French Nurse Expert in Apnea's Treatment, don't understand..

[The Choker]

I LOVE this Forum. Just reading this thread makes me so happy and fortunate to have found this before I started treatment and to have the resource as I go forward in my treatment. The back and forth is such a balancing facet. Thank you to all of you who give of your time to help us.

Frenchie Nurse will stop by to see you Tuesday late afternoon.

[Baron]

I'm sure that our French Nurse would be startled to hear that, since receiving my CPAP in the mail a month ago, I have had a total of 40 minutes of professional guidance on its use (a first 30 minute set-up phone call with a respiratory therapist and a second 10 minute follow-up a week later.) No involvement from my sleep doctor at all -- there is a two-month wait to get an appointment with him, so I still have a month to go before I actually will get my 15 minutes of time with him!

And I have top-tier private health insurance through my employer (a luxury many Americans don't enjoy.)

That's why so many folks (including me) are eagerly drawn to a patient-to-patient support community like this, because it is the best option we have.

[avi123]

Yannou971, if you want to, you could post in French language, and those French Canadians members could reply.

[CowFish]

That's why so many folks (including me) are eagerly drawn to a patient-to-patient support community like this, because it is the best option we have.

Are expectations of the medical profession unreasonable? Starting out with CPAP, I spent hours reading here about tricks to prevent leaks, ideas on comfort, how to hang the hose, how to figure out the correct humidity setting, machine comfort settings, best sleeping position, most comfortable pillows, how to fine tune the pressure settings the lab prescribed and many other things.

Who can afford to pay the medical profession to spend hours with them? No one that I know.

I am very thankful that we have a forum that helped me get everything dialed in over a few weeks time. It's the best way.

[JustinD9]

For the patients in the second way ( They selfpaid their traitment)
Do you think they would be ready to pay monthly fee to be personaly followed-up ?

answering for someone in Australia I would say (in contrast to some of the other answers here) that there is definitely a segment in would utilise such a service. Determining a price point that would work for someone such as yourself or organisation and also work for the apnea sufferer (If I can use such a term) is another thing.

Whilst most of the people that frequent this forum are resourceful, independent, and sufficiently tech savvy to provide the right data to get feedback on this forum and then able to execute on the advice, many sufferers of apnea trying to use CPAP are not. I would guess that this group (that use this forum) is probably not representative of the majority of CPAP users - they do not represent the middle of the bell curve, so to speak.

There are many people who are diagnosed with apnea in later life and do not have the skills or cognitive ability to execute on much mentioned here as it largely derives from interpreting the data. These are the people that would benefit from such a service. Again, whether these people could afford such a service is another thing.

So while many people have been dismissive of such an offering you mention it certainly has a place in supporting apnea sufferers (certain segment).

[Hang Fire]

much mentioned here as it largely derives from interpreting the data

Your statement is belied by the testimonial immediately above it:

tricks to prevent leaks, ideas on comfort, how to hang the hose, how to figure out the correct humidity setting, machine comfort settings, best sleeping position, most comfortable pillows, how to fine tune the pressure settings the lab prescribed and many other things.

CowFish learned much more than "interpreting data".

[zoocrewphoto]

You look aggressive I don't know why. I was here to have some informations . . .

I have still an job in my compagny SOS Oxygene . . . You can check it on Internet.

The difference between a forum and a professionnal is ... Experience . . .

Except you have it backwards. It is the forum with experience, NOT the doctors, nurses, etc. Most of them have never worn a cpap mask. They may know definitions, numbers, theories, etc; but they don't know how to deal with the typical mask issues.

Most of the new people who come here with problems are here because the professionals couldn't help them. They needed assistance from people with real experience.

For example, many people have mask leaks. When I started, I had a mask leak issue. With a few questions from experienced people here,, they knew what the problem was and how to fix it.

Sometimes, the new person might be experiencing an odd problem, but with so many experienced USERS here, somebody will recognize the problem, such as a missing piece that fell off the mask, a clogged filter, a stuck exhaust valve, etc.

One of the most common problems for new people is a starting pressure that is too low. Yet, many doctors (professionals) prescribe a starting pressure of 4 or 5. We wouldn't have this common problem if doctors had a clue what was comfortable.

Have YOU slept with a cpap mask? How long?

That's the kind of experience that new people need.

[chunkyfrog]

Zoocrew; truer words are rarely said.
+1,000,000,000,000. --And then some.

[ChicagoGranny]

Zoocrew, That is very well said.

[Titan]

An Aussie here. There is a viable setup in my area that covers what I think French Nurse is asking

A Nurse (who has sleep apnoea) runs an Air Liquide Healthcare CPAP shop. It is integrated with a chain (Snore Australia) that offers at-home or in-hospital sleep studies. The demographic of the area is elderly - a decent proportion are not regular computer users. In my experience in other areas of healthcare, they are not particularly motivated to DYI as they are used to health-care professionals being readily available.

To the best of my knowledge, the nurse is involved in supplying equipment and instruction for the sleep studies, supplying equipment, and giving ongoing support. I'm not sure if the ongoing support involves any fee, although potentially the large margins on CPAP gear in Australia may be generous enough to cover that.

Air Liquide is a French multinational, which might give French Nurse a head start if she wishes to explore this further