guest** » Wed Dec 12, 2007 8:14 am

Hi James,

Sorry to take so long to reply the information as all the research doctors were very busy as usual. On the information that you requested. I managed to talk to the research doctor in sleep apnea and respiratory lab and mentioned that there were two major drugs in the trail and testing period. First the pill-drug that taken for the sleep apnea was not working during the trail period. Second the injection of drug to the neck to reduce the fats are still in the research lab and no reports of any kind is vailable in the public knowledge at the moment. I shall keep you in the the loop in the event of any development. Hope this would help all those that have sleep apnea in the world.

BTW, What is the brand of teh oximeter and where to get one at what cost?

Best Regards,
Mckooi

split_city · Post by **split_city** » Wed Dec 12, 2007 8:19 am

Anonymous wrote:Hi James,
Second the injection of drug to the neck to reduce the fats are still in the research lab and no reports of any kind is vailable in the public knowledge at the moment. I shall keep you in the the loop in the event of any development. Hope this would help all those that have sleep apnea in the world.

BTW, What is the brand of teh oximeter and where to get one at what cost?

Best Regards,
Mckooi

Where abouts is the drug injected?

Will the drug reduce fat in all cells surrounding the airway or target specific regions?

Is the effect long lasting? I see this as only a short term treatment. The fat will build up again, particularly if the patient is overweight.

Nasty · Post by **Nasty** » Wed Dec 12, 2007 11:09 pm

James,

From a really foggy person, In answer to your question regarding possible options.

Has anyone ever suggested a precautionary temporary tracheostomy?

This might give you some [possibly great] relief until something else works.

If I understand it correctly, there is a risk of permanent loss of voice.

I do not know what the risk is statistically.

I have included my numbers because people have asked me in the past to post them.

Good luck in your quest.

jskinner · Post by **jskinner** » Wed Dec 12, 2007 11:24 pm

Nasty wrote: Has anyone ever suggested a precautionary temporary tracheostomy?
This might give you some [possibly great] relief until something else works.

Yes my current ENT suggested the possibility on my first visit with him in Aug. I talked to him about it again this week as I wonder if its not something I should consider. Howerver in the past 2 weeks I have been able to get back on CPAP for the first time since April 2007. I'm able to do this using my dental device plus the breathing tube apparatus, plus a full face mask. My nose just doesn't work well enough any more to go back to a nasal mask. The current arrangment is not fun but at least it sort of works.

With being back on CPAP I have got my AHI back down to about 11 so the ENT won't consider a trech now. What ever has happened to me during the last year has made my breathing difficult at times even when awake now. If I sit the wrong way or lye relaxed the airway gets to narrow and I struggle. I find this strange since I didn't have this problem a year ago when I got diagnosed. I sometimes wonder if the small stroke I had has caused my throat to be weaker on one side?

Anyway its good to be back on CPAP. Unfortunately unlike when I first got on CPAP I don't feel instantly better. I think its the Second degree AV block that is leaving me feeling ill most of the time. Still its good to have a clearer mind once again...

Slinky · Post by **Slinky** » Thu Dec 13, 2007 5:41 am

James, I know it is absolutely no consolation but you may well be right about that small stroke affecting your throat muscles. In my mother's case, the stroke was a bit more serious and it did leave her w/a definite swallowing problem. Enough so that she had to go on a liquid, soft food only diet, and even the soft foods had to be "washed down" w/quite a bit of liquid.

Guest · Post by **Guest** » Thu Dec 13, 2007 7:13 pm

Hi James,

There are few things that I practices for the osa problems such as

0) Sleep position on the left with apap at right setting of pressures and good habits practices for better consistant treatment.

1) A mask hanger to reduce the full pressure rest on the face and good clean-up, for mask, shower, a cup of green tea all day and consistency is the key to success.

2) Weight Control - Eat small portions with full-grains-breads with Vegemite/Marmite/Promite/MightyMite that comes with all good for blood control such as Naicin, Thiamin (all the Vitamin B etc). Lots of green vege, fruits and aviod asparagus, no-red meats (beefs, chickens) except fish and seafood and occacsion with lamp that has not fats. Supplemnt with Fish oil x3 peices x 3 times a day.

3) Exercise (swimming, gym-cycling for bad weather, practice breathing technique of Buteyko) to increase HDL and Ratio target below 3.5. For the last 6 months my LDL, HDL, Ratio, Sugar level all back in the middle of teh accpatable range. The Raw Almond is a good colestrol fighter that I consume 1 to 2 hand full each night after dinner.

Hope these personal opinion helps and take good care mate.

Mckooi