pneumonitis

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TheWeehawky
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pneumonitis

Post by TheWeehawky » Wed Jan 30, 2019 8:59 pm

Well found out why my rib/lung is sore. Is this due to the humidifier on the CPAP? Should I just remove the humidifier and crank the heated hose? Other ideas ?

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LSAT
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Re: pneumonitis

Post by LSAT » Wed Jan 30, 2019 9:09 pm

You said you found out what was making your rib/lung sore...why are you asking about the humidifier? I don't see how moisture would have anything to do with your pain. More than likely it's the pressure. What is your pressure?

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TheWeehawky
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Re: pneumonitis

Post by TheWeehawky » Wed Jan 30, 2019 9:13 pm

LSAT wrote:
Wed Jan 30, 2019 9:09 pm
You said you found out what was making your rib/lung sore...why are you asking about the humidifier? I don't see how moisture would have anything to do with your pain. More than likely it's the pressure. What is your pressure?
Well that's what they came up with on the X-ray is all. 7-20 . And some home research, https://www.mayoclinic.org/diseases-con ... c-20352623

Says humidifiers .

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Re: pneumonitis

Post by zoocrewphoto » Wed Jan 30, 2019 9:22 pm

TheWeehawky wrote:
Wed Jan 30, 2019 9:13 pm
LSAT wrote:
Wed Jan 30, 2019 9:09 pm
You said you found out what was making your rib/lung sore...why are you asking about the humidifier? I don't see how moisture would have anything to do with your pain. More than likely it's the pressure. What is your pressure?
Well that's what they came up with on the X-ray is all. 7-20 . And some home research, https://www.mayoclinic.org/diseases-con ... c-20352623

Says humidifiers .
The only reference in that page to humidifiers is that it could have mold,and the mold would be the problem. Do you have mold in your humidifier? It is not likely, but have you actually checked?

It is more likely that you are dealing with some other irritant in the air, and it has nothing to do with your cpap machine. How's the air quality where you live?

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TheWeehawky
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Re: pneumonitis

Post by TheWeehawky » Wed Jan 30, 2019 9:24 pm

zoocrewphoto wrote:
Wed Jan 30, 2019 9:22 pm
TheWeehawky wrote:
Wed Jan 30, 2019 9:13 pm
LSAT wrote:
Wed Jan 30, 2019 9:09 pm
You said you found out what was making your rib/lung sore...why are you asking about the humidifier? I don't see how moisture would have anything to do with your pain. More than likely it's the pressure. What is your pressure?
Well that's what they came up with on the X-ray is all. 7-20 . And some home research, https://www.mayoclinic.org/diseases-con ... c-20352623

Says humidifiers .
The only reference in that page to humidifiers is that it could have mold,and the mold would be the problem. Do you have mold in your humidifier? It is not likely, but have you actually checked?

It is more likely that you are dealing with some other irritant in the air, and it has nothing to do with your cpap machine. How's the air quality where you live?
Hmm that is a good question. There are some plants around here and a chicken factory.

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Re: pneumonitis

Post by zoocrewphoto » Wed Jan 30, 2019 9:33 pm

Shortly after I started cpap back in June of 2012, I got a bad cough. It cleared after a couple weeks. At first I wondered if it was due to teh cpap since I was new at it. I deep cleaned everything, but never found any real cause. It came back worse in July and lasted 8 weeks. I went to the doctor a couple times, got meds, not much relief. Then it came back again in October. That time, my dad commented that every time I went out of town, I came home sick. I argued that it wasn't true and listed a few times that I had traveled and not gotten sick. Then I realized that each time was with a friend in their vehicle. The times I got sick were all using my parent's van. We then remembered a bottle of liquid fertilizer that was spilled back in May. We had cleaned it up, but some of it went under the passenger seat, and it smelled funny for awhile. My dad removed the seat and deep cleaned underneath. No more cough.

More recently, we had some bad air quality, and I got sick. I got better, and now this week, I am coughing again. No idea what is causing it this time, but I know it isn't the cpap machine. The water tank is fine. The air filter is fine. I get better air while asleep than I do while awake. Just probably something crappy in the air right now.

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TheWeehawky
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Re: pneumonitis

Post by TheWeehawky » Wed Jan 30, 2019 9:37 pm

zoocrewphoto wrote:
Wed Jan 30, 2019 9:33 pm
Shortly after I started cpap back in June of 2012, I got a bad cough. It cleared after a couple weeks. At first I wondered if it was due to teh cpap since I was new at it. I deep cleaned everything, but never found any real cause. It came back worse in July and lasted 8 weeks. I went to the doctor a couple times, got meds, not much relief. Then it came back again in October. That time, my dad commented that every time I went out of town, I came home sick. I argued that it wasn't true and listed a few times that I had traveled and not gotten sick. Then I realized that each time was with a friend in their vehicle. The times I got sick were all using my parent's van. We then remembered a bottle of liquid fertilizer that was spilled back in May. We had cleaned it up, but some of it went under the passenger seat, and it smelled funny for awhile. My dad removed the seat and deep cleaned underneath. No more cough.

More recently, we had some bad air quality, and I got sick. I got better, and now this week, I am coughing again. No idea what is causing it this time, but I know it isn't the cpap machine. The water tank is fine. The air filter is fine. I get better air while asleep than I do while awake. Just probably something crappy in the air right now.
Might be why they gave me Allegra also to take for the sniffling and sneezing part last week. I still got the bloody nose and stopped up nose, and the coughing up stuff is turning green though so I am going back tomorrow and telling him we need to follow up more and it didn't go away.

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TheWeehawky
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Re: pneumonitis

Post by TheWeehawky » Thu Jan 31, 2019 1:26 pm

Just got back, chest X-ray is ok now it seems and they came up with "Walking pneumonia" .. Want me to take a Zpac

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Janknitz
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Re: pneumonitis

Post by Janknitz » Thu Jan 31, 2019 4:11 pm

The descriptions in the link you gave for pneumonitis are exactly the same as the "cough variant asthmatic bronchitis" that I get on occasion. Typically the trigger for me is a virus, sometimes it's other triggers like fragrances or smoke.

All I can tell you is that the only time I feel better and don't cough is when I am wearing my CPAP. Before CPAP, when I'd have a bout I'd have to sit up all night to breathe, and I didn't sleep much at all. With CPAP, I put it on and stop coughing, sleep well throughout the night and get the rest I need to heal my body. I get better faster thanks to CPAP. CPAP does not cause it and since CPAP I get a bout every few years instead of 6 or more times a year before CPAP.

I've had pneumonia once, and that was before CPAP. The irritated lungs fill with mucous, and that makes a warm, cushy bed for pneumonia bacteria to grow. That was awful, and I was so sick I was surprised to live through it.

Since you've had this bout of pneumonitis and now pneumonia, when you are fully recovered you might want to ask your doctor for a pulmonary function test. I had the symptoms of cough variant asthma all my life, but I was only diagnosed in my mid-fifties after that pneumonia. I was able to get it under control with a program of maintenance medications and a "rescue" inhaler when needed. Then I changed my diet (most notably eliminating grains and sugars) and my health improved 1000%. I no longer need the maintenance meds.

I just got over a bout of asthmatic bronchitis, but it had been 3 years since the last bout. And likely due to the heavy smoke from Northern California fires in the past two years. When I was using my CPAP during poor air quality (smoke nearly 300 ppm), that was the only time I was breathing fresh, filtered air for months at a time.
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Re: pneumonitis

Post by palerider » Thu Jan 31, 2019 6:33 pm

Janknitz wrote:
Thu Jan 31, 2019 4:11 pm
I've had pneumonia once, and that was before CPAP. The irritated lungs fill with mucous, and that makes a warm, cushy bed for pneumonia bacteria to grow. That was awful, and I was so sick I was surprised to live through it.
I had pneumonia once too... also years before CPAP. And after having grown up with my grandmother telling me "DON'T YOU GO OUTSIDE WITH A WET HEAD, YOU'LL CATCH YOUR DEATH OF PNEUMONIA".... I managed to come down with it... in July, in Texas... when it was 105f outside. that showed her!!! *lol*.

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Re: pneumonitis

Post by nobody » Thu Jan 31, 2019 10:33 pm

I've had mold in my humidifier. Never got pneumonia from it but it was kinda nasty smelling.

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Re: pneumonitis

Post by TheWeehawky » Fri Feb 01, 2019 12:24 am

This is where we are confusing "Walking pneumonia" with pneumonia. He said I got "Walking pneumonia" but not pneumonia. They said all the cillins wont work against Mycoplasma is why they want me to take the Zpac.

https://www.webmd.com/lung/walking-pneumonia#1

Also he said the pulmonolgist , who I was sent for for sleep only, didn't want to do anything cause simply.. It'd make too much sense and he's waiting around on him/regular doctor to tell him the CPAP is eating me up from nose down.. And said yeah it wouldn't hurt to go on and see ENT about the irritation on the part he can cover too.

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Re: pneumonitis

Post by Janknitz » Mon Feb 04, 2019 5:46 pm

TheWeehawky wrote:
Fri Feb 01, 2019 12:24 am
This is where we are confusing "Walking pneumonia" with pneumonia. He said I got "Walking pneumonia" but not pneumonia. They said all the cillins wont work against Mycoplasma is why they want me to take the Zpac.

https://www.webmd.com/lung/walking-pneumonia#1

Also he said the pulmonolgist , who I was sent for for sleep only, didn't want to do anything cause simply.. It'd make too much sense and he's waiting around on him/regular doctor to tell him the CPAP is eating me up from nose down.. And said yeah it wouldn't hurt to go on and see ENT about the irritation on the part he can cover too.
Wow, sounds like you are getting the runaround. I always thought of "walking pneumonia" as a pneumonia (lung infection vs. lung inflammation) that's mild enough you don't have to be in the hospital on IV meds and possibly oxygen or respiratory support, but still an actual pneumonia.

And your pulmonologist just wants to sit around and make money from diagnosing sleep apnea and prescribing CPAP but seeing patients as little as possible. Yuck. With mycoplasma, sounds like you need a different pulmonologist who will actually treat you.

As for mask issues, have you tried any other masks?
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TheWeehawky
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Re: pneumonitis

Post by TheWeehawky » Thu Feb 07, 2019 12:05 am

Janknitz wrote:
Mon Feb 04, 2019 5:46 pm
TheWeehawky wrote:
Fri Feb 01, 2019 12:24 am
This is where we are confusing "Walking pneumonia" with pneumonia. He said I got "Walking pneumonia" but not pneumonia. They said all the cillins wont work against Mycoplasma is why they want me to take the Zpac.

https://www.webmd.com/lung/walking-pneumonia#1

Also he said the pulmonolgist , who I was sent for for sleep only, didn't want to do anything cause simply.. It'd make too much sense and he's waiting around on him/regular doctor to tell him the CPAP is eating me up from nose down.. And said yeah it wouldn't hurt to go on and see ENT about the irritation on the part he can cover too.
Wow, sounds like you are getting the runaround. I always thought of "walking pneumonia" as a pneumonia (lung infection vs. lung inflammation) that's mild enough you don't have to be in the hospital on IV meds and possibly oxygen or respiratory support, but still an actual pneumonia.

And your pulmonologist just wants to sit around and make money from diagnosing sleep apnea and prescribing CPAP but seeing patients as little as possible. Yuck. With mycoplasma, sounds like you need a different pulmonologist who will actually treat you.

As for mask issues, have you tried any other masks?
The pulmonlogist is useless, he wont do anything other than sleep. (all I was sent to him for) I haven't tried any other masks at home, no. And like the regular doctor said, he's waiting for someone medical to tell him his machine is eating me up. (specialist/pulumonologist is)

I'm going to go see the ENT on 22, and actually plan on keeping my appointment this time.

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