Hello there!!
I’m back!
I was finally called in July for a polysomnography, my penumologist called me with my result 2 weeks ago and confirmed I had UARS. She said it’s mild therefore we may not need to try to fix it.
She asked me about my symptoms, I said I had been diagnosed with severe depression a few months back, therefore, I wasn’t working and couldn’t really tell about my cognitive functions.
She asked me if I had lost weight (she never saw me in person) I said yes because I did lose 20kg since March. And she said well since you lost weight you may not have sleep apnea anymore and I was really confused because I had an healthy weight 2 years ago, I had an healthy weight in March and I still have an healthy weight (I just lost weight because I wanted too other than that it was not a necessity). She quickly looked at my file and confirmed I was never overweight.
I told her that I didn’t really used the CPAP I had purchased myself as she never gave me any information about what settings I would need to put it at and because I always had major leaks that would wake me up in the middle of the night. She told me to keep being active and to ask my GP for another referral if my symptoms worsened.
I hanged up a bit taken aback by the whole conversation because after 2 years fighting for a PSG and 6 months waiting for the result I thought « no news good news » I must not have Sleep apnea or UARS.
So here I am, severely depressed, with fatigue, difficulty remembering words or things, anxious/stressed out all the time trying to literally survive another day, everyday.
I’ve been given meds for depression who does absolutely nothing, therapy (can’t say it’s helping me) and my GP is at a loss, telling me that sleep apnea is most likely not the cause of my depression. She requested another follow-up with the pneumo but how long will it take?! Months? Years ?? Who knows.
I’m now reusing my cpap (or at least I’m trying) can’t tolerate it more than a couple of hours so far.
How can I find a doctor that will not dismiss UARS?! It looks like it’s really complicated to find someone competent with it
My PSG showed that my REM sleep was lower than usual (12%).
During REM sleep I had 33 spontaneous micro arousals per hour.
Apnea/hypopnea index 5/hour but elevated to 13/h if we count the UARS arousals (they don’t count the spontaneous arousals).
The events are in clusters during REM sleep.
Sorry for the long post but I feel really bad.
Any insight?
I’ve set my CPAP:
Max pressure: 14
Min pressure: 9
Initial pressure: 6
EPR: 3
(Again I apologize for any written mistakes)