PLEASE HELP BIPAP not staying in nsync ;) with me helllppppp

[tigergriz]

Hello,
I am at the end of my rope with sleep treatment, I went to a sleep center about 7 years ago and they forgot to send my results from the sleep study when they finally contacted me after I called them, I went in I saw a stand-in DR. they got me set up and paying for a BIPAP unit I have the Phillips Respironics BIPAP S/T DS6HFLG S/N H12171769274B I had to go through the equipment company and they set it up, then when I absolutly could not use it they had me call the DR for changes, so I have been unable to tollerate more than a few hours with my bipap as it seems to get out of sink with me, I wanted so much for it to work that I hacked into it and changed it but only made it slightly better, so I called the sleep center and demanded to speak with my actual DR., not the temporary vacation DR. I did and he had me do a second sleep study, and afetr that changed the settings and still I get out of sink wake up trying to breath in while its not giving me air, can anyone please tell me if my model is supposed to make me match its breathing pattern or is it supposed to learn mine and stay with me, I read in your forums about another machine an auto something and when it did that they shut it off and restarted it to fix it, I wish cpap worked for me but I guess I could not tollerat pushing as hard as I had to breathe out, I remember talking with the equipment guy to get things working for me and he said they do make a machine that auto adjusts or lets you breathre when you want to, but I had not jumped through enough failed machine hoops to have them pay for part of that machine, is mine just out dated, should I toss it?
Any help is anxiously awaited and deeply appreciated, I live in Redding, lots of smoke due to the Carr fire, and I have SVT, CHF, CM, AFIB and am trying to stay out of the smoke, but more than ever I feel like I am not getting enough air.

[zoocrewphoto]

The machines do not learn our breathing pattern, but depending on the model, there are different settings that can make things easier and more comfortable for you. Some of the experts here can help you when they get online. I know there are different settings that may change the timing a little.

In the meantime, can you tell us what your settings are and what kind of mask you using? You can also download the sleepyhead software and post some graphs of a typical night. That will help a lot. You can find the directions in the sticky post for new people before they post.

Also, you mentioned 7 years ago, but it sounds like you never got any success. Are you just starting up again? Can you tell us more about the problems you are having?

[Pugsy]

Welcome to the forum.

How long have you been actually trying to use this machine?

Please look on the bottom of your machine for a different model because this

DS6HFLG S/N

is probably the humidifier number. There should be another model number on a sticker on the bottom of the blower part of the unit.

Does your humidifier look like this one
DS6HFLG S/N

If so with it attached to the blower it would look like this.
https://www.cpap.com/productpage/respir ... ap-st.html
And will start with DS and then 3 or 4 numbers I suspect a 4 digit number with it being DS1050 which is the System One model line that was discontinued several years ago with first replacement the DS1060 and now the latest DreamStation model DXS1030xxx

If so...it won't ever learn your breathing pattern but there are some settings (I think) that might make it more closely match up to your breathing pattern depending on which mode you are using.

How bad is the CHF? Do you know your ejection rates? Was it 45 or below?

Do you have a copy of your initial sleep study without cpap? Was there a mention as to how many central apneas you had and what was the official diagnosis. This type of machine is usually given to people who have a lot of central apneas or more centrals than obstructive apneas.
In ST mode it breathes for you when you don't breathe according to the rate set up...it won't auto adjust or lean anything. You have to learn to adapt to it.

The machines that will learn some things about your breathing are called ASV machines and they don't learn all that much but they will sort of learn your breathing rate each night (doesn't remember a thing once you turn the machine off for the next night).
And really all it learns is a new auto backup rate to use when you don't breathe on your own.
Some docs won't dispense the ASV machines because of how bad a person might have CHF. There was a study some time back that scared everyone about what happened with ASV users who had ejection rates 45 or less.

[JimW159]

How bad is the CHF? Do you know your ejection rates? Was it 45 or below?Some docs won't dispense the ASV machines because of how bad a person might have CHF. There was a study some time back that scared everyone about what happened with ASV users who had ejection rates 45 or less.

Are you aware of any information that either confirms the validity of this concern or indicates otherwise?

[Pugsy]

How bad is the CHF? Do you know your ejection rates? Was it 45 or below?Some docs won't dispense the ASV machines because of how bad a person might have CHF. There was a study some time back that scared everyone about what happened with ASV users who had ejection rates 45 or less.

Are you aware of any information that either confirms the validity of this concern or indicates otherwise?

No. Not that I am aware of. Doctors are still doing the ejection rate test prior to prescribing ASV machines as far as I know.
The study that started the whole hooplah wasn't maybe the most accurate study but it was what was done.
The bulk of the people participating in the test didn't use the ASV for at least 4 hours...and remember if a person has bad CHF they are already really sick people and the mortality rate is expected to increase in people with those problems.
So they took really sick people...who mainly used the ASV less than 4 hours a night and decided it was the ASV that was killing them.
So you can make of it what you wish but so far from what I have read doctors aren't dispensing ASV for people with ejection rates 45 or less.

[prodigyplace]

LOL When I saw the title I was going to recommend using a bed instead of a sink. Much more comfortable too.

I believe they meant sync.

[chunkyfrog]

Length of time overall is especially pertinent, because numerous adjustments may need to be made.
First, to get it adjusted for your comfort, and then gradually tweaked to achieve effectiveness.
I suspect that your team has not started with a comfort level to get you used to therapy.
Some patients need a gradual adjustment, which may be more effort than they were able/willing to do.
My sister in law was recently started on a Trilogy, and she is only able to use it for short periods.
As time passes, she and her providers will process her needs and tolerance;
and hopefully work up to a stable situation.
I wish the same for you.

[chunkyfrog]

LOL When I saw the title I was going to recommend using a bed instead of a sink. Much more comfortable too.

I believe they meant sync.

That really WAS unnecessary.
Spellcorrect is pure evil.
Not everyone can spell well enough to have the confidence to switch it off.

[prodigyplace]

LOL When I saw the title I was going to recommend using a bed instead of a sink. Much more comfortable too.

I believe they meant sync.

That really WAS unnecessary.
Spellcorrect is pure evil.
Not everyone can spell well enough to have the confidence to switch it off.

Sorry. I work with University students, many of who do not know the difference in the words.

[chunkyfrog]

I understand.
Spelling was too easy for me; and it took me a long time to figure out
that poor spelling does not equate to low intelligence.
Some brilliant people have trouble communicating.
Sometimes we need to work to understand them.
But it is so worth it.

[JimW159]

Sorry. I work with University students, many of who do not know the difference in the words.

Sometimes the view from a lofty perch is impeded by a stiff neck resulting from an even more elevated nose.

[chunkyfrog]

Been there.
Done that.
Burned the t-shirt.

[palerider]

How bad is the CHF? Do you know your ejection rates? Was it 45 or below?Some docs won't dispense the ASV machines because of how bad a person might have CHF. There was a study some time back that scared everyone about what happened with ASV users who had ejection rates 45 or less.

Are you aware of any information that either confirms the validity of this concern or indicates otherwise?

Resmed did a *terrible* study, and then freaked when a "statistically significant" (something like 2%) more people died on ancient ASVs than not.

However, there are so many failure points on the study: http://www.sciencedirect.com/science/ar ... 9215003505

[tigergriz]

LOL When I saw the title I was going to recommend using a bed instead of a sink. Much more comfortable too.

I believe they meant sync.

OK, ya got me, my spelling and grandcrammer are terrible and no, I do not sleep in the sink LOL

[prodigyplace]

LOL When I saw the title I was going to recommend using a bed instead of a sink. Much more comfortable too.

I believe they meant sync.

OK, ya got me, my spelling and grandcrammer are terrible and no, I do not sleep in the sink LOL

My imagination went crazy. I envisioned you in the sink but the BIPAP kept jumping out.