cpap makes me feel worse

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
not happy

cpap makes me feel worse

Post by not happy » Thu Mar 31, 2016 4:33 pm

I've used my cpap machine for 3 months and it only makes me feel worse. even when I only have 3 events an hour.
I am skinny, never had a problem sleeping. Didn't know I had a problem. My girl friend said I stop breathing at night so I had a sleep study done.
they said I stopped breathing 43 times an hour. So now I have a cpap machine and I feel horrible. Always tired now. Complete opposite of what should be happening.
My sleep dr was a Jack ass and wouldn't answer any questions, that cost me 350 bucks. Mitchell medical supply sucks. wont let me try masks and they know absolutely nothing except badgering for me to buy more supplies when I don't need any. this whole thing sucks......

Mopheus
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Re: cpap makes me feel worse

Post by Mopheus » Thu Mar 31, 2016 4:45 pm

You sound like I was. You need to post info about your machine. Get sleepyhead software, Folks here can help you set it up.
I went from inconsistent AHI 3-6, and felt like crap. I've slowly increased my pressure, I am finally getting my first week of AHI being less than one, even a couple 0.3 s. Don't give up, you are at the right spot

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robysue
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Re: cpap makes me feel worse

Post by robysue » Thu Mar 31, 2016 4:53 pm

not happy,

Do you want help or do you just want to vent?

If you just need to vent, you may be relieved to know that you are not the only one who has gone through what you're going through. I felt absolutely horrible (as in 100 times worse) after starting CPAP and I felt that horrible for 6 whole months after starting therapy.

But I was determined to make it work and the good folks here were critical in helping me get through a horrendous adjustment period. So if you want help, we can provide that. But if you want help, you've got to meet us part way by telling us the following information:

1) What machine are you using (make and model)? What are the settings?

2) What mask are you using (make and model)?

3) What are your specific issues with therapy? I know you feel awful, but if you want help, we need to know whether the problem is: Can't fallasleep with the equipment? Can't stay asleep with the equipment? Discomfort caused by fighting leaks? Discomfort caused by not enough air? Discomfort caused by too much air? Dry mouth? Dry nose? Sore nose? Air blowing in the eyes and irritating them? And so on and so forth.

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Wulfman...
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Re: cpap makes me feel worse

Post by Wulfman... » Thu Mar 31, 2016 5:13 pm

not happy wrote:I've used my cpap machine for 3 months and it only makes me feel worse. even when I only have 3 events an hour.
I am skinny, never had a problem sleeping. Didn't know I had a problem. My girl friend said I stop breathing at night so I had a sleep study done.
they said I stopped breathing 43 times an hour. So now I have a cpap machine and I feel horrible. Always tired now. Complete opposite of what should be happening.
My sleep dr was a Jack ass and wouldn't answer any questions, that cost me 350 bucks. Mitchell medical supply sucks. wont let me try masks and they know absolutely nothing except badgering for me to buy more supplies when I don't need any. this whole thing sucks......
Yeah, yeah........ "Woe is me!!!" We've heard this story thousands of times before.
You need to take control of your own therapy and figure it out, yourself. Bitching about the doctor and the medical supply place isn't going to help you at all. In fact, if you keep that attitude, trying to deal with them will probably assure you that it will get progressively worse.

You didn't bother to register on the forum.
You didn't tell us what specific machine and mask you're using.
You didn't tell us what the settings on the machine are.
You didn't tell us if you have a data-capable machine.
You didn't tell us if you're able to monitor your therapy with software.

Basically, you haven't told us ANYTHING!

You want help? Give us something to go on and we'll be glad to try to help you.

And, just because you're "skinny" doesn't mean diddly squat. Lots of people with Sleep Apnea are "skinny" to "normal" size.
And, this condition isn't about "sleeping problems", it's a BREATHING PROBLEM while you sleep.


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
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jim22
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Re: cpap makes me feel worse

Post by jim22 » Thu Mar 31, 2016 8:02 pm

Not knowing better, let's assume you are young and currently healthy. It's great that you figured out at this point that you have sleep apnea so you can get it under control and stay healthy! Now, register and give us specific info on what you are having trouble with so we can help. If you are like me, you will still be acclimating to CPAP a year from now. It slowly gets better over a long time once we help you solve the immediate problems.
Jim

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Resmed Airsense 10 Autoset, Swift FX nasal pillows mask

Lucyhere
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Re: cpap makes me feel worse

Post by Lucyhere » Thu Mar 31, 2016 10:23 pm

Wulfman... wrote:
not happy wrote:I've used my cpap machine for 3 months and it only makes me feel worse. even when I only have 3 events an hour.
I am skinny, never had a problem sleeping. Didn't know I had a problem. My girl friend said I stop breathing at night so I had a sleep study done.
they said I stopped breathing 43 times an hour. So now I have a cpap machine and I feel horrible. Always tired now. Complete opposite of what should be happening.
My sleep dr was a Jack ass and wouldn't answer any questions, that cost me 350 bucks. Mitchell medical supply sucks. wont let me try masks and they know absolutely nothing except badgering for me to buy more supplies when I don't need any. this whole thing sucks......


You didn't bother to register on the forum.

*** Could be he didn't know to do that, and he sounds pretty miserable and confused... give him a pass, please.


You didn't tell us what specific machine and mask you're using.

***Could be he didn't know that would be necessary... another pass, please.


You didn't tell us what the settings on the machine are.

***Could be he has no idea what the word, "settings" on a CPAP machine means.


You didn't tell us if you have a data-capable machine.

***Could be he has no idea what data-capable even means.


You didn't tell us if you're able to monitor your therapy with software.

***Could be he knows zip about monitoring therapy or software.



Den... could be his doctor is an idiot, explained nothing (which is what it seems) and his DME is even worse. I know for sure he sounded a bit like me when I first found this forum.

Before we decide this guy isn't worth the forum's time, how about we wait and see what he says if he returns.
Resmed AirSense 10 Autoset for her w/humid air/heated Humidifier
Bleep/P10

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Re: cpap makes me feel worse

Post by Very annoyed » Thu Mar 31, 2016 10:25 pm

Wulfman... wrote:
not happy wrote:I've used my cpap machine for 3 months and it only makes me feel worse. even when I only have 3 events an hour.
I am skinny, never had a problem sleeping. Didn't know I had a problem. My girl friend said I stop breathing at night so I had a sleep study done.
they said I stopped breathing 43 times an hour. So now I have a cpap machine and I feel horrible. Always tired now. Complete opposite of what should be happening.
My sleep dr was a Jack ass and wouldn't answer any questions, that cost me 350 bucks. Mitchell medical supply sucks. wont let me try masks and they know absolutely nothing except badgering for me to buy more supplies when I don't need any. this whole thing sucks......
Yeah, yeah........ "Woe is me!!!" We've heard this story thousands of times before.
You need to take control of your own therapy and figure it out, yourself. Bitching about the doctor and the medical supply place isn't going to help you at all. In fact, if you keep that attitude, trying to deal with them will probably assure you that it will get progressively worse.

You didn't bother to register on the forum.
You didn't tell us what specific machine and mask you're using.
You didn't tell us what the settings on the machine are.
You didn't tell us if you have a data-capable machine.
You didn't tell us if you're able to monitor your therapy with software.

Basically, you haven't told us ANYTHING!

You want help? Give us something to go on and we'll be glad to try to help you.

And, just because you're "skinny" doesn't mean diddly squat. Lots of people with Sleep Apnea are "skinny" to "normal" size.
And, this condition isn't about "sleeping problems", it's a BREATHING PROBLEM while you sleep.


Den

.

Den, you're such a jerk. The poor guy is new and all you do is slam him for not meeting your expectations of what he should know.

Ass.

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Goofproof
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Re: cpap makes me feel worse

Post by Goofproof » Thu Mar 31, 2016 10:38 pm

Very annoyed wrote:
Wulfman... wrote:
not happy wrote:I've used my cpap machine for 3 months and it only makes me feel worse. even when I only have 3 events an hour.
I am skinny, never had a problem sleeping. Didn't know I had a problem. My girl friend said I stop breathing at night so I had a sleep study done.
they said I stopped breathing 43 times an hour. So now I have a cpap machine and I feel horrible. Always tired now. Complete opposite of what should be happening.
My sleep dr was a Jack ass and wouldn't answer any questions, that cost me 350 bucks. Mitchell medical supply sucks. wont let me try masks and they know absolutely nothing except badgering for me to buy more supplies when I don't need any. this whole thing sucks......
Yeah, yeah........ "Woe is me!!!" We've heard this story thousands of times before.
You need to take control of your own therapy and figure it out, yourself. Bitching about the doctor and the medical supply place isn't going to help you at all. In fact, if you keep that attitude, trying to deal with them will probably assure you that it will get progressively worse.

You didn't bother to register on the forum.
You didn't tell us what specific machine and mask you're using.
You didn't tell us what the settings on the machine are.
You didn't tell us if you have a data-capable machine.
You didn't tell us if you're able to monitor your therapy with software.

Basically, you haven't told us ANYTHING!

You want help? Give us something to go on and we'll be glad to try to help you.

And, just because you're "skinny" doesn't mean diddly squat. Lots of people with Sleep Apnea are "skinny" to "normal" size.
And, this condition isn't about "sleeping problems", it's a BREATHING PROBLEM while you sleep.


Den

.

Den, you're such a jerk. The poor guy is new and all you do is slam him for not meeting your expectations of what he should know.

Ass.
The Pity Party meets the second Thursday of the week, just down the street from the cementary, always room in the back for new members, or you can put on a different attitude, and decide you want to live longer and healthier. We meet here 24/7, 7 days a week, no cover charge, but we can't push a button and help you. First you must want help, then you have to do the hard part, convince yourself you can make it work. Then you are ready to get the help you need.

You just need to decide weather you want to attend the Party or live better and longer. Jim
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

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cathyf
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Re: cpap makes me feel worse

Post by cathyf » Thu Mar 31, 2016 10:41 pm

not happy, one really good thing is to be able to keep a sense of humor in all this. You know, even for those of us who are doing really well on this therapy, we have an occasional crappy night. There are enough of us here that on any random day there are at least a couple of us who had a bad night last night and are really cranky. And Lord knows you have every right to be brain-fogged and crabby!

So try to ignore the crankiness and listen to the helpful people. I've seen people here turn around the crappiest situations with their knowledge and experience.

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Wulfman...
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Re: cpap makes me feel worse

Post by Wulfman... » Thu Mar 31, 2016 10:46 pm

Very annoyed wrote:
Wulfman... wrote:
not happy wrote:I've used my cpap machine for 3 months and it only makes me feel worse. even when I only have 3 events an hour.
I am skinny, never had a problem sleeping. Didn't know I had a problem. My girl friend said I stop breathing at night so I had a sleep study done.
they said I stopped breathing 43 times an hour. So now I have a cpap machine and I feel horrible. Always tired now. Complete opposite of what should be happening.
My sleep dr was a Jack ass and wouldn't answer any questions, that cost me 350 bucks. Mitchell medical supply sucks. wont let me try masks and they know absolutely nothing except badgering for me to buy more supplies when I don't need any. this whole thing sucks......
Yeah, yeah........ "Woe is me!!!" We've heard this story thousands of times before.
You need to take control of your own therapy and figure it out, yourself. Bitching about the doctor and the medical supply place isn't going to help you at all. In fact, if you keep that attitude, trying to deal with them will probably assure you that it will get progressively worse.

You didn't bother to register on the forum.
You didn't tell us what specific machine and mask you're using.
You didn't tell us what the settings on the machine are.
You didn't tell us if you have a data-capable machine.
You didn't tell us if you're able to monitor your therapy with software.

Basically, you haven't told us ANYTHING!

You want help? Give us something to go on and we'll be glad to try to help you.

And, just because you're "skinny" doesn't mean diddly squat. Lots of people with Sleep Apnea are "skinny" to "normal" size.
And, this condition isn't about "sleeping problems", it's a BREATHING PROBLEM while you sleep.


Den

.

Den, you're such a jerk. The poor guy is new and all you do is slam him for not meeting your expectations of what he should know.

Ass.
Well, Ass, why didn't YOU offer to help him?

It's also not being a "jerk", to ask somebody for some information when they didn't offer up any.

How many posts have we seen over the years where the person says they HATE this therapy or it SUCKS and on and on.
If people feel the need to act like whiny little kids, that's how they should be treated.
This is a life-saving therapy and people need to take it seriously. Instead of acting like whiners, they need to learn how to ask in a "nicer" way.
If WE are expected to be all "nicey nice" why can't we expect the same of those who try to verbally assault US?
If they're going to have an "attitude" when they post "NOTHING" of substance, they can expect the same in return.

It's not that hard to register here.
And, without some background information, how are we supposed to help these people try to solve their issues?
I can think of probably a dozen reasons why this person is having so much trouble with his therapy, but without knowing anything substantive, it's pretty hard to put forth any possible solutions.


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

Very annoyed
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Re: cpap makes me feel worse

Post by Very annoyed » Thu Mar 31, 2016 10:52 pm

Den - your approach is rough and abrasive. You can ask a newbie to post the information you need to help, but without being a big jerk about it. Basically, like I said before, you're an ass.

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Wulfman...
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Re: cpap makes me feel worse

Post by Wulfman... » Thu Mar 31, 2016 10:58 pm

Lucyhere wrote:Den... could be his doctor is an idiot, explained nothing (which is what it seems) and his DME is even worse. I know for sure he sounded a bit like me when I first found this forum.

Before we decide this guy isn't worth the forum's time, how about we wait and see what he says if he returns.
More than likely, his doctor IS an idiot. I had a sleep doctor who was a jerk, too.
But, ranting about how much he dislikes this therapy and those who he's dealt with........to the people who may possibly be willing to offer him some positive solutions........doesn't make sense to me.
And, then, he never actually asked any questions........did he?........just ranted.

Whatever became of an approach like "Would you please help me?"


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

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Wulfman...
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Re: cpap makes me feel worse

Post by Wulfman... » Thu Mar 31, 2016 11:04 pm

Very annoyed wrote:Den - your approach is rough and abrasive. You can ask a newbie to post the information you need to help, but without being a big jerk about it. Basically, like I said before, you're an ass.
Only when dealing with "rough and abrasive". Like I've said many times before, if people come here with an "attitude", they receive a response in like kind.
If they come here and genuinely ask for help in a nice way (which this person didn't.....only bitching), they'll receive a VERY nice response and LOTS of help. It's that simple.


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05

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Goofproof
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Re: cpap makes me feel worse

Post by Goofproof » Thu Mar 31, 2016 11:25 pm

XPAP treatment won't work until you can get your brain to see the need for the treatment. After that it still won't work well, until you use it correctly, unfortunately for many of us, we are left to figure it out for ourselves.

That involves getting a XPAP that collects full data, and the software to read that data. Then you have to put in the effort to understand and tweak your treatment.

For many it's easier to wail at the moon, but that doesn't make their health better. The faster you get with the program the better life becomes. Jim
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

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Cavalier
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Re: cpap makes me feel worse

Post by Cavalier » Thu Mar 31, 2016 11:37 pm

There are so many different variables with XPAP therapy that with just a bit of adjustment can make a world of difference. Lurking here, I learned so much about taking charge of my equipment and making necessary changes that made a HUGE difference in how I felt. This was info I would never have gotten elsewhere (at least not easily). Read some of the stickies and find the clinical manual for your machine. Learn to adjust it to meet your needs. If you specify what equipment you have, someone is bound to post a link for you to check out.
Given enough sleep....I could rule the world.