6 mo. BiPAP user switched to ASV

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
Boshwash
Posts: 44
Joined: Thu Dec 13, 2018 8:37 am

6 mo. BiPAP user switched to ASV

Post by Boshwash » Mon Apr 29, 2019 7:58 am

Hello everyone, It's been a few months since I visited the forum. Hope everyone is doing well :)

After buying a new home, dealing with an ending lease and subsequently a new one, things have been busy as you could imagine.

I finally found time to get into the lab for my scheduled sleep study (after rescheduling 3 times.... I know, I know). I really thought after being on therapy for 6 months and now feeling like I can't sleep without it would make my sleep study a breeze.... Nothing of the sort. Felt like I didn't sleep at all. Honestly, I think it was the bed, it was just uncomfortable... pillow sucked too. I'm sure you veterans already know to take your pillow from home :lol:

My doctor was acting a little weird after I completed the sleep study. His office was calling me the next day acting shady, saying things like, "Dr. Thompson wants to get you in right away, can you come this week, he said it didn't matter if we double booked him, he wants to see you this week!". Seemed a little over the top considering it wasn't a heart scan or cancer screening but ok, so I went in the same week.

Side note, anyone who followed my introduction thread back toward the end of 2018 might have read that I spoke with my doctor about getting an ASV right out of the gate. I gave him my reasons for thinking I needed one and supporting evidence. Obviously he denied me (regardless of the fact that I had already cleared everything with my insurance). So when I finally met with him, he basically said, "Well, your results came in and... honestly... it looks like you still aren't fixed". It was hard not to roll my eyes since I have been telling him the whole time that even though my AHI is between 2.5 and 4.0 on any given night, I still feel terrible. I also told him about my CA's in SleepyHead and that every night those are pretty much the only type of events I have. Didn't matter.

Anyways, fast forward a little, I still have to do some convincing to get an AutoSV over a BiPAP-ST. Fast forward a few days and I've got my Philips Dreamstation AutoSV unit. It's still unclear if insurance is going to cover it. I have Humana on a group plan. Supposedly most insurances are a little more lenient when you are a group but Humana sticks pretty closely with the Medicare guidelines for stuff like this. At least that's what my DME supplier told me.

As for results, I've been on the AutoSV for 3 nights now. Previous to the ASV my AHI would range 4.x to 2.x. 30 day average was 2.8. First night on ASV and my AHI dropped to 0.5, second night was 0.7, and last night was 0.2! I don't want to start claiming that I 'feel better' yet. I 'think' I do, but seems like sometimes when you 'think' you are supposed to feel better, your brain can trick you into it for a few days. Plus I'm coming off a weekend where I averaged an extra hour or so more sleep per night. I will say that my morning routine seemed.... faster than usual. Generally speaking each part of getting ready for work requires me to wake up a little more than the previous one. Here's an example:

Alarm goes off... snooze... snooze.... snooze.... snooze...snooze....turn alarm off...20 minutes later sit upright in bed. Sit upright in bed for 10 minutes with eyes closed. Swing around and put feet on floor. Sit for another 5-10 minutes with eyes closed. Pep talk myself into not going back to sleep. Barely succeed. Stumble to the bathroom. Stand in front of the mirror rubbing hands together (no idea why) for 5 minutes. Prop self up on elbows on sink top for a few minutes. Stand upright again, rub hands together for a few more minutes. Put in eye drops. Brush Teeth. Dread putting in contacts. Try to put in contacts. Finally get them in. 50/50 chance on them feeling like sand or not. Stumble to closet with partially open eyes. Drag out some clothes. Sit on the edge of bed to put on pants. Contemplate staying home. Start formulating a text to send to my boss on why I won't be in. Pep talk myself again. Grudgingly accept that I'm going to continue getting ready. Delete partial text message. Grunt as wife walks by to start getting ready. Stumble down the stairs. Grab my stuff. Walk out to the car and leave. Fall asleep 3-4 times on the interstate and at least once at a red light. Get to the office somehow. Leave sunglasses on and don't turn on office light until 10am.

This morning most of that stuff happened, but I didn't snooze the alarm. I made it to the bathroom within a minute or two. Didn't stand around rubbing my hands together (still don't know why I do that). Contacts went in without any issue. Spoke to wife instead of just a grunt. Did not think about staying home. Didn't fall asleep at all on the way to work. Turned light on immediately upon arrival at office and did not continue to wear sunglasses. Arrived at work almost an hour earlier than usual. Coincidence? Maybe. Will need more time to know for sure.

I apologize for the wall of text and what I can only assume is poor grammar, I didn't proof this at all :lol:

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: DreamWear Nasal CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Resmed Adjustable Chin Strap

User avatar
Muse-Inc
Posts: 4382
Joined: Fri Jun 12, 2009 8:44 pm
Location: Atlanta, GA

Re: 6 mo. BiPAP user switched to ASV

Post by Muse-Inc » Mon Apr 29, 2019 8:06 am

Sounds like progress!
ResMed S9 range 9.8-17, RespCare Hybrid FFM
Never, never, never, never say never.

User avatar
Bookit
Posts: 143
Joined: Sat Oct 20, 2018 2:52 pm
Location: Florida

Re: 6 mo. BiPAP user switched to ASV

Post by Bookit » Mon Apr 29, 2019 10:13 am

I appreciate your honesty about your morning routine. I occasionally have those mornings too. But it sounds like yours is every day and mine is just once in a while.

Really hoping the improvement is real and lasting for you!

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: pressure 9.6 - 20. No ramp. Exhalation relief 3. Humidity 4.
I don't want to sleep like a baby. I want to sleep like my husband. Resmed AirSense 10 for her. Pillows. Humidity 4.

User avatar
katestyles
Posts: 610
Joined: Sun Jan 06, 2019 9:08 am

Re: 6 mo. BiPAP user switched to ASV

Post by katestyles » Mon Apr 29, 2019 11:20 am

Boshwash wrote:
Mon Apr 29, 2019 7:58 am


Alarm goes off... snooze... snooze.... snooze.... snooze...snooze....turn alarm off...20 minutes later sit upright in bed. Sit upright in bed for 10 minutes with eyes closed. Swing around and put feet on floor. Sit for another 5-10 minutes with eyes closed. Pep talk myself into not going back to sleep. Barely succeed. Stumble to the bathroom. Stand in front of the mirror rubbing hands together (no idea why) for 5 minutes. Prop self up on elbows on sink top for a few minutes. Stand upright again, rub hands together for a few more minutes. Put in eye drops. Brush Teeth. Dread putting in contacts. Try to put in contacts. Finally get them in. 50/50 chance on them feeling like sand or not. Stumble to closet with partially open eyes. Drag out some clothes. Sit on the edge of bed to put on pants. Contemplate staying home. Start formulating a text to send to my boss on why I won't be in. Pep talk myself again. Grudgingly accept that I'm going to continue getting ready. Delete partial text message. Grunt as wife walks by to start getting ready. Stumble down the stairs. Grab my stuff. Walk out to the car and leave. Fall asleep 3-4 times on the interstate and at least once at a red light. Get to the office somehow. Leave sunglasses on and don't turn on office light until 10am.
Have you been watching me? This is my morning!

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: Back up mask - anything in the drawer

User avatar
Boshwash
Posts: 44
Joined: Thu Dec 13, 2018 8:37 am

Re: 6 mo. BiPAP user switched to ASV

Post by Boshwash » Mon Apr 29, 2019 1:15 pm

Bookit wrote:
Mon Apr 29, 2019 10:13 am
I appreciate your honesty about your morning routine. I occasionally have those mornings too. But it sounds like yours is every day and mine is just once in a while.

Really hoping the improvement is real and lasting for you!
Full Disclosure, I might have stretched the truth on one part.... most days I don't actually turn the light on in my office till noon....

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: DreamWear Nasal CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Resmed Adjustable Chin Strap

User avatar
Boshwash
Posts: 44
Joined: Thu Dec 13, 2018 8:37 am

Re: 6 mo. BiPAP user switched to ASV

Post by Boshwash » Mon Apr 29, 2019 1:17 pm

Bookit wrote:
Mon Apr 29, 2019 10:13 am
I appreciate your honesty about your morning routine. I occasionally have those mornings too. But it sounds like yours is every day and mine is just once in a while.

Really hoping the improvement is real and lasting for you!
Thanks, I really hope it helps. I'm about out of options. If a continual sub 1.0 AHI can't make me feel any better I don't know what to do.

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: DreamWear Nasal CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Resmed Adjustable Chin Strap

JDS74
Posts: 3397
Joined: Sun Jan 23, 2011 2:57 pm
Location: South Carolina

Re: 6 mo. BiPAP user switched to ASV

Post by JDS74 » Wed May 01, 2019 8:03 am

I've got the same machine - welcome to the ASV club.

_________________
Mask: Oracle HC452 Oral CPAP Mask
Humidifier: DreamStation Heated Humidifier
Additional Comments: EverFlo Q 3.0 Liters O2 PR DSX900 ASV
Oracle 452 Lessons Learned Updated
DSX900 AutoSV with HC150 extra humidifier and Hibernite heated hose
Settings: EPAP Min-10.0, EPAP Max-17, PS Min-3, PS Max-10, Max Pressure-20, Rate-Auto, Biflex-1.
Sleepyhead and Encore Pro 2.21.