daytime fatigue

catbirdgirl · Post by **catbirdgirl** » Tue May 15, 2007 6:15 am

when I first got the machine, 2 whole weeks ago, I was bouncing out of bed! now I'm dragging a bit again. Yesterday I had some pretty nasty daytime fatigue again. I am a bit concerned.

Auricula · Post by **Auricula** » Tue May 15, 2007 7:43 am

If you have not had a recent cardiac assessment this might be a good idea. You can be completely asymptomatic and have as much blockage as 98% in your arteries. My very healthy and active brother had 5-way bypass at 57, and a friend who "had never felt better in her life" just experienced a stroke at age 65; extensive testing revealed that she has serious cardiovascular disease involving valves and arteries.

The Wall Street Journal reported that the Society for Vascular Surgery is recommending three screening tests for people over 55: (1) Carotid ultrasound to detect fatty plaque in neck arteries; (2) ankle-brachia test to detect plaque in arteries of the legs and throughout the body; and abdominal ultrasound to check on the body's main artery to see if it has a potentially dangerous bulge.

TerryB · Post by **TerryB** » Tue May 15, 2007 8:20 am

catbirdgirl,
You are describing exactly the timing and symptoms that I and others have had in the early days of xPAP. While I certainly recommend you consult your doctors, there are other things to be checked for. Remember that the early stages of therapy include many complete arousals to deal with things like mask leaks. This wake up is worse for your sleep than the light arousals that are required for your body to open the airway by itself. Try to improve the quality and quantity of sleep by eliminating leaks. Are you sure you are not leaking treatment air out your mouth or just your lips? Do you have a very dry mouth in the morning? Once I started using adhesive for the lips and a chin strap, and got a more uniformly sealing mask, the days of feeling like Crap were over (almost). I think there will always be some real downer days for the breathing challenged.

Good Luck,
TerryB

Wulfman · Post by **Wulfman** » Tue May 15, 2007 8:34 am

I agree with TerryB. I would investigate (or rule out) mouth-leaking by taping or using Polident adhesive strips (or full face mask).

Hang in there.

Den

sleepylady · Post by **sleepylady** » Tue May 15, 2007 8:36 am

Besides checking for major leaks (great suggestion btw), have you been getting enough sleep? How is your sleep hygiene? In other words are you going to bed at roughly the same time every night and getting 8 or 9 hours of sleep? If you have a partner, have they been restless? I have found if my DB is restless, then he can wake me up. Those extra awakenings make for a very tired Melinda the next day.

If you're concerned, do you have the software so you can see what went on during the night? Sometimes it helps to see if for some reason you had more apneas/hypopneas during the night. I highly suggest investing in the software. I find it helps me when I'm trying to figure out why in the world I'm dragging after I thought I had a good night of sleep.

Keep an eye on this and if you find it continues, then definitely contact your doctor.

Melinda

catbirdgirl · Post by **catbirdgirl** » Tue May 15, 2007 8:43 am

hm:

probably not getting ENOUGH sleep. going to bed at 11:30, waking up at 6:20.

Do have software, but am afraid to mess with it.

Am getting off of a long-term sleep med (mirapex) because I am worried about side effects.

Don't know about leaks. My mouth has tasted nasty the last two days, kind of dry, but I'm not drooling like I used to. In fact I notice kind of a vacuum or suction feeling before I go to sleep, in my mouth- so I'd been thinking that opening up nasal passages causes mouth to shut firmly at night.

My partner sleeps well and doesn;t thrash or snore.

sleepylady · Post by **sleepylady** » Tue May 15, 2007 9:42 am

It sounds like the combination of not enough sleep and stopping your sleep medication might be it. Try to get to bed earlier, maybe even starting at 11 p.m. and then trying to work up to the 8 hours of sleep. Your body also needs time to get used to not using the sleep meds, so be patient you'll get there.

Since you do have the software, I encourage you to use it. I know you said your afraid to mess with it, but there are a lot of people who have that software who can help you with any questions/concerns you might have. Read the manual that came with it and see what questions you might have.

Guest · Post by **Guest** » Tue May 15, 2007 9:42 am

TerryB wrote:[...] Are you sure you are not leaking treatment air out your mouth or just your lips? Do you have a very dry mouth in the morning? Once I started using adhesive for the lips and a chin strap... [...]

Or, instead of:

(1) hoping your mouth magically stays closed while you're asleep
(2) taping your mouth shut hostage-style
(3) wrapping elastic bands around your head

...umm, why not instead simply do the very-obvious thing and cover all three of the holes through which breathing occurs? Why on earth would somebody only cover two of the three? If you have a tire with three holes in it, do you tell the repair shop to only patch two of them, and then spend lots of time and effort trying different awkward work-arounds to keep air from escaping through the third hole? No, that would be silly. You simply patch all three!

So consider using a full face mask to cover all three holes (including the biggest one that's least subject to congestion). Problem solved in the plainly obvious manner. No need to take weird, unnecessary measures like those listed above.

Of course, if you have serious claustrophobia issues, it's another story... but then, I'd think taping your mouth shut and putting big rubberbands around your head to force your jaw shut, as well as being totally unable to breathe through the highest-capacity opening, might freak out a clastrophobe a LOT more than a simple full face mask would. But I wouldn't know personally.

skjansen · Post by **skjansen** » Tue May 15, 2007 3:43 pm

catbirdgirl wrote:when I first got the machine, 2 whole weeks ago, I was bouncing out of bed! now I'm dragging a bit again. Yesterday I had some pretty nasty daytime fatigue again. I am a bit concerned.

Are you per chance taking any kind of medication that might be making you tired? My Sleep Center put me on a low dosage of Remeron for sleep and I feel hung over all morning every morning. It has also made me gain 20 pounds so I DO NOT RECOMMEND THIS COURSE OF TREATMENT . Also, I take blood pressure medicine and it drags me down as well.

If you are taking meds you might want to check the side effects.

catbirdgirl · Post by **catbirdgirl** » Tue May 15, 2007 4:50 pm

your humor not appreciated- I HATED the fullface mask that I had at the sleep study. it made me claustrophobic.

Guest · Post by **Guest** » Wed May 16, 2007 11:16 am

catbirdgirl wrote:your humor not appreciated- I HATED the fullface mask that I had at the sleep study. it made me claustrophobic.

Everyone's different, I guess. Me, I'd be a lot more freaked out by having my mouth taped shut and/or my jaw held shut by a big elastic band. Then again, I have near-constant and significant nasal congestion, so if my mouth's closed, pretty soon I'd probably die from lack of air.

Anyone try that Fischer and Paykel oral-only interface? That looks pretty interesting. Does one tape or clip their *nose* shut when using that?

catbirdgirl · Post by **catbirdgirl** » Wed May 16, 2007 1:06 pm

I don't like the idea of tape, either. I'm hoping to avoid chin straps and stuff too. If need be I can get one, but if that happens I might just change masks or something.

sharon1965 · Post by **sharon1965** » Wed May 16, 2007 2:07 pm

guest said:[quote]Anyone try that Fischer and Paykel oral-only interface? That looks pretty interesting. Does one tape or clip their *nose* shut when using that?[/quote

please correct me if i'm wrong, but doesn't this one require nose plugs? if not, what's to keep the air from coming back out the nose?

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