I'm trying to learn how to read OSCAR data - can you add insights?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
DustyDoozeer
Posts: 34
Joined: Tue Feb 18, 2020 5:58 am

Re: I'm trying to learn how to read OSCAR data - can you add insights?

Post by DustyDoozeer » Thu Mar 05, 2020 3:03 pm

palerider wrote:
Thu Mar 05, 2020 12:29 pm
I don't understand what a "real base line" is good for, putting aside the fact that titration studies are very very often wrong...
<snip>
It's not surprising that sleep studies are sometimes quite wrong, what's surprising is that they're ever right!
The motivation for that is (actually _was_) as follows:

1. That one night that I spent in my lab was a split night report. The first part was diagnostic. It reported my various apneas, RERAs etc, Heart Rate, Pulse, Arousals, snoring etc.
2. Lots of these parameters are also available to me now with the CPAP + my apple watch (HR+Pulse+body movement)
3. As I wrote, I am interested in building a predictive model that given my CPAP data attempts to tell me how I feel. This part is attemptable (do-able or not, I don't know) by building a dataset of pt 2 over several weeks
4. I am also interested in finding out, which parameters or set of parameters affect my "how I feel" state the most, via the model, assuming step 3 works (if its way off the results, this is pointless)
5. Let's now make an assumption I have those parameters (principal parameters that affect my state). I can then target treatment specifically for those parameters and see if CPAP is the only device that can help, or if there are other treatments to those specific principal components that may _also_ alleviate my condition (either even better, or equal) in which case I don't need to use a CPAP every night and I get better sooner. Obviously, in consultation with my doctors. My doctor, like many other doctors takes a macro level view (oh, the lab report said your AHI is 20.9, lets use CPAP) unless he has specific data to see that may point to other conditions. My goal is to generate that data and involve him and take his professional advice. If he disagrees, fine. I don't plan to make changes myself without professional advice (contrary to what some folks wildly assumed here).
6. My next goal was to see how much effect the CPAP sessions have had on improving those parameters over my period of tests. For being able to measure that, it would have been nice if I could use the diagnostic part of my sleep result as 'this is where I was, sleeping normally before I started CPAP'. This is the reason I wanted a "baseline" which, really, would involve me not sleeping on my back and not in a room that was freezing (the wires and the mask were there, I agree, but I feel the sleeping on the back + very cold room were more influential in the numbers of the report).

Point 6 was before you told me sleep studies are not accurate anyway, in which case it may be moot.

My goal here is to leverage an area I am comfortable in: computer science and not second guess medical science. For that, I plan to engage with my doctor and whoever else in this forum wants to share their perspectives.

Does my perspective make sense?

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palerider
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Re: I'm trying to learn how to read OSCAR data - can you add insights?

Post by palerider » Thu Mar 05, 2020 9:51 pm

DustyDoozeer wrote:
Thu Mar 05, 2020 3:03 pm
palerider wrote:
Thu Mar 05, 2020 12:29 pm
I don't understand what a "real base line" is good for, putting aside the fact that titration studies are very very often wrong...
<snip>
It's not surprising that sleep studies are sometimes quite wrong, what's surprising is that they're ever right!
The motivation for that is (actually _was_) as follows:

1. That one night that I spent in my lab was a split night report. The first part was diagnostic. It reported my various apneas, RERAs etc, Heart Rate, Pulse, Arousals, snoring etc.
And, as mentioned on my mini-rant with the titrations, all that the sleep study is really good for is "you have a problem", sleep varies from hour to hour, and night to night, so if you go and have three full night sleep studies, you'll almost certainly get three different results.
DustyDoozeer wrote:
Thu Mar 05, 2020 3:03 pm
6. My next goal was to see how much effect the CPAP sessions have had on improving those parameters over my period of tests. For being able to measure that, it would have been nice if I could use the diagnostic part of my sleep result as 'this is where I was, sleeping normally before I started CPAP'. This is the reason I wanted a "baseline" which, really, would involve me not sleeping on my back and not in a room that was freezing (the wires and the mask were there, I agree, but I feel the sleeping on the back + very cold room were more influential in the numbers of the report).
Unfortunately, unless you take multiple sleep tests, over a period of time, say a week, and average the results, you're just taking a shot in the dark anyway, plus, things change, which is why i don't like fixed pressure machines.

I had a fixed pressure machine (S9 Elite), it was set up well, I was sleeping well, feeling good. I became blasé about checking my numbers... until I noticed that I just wasn't feeling good, I was tired all the time again, I pulled the SD card, and looked, my AHI had been steadily climbing for a *month*.

That was when I decided I was going to get an auto machine, so *it* could adjust *to me*.
DustyDoozeer wrote:
Thu Mar 05, 2020 3:03 pm
My goal here is to leverage an area I am comfortable in: computer science and not second guess medical science.
Well, if you can account for all the variables, you'll be doing better than 'medical science'. That's why there's so much that doesn't work for everybody, because there are far far more variables than what you're probably thinking.

As to second guessing medical science, .... good luck with that too. it's more 'medical guesswork', and many doctors don't even seem to try very hard, and few sleep doctors are successful at it, which is why this forum exists in the first place. If everybody that got a CPAP had a great time with it.... we wouldn't be here.

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DustyDoozeer
Posts: 34
Joined: Tue Feb 18, 2020 5:58 am

Re: I'm trying to learn how to read OSCAR data - can you add insights?

Post by DustyDoozeer » Fri Mar 06, 2020 3:47 pm

Here are two screenshots from Mar 4/Mar 5
Both days, I woke up feeling ok, but the 'brain fog' (confusion/tired) settled in right around 45 mins after wake up and continued till evening.

I don't see anything off in my charts that I can pin point. Based on what I've read in other parts of the forums, the # of CAs aren't extra ordinary either and OAs seem to be well managed by the machine.

Any high level thoughts? Happy to zoom in in anyone sees anything off base.

Two bad days: (woke up feeling tired/confused)
Screen Shot 2020-03-06 at 4.43.59 PM.png
Screen Shot 2020-03-06 at 4.43.59 PM.png (451.13 KiB) Viewed 316 times
Screen Shot 2020-03-06 at 4.44.09 PM.png
Screen Shot 2020-03-06 at 4.44.09 PM.png (460.75 KiB) Viewed 316 times
In comparison, a good day: (woke up feeling much more refreshed)
Screen Shot 2020-03-08 at 10.53.26 AM.png
Screen Shot 2020-03-08 at 10.53.26 AM.png (421.57 KiB) Viewed 298 times