Bongo System.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Jrileye
Posts: 8
Joined: Wed Aug 07, 2019 8:28 pm

Bongo System.

Post by Jrileye » Tue Dec 24, 2019 9:26 pm

Hi all, I last posted 2/19. I had a PSG 1/19 because I thought OSA might explain my cognitive decline. The AHI was 7 and RDI. Since it was mild and the titration study was miserable, I never started CPAP. I had a follow up PSG 11/19. This time the AHI was 0.9 and the RDI 20.3. Nothing that Medicare would give me a machine. They suggest I try the Bongo nasal do-dads. I'm trying to break my self in slowly, but I feel like I'm being suffocated. I had the same feeling with the titration study.

My question is how do people find a way to addapt to the expiratory pushing back as you exhale. I know many people do adapt, but I wonder how. Maybe a mandibular advancement appliance would work better for me. Any one with experience adapting to one of those?

Thanks, Jim

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zonker
Posts: 11348
Joined: Fri Jun 19, 2015 4:36 pm

Re: Bongo System.

Post by zonker » Tue Dec 24, 2019 10:01 pm

Jrileye wrote:
Tue Dec 24, 2019 9:26 pm
Hi all, I last posted 2/19. I had a PSG 1/19 because I thought OSA might explain my cognitive decline. The AHI was 7 and RDI. Since it was mild and the titration study was miserable, I never started CPAP. I had a follow up PSG 11/19. This time the AHI was 0.9 and the RDI 20.3. Nothing that Medicare would give me a machine. They suggest I try the Bongo nasal do-dads. I'm trying to break my self in slowly, but I feel like I'm being suffocated. I had the same feeling with the titration study.

My question is how do people find a way to addapt to the expiratory pushing back as you exhale. I know many people do adapt, but I wonder how. Maybe a mandibular advancement appliance would work better for me. Any one with experience adapting to one of those?

Thanks, Jim
here's some links to read while you're waiting-

viewtopic.php?f=1&t=177645&p=1330880&hi ... o#p1330880

viewtopic.php?f=1&t=176382&p=1314230&hi ... o#p1314230
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sephiro499
Posts: 65
Joined: Wed Jul 23, 2008 1:42 pm
Location: Maryland

Re: Bongo System.

Post by sephiro499 » Tue Dec 24, 2019 10:12 pm

Jrileye wrote:
Tue Dec 24, 2019 9:26 pm
Hi all, I last posted 2/19. I had a PSG 1/19 because I thought OSA might explain my cognitive decline. The AHI was 7 and RDI. Since it was mild and the titration study was miserable, I never started CPAP. I had a follow up PSG 11/19. This time the AHI was 0.9 and the RDI 20.3. Nothing that Medicare would give me a machine. They suggest I try the Bongo nasal do-dads. I'm trying to break my self in slowly, but I feel like I'm being suffocated. I had the same feeling with the titration study.

My question is how do people find a way to addapt to the expiratory pushing back as you exhale. I know many people do adapt, but I wonder how. Maybe a mandibular advancement appliance would work better for me. Any one with experience adapting to one of those?

Thanks, Jim
I prescription version is called provent. I've tried it and hated it.

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jnk...
Posts: 2988
Joined: Fri Sep 19, 2014 12:36 pm
Location: New York State

Re: Bongo System.

Post by jnk... » Wed Dec 25, 2019 8:25 am

Jrileye wrote:
Tue Dec 24, 2019 9:26 pm
. . . I feel like I'm being suffocated. I had the same feeling with the titration study. . . . how do people find a way to adapt to the expiratory pushing back as you exhale. I know many people do adapt, but I wonder how. . . .
Sometimes it helps to use something like that while awake and while distracted by something else that takes your attention away from it.

For example, many find that their brain adapts to the sensation of CPAP if they use it while awake watching television. If it is an engaging show (although, I'm not sure very many of those exist these days), by the time the show is over it seems as if the "pushing back," or feelings of "being suffocated" go away on their own for them, so that it is now easy for them to fall asleep using it.

You may find the same thing with what you are using. Listening to music or reading a book can accomplish much the same thing while doing the awake-adaptation thing with stuff meant to be used while asleep.
-Jeff (AS10/P30i)

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palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: Bongo System.

Post by palerider » Wed Dec 25, 2019 3:06 pm

Jrileye wrote:
Tue Dec 24, 2019 9:26 pm
My question is how do people find a way to addapt to the expiratory pushing back as you exhale. I know many people do adapt, but I wonder how.
It's such a tiny pressure, once you wrap your head around it, it becomes easier.

the pressure is in centimeters of water... so whatever your pressure is, measure that length on a straw, stick that straw into a glass of water, and exhale through the straw. if you're able to blow bubbles, you're exhaled against that pressure. stick the straw further in.

4 inches? 10cm of pressure... a tall glass, 8 inches? that's 20 cm water pressure!

it's easy, isn't it?

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Jrileye
Posts: 8
Joined: Wed Aug 07, 2019 8:28 pm

Re: Bongo System.

Post by Jrileye » Fri Dec 27, 2019 12:16 am

Hi, thanks for the responses and the links to earlier posts. The bongo plags obstructy my breathing 90% on nasal exhale--they way suffocate with a really bad cold.. Maybe a strategy is to do the exhale very slowly as to not feel the resistance. When I did the titration study Bipap was a lot better with lower expiration pressure. At this point I think I'll vandalize the nasal prongs the reduce that feeling of suffocating. To be continued. BTW my AHI decreased from 7.3 to 0.9, and RDI decreased from 28 to 20. To be continued ...

Jim