A.W.A.K.E.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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LilBuckaroo
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A.W.A.K.E.

Post by LilBuckaroo » Sat Feb 26, 2005 3:34 pm

What is A.W.A.K.E. ?

Where do I find more info about it?

Thanks again, fellow hose heads!

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Harold

Until later, stay safe, be nice, sleep well and keep on papin'

chrisp
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Post by chrisp » Sat Feb 26, 2005 4:04 pm

Here is a link. http://www.sleepapnea.org/awake.html

Unfortunately. AWAKE is pretty much ASLEEP in most parts of the country.


Cheers,

Chris

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dankazoo
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Post by dankazoo » Sat Feb 26, 2005 6:03 pm

Chris-
Dave Hargett said there were three in Texas-Corpus Christi, Dallas area, and and the third might have been Lufkin. Anyway, not near you.
Dan

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G00fy217
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Post by G00fy217 » Mon Feb 28, 2005 12:09 pm

Hey there UnknownHoser..... Dave Haggert may be able to help you out. Just PM him with where you live and he might know of a group near your home. If not, you might want to consider starting your own group.

A.W.A.K.E. is a support group for fellow hosers to get together and discuss the pluses and minuses of their experiences. Plus they have guest speakers, etc. Dave could give you more info than I can.... I just attended my first meeting last week.

Good Luck! I think it's a great network of people similar to this forum but you can actually speak to these people face to face.
Laughter never killed anyone..... Go ahead, laugh! It's good for you!! ;-)

melody
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Post by melody » Tue Mar 08, 2005 2:30 pm

AWAKE = Alert, Well, and Keeping Energetic
nationwide network of sleep apnea support groups operating in conjunction with an existing sleep center

Took a while but I found it--your reference librarian at the Louisville Free Public Library
melody

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johnnygoodman
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Post by johnnygoodman » Tue Mar 08, 2005 3:11 pm

Howdy,

We've been kicking around the idea of starting a list of active AWAKE groups across America. If there isn't one in your area you could start one up or at least use cpaptalk.com to network for it.

The obstacles we've encountered are:

1. Are you as a community interested in such a thing?

2. AWAKE groups are usually run diagnostic facilities or by DMEs (because thats where 99% of the world gets their CPAP stuff). They are there to provide you with information, but are also hoping to pick up a patient.

There's nothing wrong with this process. Heck, cpaptalk.com links to cpap.com right? However, the practice does lead to politics and "turf guarding". We don't want to guide our community into that sort of situation without them being aware of it.

3. Neither are we keen on starting a competing group. Why have "CPAP Talks" and "AWAKE Groups" when they are both after the same result: more informed patients? Why not work together? I've tried to content Dave Harget about this but haven't heard back as of yet.

In my opinion, posting "is there one in Location X" is currently the best option for patient looking that I'm aware of - and that's pretty weak. I'd love to help but don't want to push the community in a bad direction.

Thoughts and comments are welcome.

Johnny

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slumberer
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Post by slumberer » Tue Mar 07, 2006 2:00 pm

I'm thinking about starting an AWAKE chapter for Los Angeles...I can't believe we don't have a group for the second largest city in the US!

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LDuyer
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Post by LDuyer » Thu Mar 09, 2006 1:33 pm

This is the link to the listings of AWAKE groups.

Click here for link

It's always to good to check around. There may be one forming and not yet listed. Or support groups may have formed but have not become AWAKE groups, just acted on their own. In your area you might call the local sleep study labs, they should know. Local DMEs may know as well.

I just started a support group in my area. It's slow going, the numbers of participants varies. But there's something else to consider besides how many show up for meetings. It's possible that your group could be the spokesmen for sleep apnea in your area. People could phone you and ask questions, or you could help to educate the community in some way, such as with newspaper articles or such.

It's true that local support groups don't reach large numbers of people. But not everyone uses computers (believe it or not!). And some people prefer to have that more personal one on one meeting to discuss things. Also, if a group is organized fairly well, it can host public meetings showing equipment or getting people to talk. These groups could be a local advocate for people with apnea. I'm putting on a special program later this month. I don't anticipate many to show up. But there will be an article in the newspaper and someone has mentioned sleep apnea on our local community cable channel. If one or two people learn from these, it's worth it. Support groups provide a different way to reach people and discuss the concerns. It's always good to have a choice.


Linda