How many of you are 100% compliant?

SleepGuy · Post by **SleepGuy** » Mon Jul 23, 2007 11:34 am

I've been doing some research and the general compliance stats are shocking:

Up to 50% of new patients STOP therapy after the first week.

About 25% of the remaining people will have stopped using CPAP altogether by the 2 year anniversary.

In one study that defined compliance as being at least 4 or 5 hours a night, 5 nights a week, only half of the people in the survey hit those numbers.

What's happening to all of these diagnosed people who stop therapy???

DreamStalker · Post by **DreamStalker** » Mon Jul 23, 2007 12:16 pm

SleepGuy wrote:I've been doing some research and the general compliance stats are shocking:

Up to 50% of new patients STOP therapy after the first week.

About 25% of the remaining people will have stopped using CPAP altogether by the 2 year anniversary.

In one study that defined compliance as being at least 4 or 5 hours a night, 5 nights a week, only half of the people in the survey hit those numbers.

What's happening to all of these diagnosed people who stop therapy???

Uhhh leme guess ... they are sustaining the healthcare industry with heart attack and stroke victims and the morgues with fresh plantings.

SleepGuy · Post by **SleepGuy** » Mon Jul 23, 2007 12:37 pm

DreamStalker wrote:Uhhh leme guess ... they are sustaining the healthcare industry with heart attack and stroke victims and the morgues with fresh plantings.

No doubt. The last firm statistic I found for total OSA diagnoses showed a full 1 million new diagnoses in the USA in 1998. No doubt that the number has gone up significantly since then. Given the compliance rates we're talking about hundreds of thousands of people who just give up . . . and live with (and otherwise die from) the consequences.

tuna · Post by **tuna** » Mon Jul 23, 2007 12:48 pm

I have to say 99%. I do find myself taking the mask off and then a short time later waking up wondering why I took it off!

track · Post by **track** » Mon Jul 23, 2007 1:11 pm

track, what you weren't seeing on the data were the number of events the machine prevented from happening during the naps when you used the machine.

I am so stupid.. ..I never even thought about that. I guess I better start wearing it for naps. Thanks rested gal.

Susanm · Post by **Susanm** » Mon Jul 23, 2007 2:00 pm

DreamStalker wrote:
SleepGuy wrote:I've been doing some research and the general compliance stats are shocking:

Up to 50% of new patients STOP therapy after the first week.

About 25% of the remaining people will have stopped using CPAP altogether by the 2 year anniversary.

In one study that defined compliance as being at least 4 or 5 hours a night, 5 nights a week, only half of the people in the survey hit those numbers.

What's happening to all of these diagnosed people who stop therapy???
Uhhh leme guess ... they are sustaining the healthcare industry with heart attack and stroke victims and the morgues with fresh plantings.

]

I wonder how many of these have no insurance, no medicaid, no medicare, and no way of scraping together $500 for a basic machine and mask? They found my OSA 3 days before my medicaid ended for good, and medicaid only rents the machine for 10 months until it is considered paid for. So after my one month rental, I have to come up with a cpap on my own. And since having enough money after paying bills with an 18 hour a week job makes even buying something from a vending machine a problem, paying for a machine that will cost more than I make in a month seems like a pipe dream. But I'm going to speak to the people at Vocational Rehab tomorrow, since without help I'm not going to even be able to keep up with the 18 hour job, much less get a decent one.

Susan M

JeffH · Post by **JeffH** » Mon Jul 23, 2007 2:06 pm

I personally know three other people that were diagnosed with OSA. One is compliant and he hasn't been on it that long. The other two are busy dying....and probably don't even realize it.

lilsheba · Post by **lilsheba** » Mon Jul 23, 2007 2:59 pm

I've been using my machine for 10 days now and have been using it faithfully so far! The only time I won't be compliant is when I have sinus surgery next month and that's only because I will have my nose packed full of gauze for a night and won't be able to. Like others on there even after only 10 days I"m scared to sleep without it. I feel so much better already, more with it and awake. I'm afraid I wouldn't be able to get out of bed if I didn't use it now.

rested gal · Post by **rested gal** » Mon Jul 23, 2007 4:19 pm

Refugee wrote:What kills me is when I first got my machine my Doc told me I only needed to use it 4 hours a night. At the time that sounded great, now that I'm educated on the matter its scary that he told me that.

Yep, very scary to think that kind of statement was made by a medical professional, now that you know more than he does about OSA.

justsharon · Post by **justsharon** » Mon Jul 23, 2007 4:28 pm

I WILL NOT sleep without my CPAP. Prior to being diagnosed and getting my machine, I would wake up every 20 minutes all night every night, did that for years. I had forgotten what it was like to really sleep good.

I've had my CPAP for a year now. It has made a world of difference in my sleep and in my life. I feel so much better and I sleep like a dead rock. I LOVE IT.

I'm 100% compliant.

Happy sleeping,
Sharon

TXKajun · Post by **TXKajun** » Mon Jul 23, 2007 4:30 pm

Susanm wrote:
*snip* So after my one month rental, I have to come up with a cpap on my own. And since having enough money after paying bills with an 18 hour a week job makes even buying something from a vending machine a problem, paying for a machine that will cost more than I make in a month seems like a pipe dream. *snip*

Susan M

Susan, you might want to take a look at http://www.awakeinamerica.org/DonateRel ... ving.shtml They have a program that may work for you. Good luck!

Kajun

Missy · Post by **Missy** » Mon Jul 23, 2007 4:39 pm

Hubby and I went camping for a couple of nights, and I didn't bring my machine. BAD idea. I woke up constantly to the sound of my snoring, and woke up with the WORST headache both mornings. And it wasn't even from the liquid refreshments the night before

SleepGuy · Post by **SleepGuy** » Mon Jul 23, 2007 4:56 pm

Missy wrote:Hubby and I went camping for a couple of nights, and I didn't bring my machine. BAD idea. I woke up constantly to the sound of my snoring, and woke up with the WORST headache both mornings. And it wasn't even from the liquid refreshments the night before

My CPAPing brother went on a 10 day motorcycle trip without his gear. I think he's crazy. He did admit that he was happy to finally get some sleep his first night back.

sleepinginseattle · Post by **sleepinginseattle** » Tue Jul 31, 2007 11:37 am

SleepGuy wrote:My CPAPing brother went on a 10 day motorcycle trip without his gear. I think he's crazy. He did admit that he was happy to finally get some sleep his first night back.

I built a auxiliary battery system for powering my cpap while motorcycle camping. You might want to have your brother check out my post here.http://www.sport-touring.net/forums/ind ... 273.0.html

I figured it was too dangerous to ride in a sleep deprived state. But I have severe OSA...

luneman · Post by **luneman** » Tue Jul 31, 2007 11:57 am

Every night, every time!

Mask

Additional Comments: Equipment isn't correct, S9 ASV w/H5i

Mask

Additional Comments: Strictly a side sleeper

How many of you are 100% compliant?

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