Tiaza wrote: ↑Wed Feb 12, 2020 11:42 pm
I use enough distilled water that my tank won't run dry at night. In the morning, I pour what's left into a jug marked "Used" to use for watering orchids, for the iron, and for a steamer that requires distilled water.
But I won't reuse CPAP water. I also keep a glass of drinking water by my bed, and I get a clean glass every night instead of just adding a little more water to the glass. So no way would I just add a little more water to something that goes right into my lungs.
Way overkill in my opinion, and most others as you can see. Here's a simple fact: if your equipment is kept properly and regularly cleaned, and you are using "properly" distilled water, then there is no "food" for pathogens to feed on and grow. Whatever pathogens that enter your lungs are coming in from the air around you already and normally no matter how often you replace that water... it makes zero difference.
Now here's something that's been my experience. I started getting sinus infections when I first got started on BiPAP and I was using bottled distilled water at first. At some point I read a tip that even though the water may start out as distilled, it can get contaminated during the bottling process. What I personally use now is deionized water dispensed on demand from the FreshPure Waters units that Whole Foods and some other grocers have in store. These things deionize the water and blast it with UV as they dispense. I use a stainless steel Kleen Kanteen for storage that is simply washed in the dishwasher before refill and since switching to this, I've had no sinus infections. Coincidence? Maybe. Maybe not. Maybe it was just the particular brand of distilled water we were getting. I have no idea. But if the bottled distilled water I was getting was in fact contaminated at the bottler, then using that and changing it out daily wouldn't have made it less contaminated. Sitting in the bottle vs in the water chamber wouldn't make it less contaminated. So bottom line, if you take care to ensure your water is "properly" distilled (whether you do it yourself as someone else mentioned doing or use a reliable, trusted source), then sticking to a more sensible cleaning schedule is perfectly safe.
In the morning I rinse out the tank and let it air dry in a cabinet. Once a week instead of saving the leftover water, I mix a little rubbing alcohol with the water that's left in the tank and let the CPAP run for about 15 minutes. The tech at my pulmonologist's office said that will clean the machine better than a Soclean, and it's super cheap. I still try to clean the tubes and mask once a week, but I probably clean the equipment twice a month really.
I don't understand how that is supposed to be able to clean the machine, or what exactly they are considering "the machine" to be here (there's no way this could be cleaning literally the entire machine from the air intake onwards, which is unnecessary anyway). Some resources say not to soak anything in rubbing alcohol because it will break down the silicon and other materials, but adding it to water? I would think that even vaporized, if it's doing anything at all, then it would do that same thing too, but more slowly.