Dealing with elderly patient and bipap

[Hype2120]

My objection to this entire thread is calling her mother "ELDERLY" ,
I am 80 and do not consider my self elderl !

I truly apologize for offending you. Honestly my mom would be angry if she heard me use the term “elderly” to describe her. Poor word choice. I’m trying to solve a very serious issue and I wasn’t considering my words as much as my mother’s health.

[Hype2120]

Without seeing data from her machine, we'd pretty much just be guessing.

Does this type data help? Not sure what to post.

041457BF-AD9E-4C06-80DE-EA8B06C03343.jpeg (300.95 KiB) Viewed 3352 times

[Barbee]

Starting pressure of 4 makes me feel like Im smothering. You said the-mask change was recent. Maybe she is removing it because she feels like she cant breathe? Just a thought..

[Hype2120]

Starting pressure of 4 makes me feel like Im smothering. You said the-mask change was recent. Maybe she is removing it because she feels like she cant breathe? Just a thought..

Good thought & thanks Barbee — except — she was already removing her last mask in the exact same way. That’s why we tried yet another mask. Unfortunately the numbers didn’t improve at all. In fact, I think they’re a bit worse.

[palerider]

Without seeing data from her machine, we'd pretty much just be guessing.

Does this type data help? Not sure what to post.
041457BF-AD9E-4C06-80DE-EA8B06C03343.jpeg

A few recent days like this:
wiki/index.php/Sleepyhead:Organize

[djams]

Are you aware that there's a memory foam cushion for the F20? Maybe it's a comfort issue.

$28.00 on Amazon. They've gotten cheap since I used them.
AirTouch™ F20 Cushion (Medium) https://www.amazon.com/dp/B075MRSXLN/re ... 9CbBQX777Z

[Janknitz]

You keep saying this is a "behavioral issue". Behavior implies intent. Does she say she is purposefully removing the mask? And if so, why?

If she is removing the mask in her sleep (and that's not uncommon for people to remove the mask in their sleep), it's not "behavioral". Looking at the data on her card would be helpful to see WHEN this is happening--is your other sister close enough to download the data from her card? The data will yield other clues, too, such as whether the pressure settings are really still meeting her needs.

The other option is a sleep study so she can be observed in the sleep lab to see what's happening with data. You can't simulate sleep and expect to see what's really happening.

Is your mom showing signs of dementia beyond the CO2 issue?

[Muse-Inc]

Interesting. Need to determine WHY she is pulling the mask off, such as following a long event or a series of events that wake or semi-wake her up. Need to determine WHY there are high leaks; in my situation, unresolved increased leaks is invariably a need to either slightly tighten my headgear or replace if it is stretched out. Making it harder for her to dissassemble the mask is an excellent idea.

My FFM mask is a hybrid style meaning it has pillows and covers my mouth, making it easy to breathe thru nose or mouth. It has 2 ports for supplemental gases like oxygen. Comes with 3 sizes of pillows and oral cushions. Click on it in my signature to see it on our host's website www.cpap.com. It might be worth trying in case comfort might be a reason for her pulling the mask off.

[Julie]

Just struck me - Barbee said starting pressure of 4 makes us feel we're not getting enough air (true), but you answered with comment about masks. Do you not understand that air pressure settings are not mask pressure settings? And that regardless of mask type the air pressure min. setting should probably be tried at least a couple of cms higher (6) than she's at now? I'd take my mask off too if I couldn't breathe.

[raisedfist]

She may benefit from small amounts of daytime use to acclimate to wearing the mask, maybe while watching television or reading a book. The pressure support augments breathing, so it may make her feel better. Often times when you associate something with making you feel better, instead of a dreadful monster that you must deal with, you come to learn to like it.

Once we get the data we will have more to work with.

[Hype2120]

Without seeing data from her machine, we'd pretty much just be guessing.

Does this type data help? Not sure what to post.
041457BF-AD9E-4C06-80DE-EA8B06C03343.jpeg

A few recent days like this:
wiki/index.php/Sleepyhead:Organize

Is Sleepyhead some type of third party software? We don’t have access to that much data — but I wish we did.

[Julie]

SH was written (orig. on a Mac) by a forum member, and it is THE best, most comprehensive software available for OSA anywhere... Oscar is a newer version, but most here have SH on their machines. Please read the first (and 2nd) 'Announcement" on main pg for explanations, download (free) and info on how to use it, post here for advice, etc etc. And it's important to follow the info but if you have trouble, please come back to this thread to ask about it. The general consensus otherwise is that MyAir is junk.

[palerider]

Without seeing data from her machine, we'd pretty much just be guessing.

Does this type data help? Not sure what to post.
041457BF-AD9E-4C06-80DE-EA8B06C03343.jpeg

A few recent days like this:
wiki/index.php/Sleepyhead:Organize

Is Sleepyhead some type of third party software? We don’t have access to that much data — but I wish we did.

You *apparently* have access to the SD card, and were able to read it into resscan.

Follow the instructions in my sig, then format the screenshots according to the organizing link.

[Hype2120]

Just struck me - Barbee said starting pressure of 4 makes us feel we're not getting enough air (true), but you answered with comment about masks. Do you not understand that air pressure settings are not mask pressure settings? And that regardless of mask type the air pressure min. setting should probably be tried at least a couple of cms higher (6) than she's at now? I'd take my mask off too if I couldn't breathe.

My understanding of pressure settings is extremely little. All I know is 1) what the doctor said her pressure setting is and 2) that a pressure setting has to be changed by her pulmonologist. Other than that, I know nothing about pressure settings. I don’t know much about medical anything. I work in entertainment where we don’t use much brain power.

[Hype2120]

SH was written (orig. on a Mac) by a forum member, and it is THE best, most comprehensive software available for OSA anywhere... Oscar is a newer version, but most here have SH on their machines. Please read the first (and 2nd) 'Announcement" on main pg for explanations, download (free) and info on how to use it, post here for advice, etc etc. And it's important to follow the info but if you have trouble, please come back to this thread to ask about it. The general consensus otherwise is that MyAir is junk.

Thanks, Julie. I’ll start reading. I do have a question before I begin reading the SH info. Would I need to remove the SD card from her machine and then place it into a card reader to allow the SH software to read the card? Might have issues there. I’m a 5-hour flight away from my parents house. Perhaps my sister could pull the card for me. But I’m guessing that requires a card reader...I’ll start reading. My answers are probably somewhere in that SH info. Hopefully...

Thanks again!