Help please with large mask leaks and runaway pressure

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johnrrr
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Help please with large mask leaks and runaway pressure

Post by johnrrr » Tue Mar 08, 2016 9:39 am

Hi,

This is a follow on from this thread - viewtopic.php?f=1&t=110693&start=30

It was recommended that I try increasing my min pressure from 7, which I did (to 9) and to put my max at 20 on the basis it wouldn't go past what was needed.

I've done this for the last two nights and had huge leaks, and the pressure has ended up at 20 both nights. It's been very uncomfortable, woke me up several times, and led to a higher AHI than normal.

Any time I set my max higher, I always ended up hitting it, regardless of the number. But this massive leaking isn't normal.

At a lower level, the mask seems fine.

Any idea why this is happening? Is the pressure causing the mask to leak, leading to more pressure - a runaway effect? The mask seems to fit ok otherwise.

Is there anything in these (composite) screenshots that suggests what could be wrong?

The only thing I've done differently in the last two nights is follow the advice to try sleeping propped up a bit more, so I've used two pillows instead of the normal one.


Image

Image

Thanks
John

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Julie
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Re: Help please with large mask leaks and runaway pressure

Post by Julie » Tue Mar 08, 2016 9:42 am

Hi, is there a reason you haven't(?) tried a FF mask? You need to make some change, and more pressure may aggravate leaks if anything. By sleeping propped up as well, if your head falls forward you can cut off your airway, and a soft cervical collar can help keep it up, airway more open and jaw (if not lips) more closed.

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Re: Help please with large mask leaks and runaway pressure

Post by johnrrr » Tue Mar 08, 2016 10:27 am

Thanks Julie. I did try a FF mask when I first started (a Philips ComfortGel Blue) and I still have it, but it cut my nose and wasn't comfortable. I breathe through my nose so in theory a nasal pillow should be ok.

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Julie
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Re: Help please with large mask leaks and runaway pressure

Post by Julie » Tue Mar 08, 2016 10:32 am

Theory's great, but if it doesn't work... there are so many FFMs out there now, I would definitely give some a trial (free x 30 days from Cpap.com except for a small insce. fee), including things like the Hybrid. You need to change something.

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LSAT
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Re: Help please with large mask leaks and runaway pressure

Post by LSAT » Tue Mar 08, 2016 10:36 am

Who's watching you while you sleep to know that you are not mouth breathing? Use the FF mask with a nose pad...available at cpap.com... and/or a mask liner.

johnrrr
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Re: Help please with large mask leaks and runaway pressure

Post by johnrrr » Tue Mar 08, 2016 10:39 am

Julie wrote:Theory's great, but if it doesn't work... there are so many FFMs out there now, I would definitely give some a trial (free x 30 days from Cpap.com except for a small insce. fee), including things like the Hybrid. You need to change something.
Yes, something needs to change but I don't understand why my pressure is always max'ing out and so far I've not read or heard a good explanation for what that could be.

Is it the mask? Could it be the machine being faulty (ie is second hand, physically good condition, not that many hours on it)? Something else?

Sadly Cpap.com don't ship to Spain.

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johnrrr
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Re: Help please with large mask leaks and runaway pressure

Post by johnrrr » Tue Mar 08, 2016 10:40 am

LSAT wrote:Who's watching you while you sleep to know that you are not mouth breathing? Use the FF mask with a nose pad...available at cpap.com... and/or a mask liner.
My partner has never seen me breath through my mouth when I've been asleep. Before I was diagnosed she did see me NOT breathing

Cpap.com don't ship to my country.

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Julie
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Re: Help please with large mask leaks and runaway pressure

Post by Julie » Tue Mar 08, 2016 10:45 am

Cpap.com may not ship there, but you can at least get an idea of what's out there, and then investigate availability in Spain. Besides, there are other dealers who will ship to you I'm sure. Your pressure may be up for various reasons, but one you know of for sure is leaking, so why not at least deal with that and see where things stand? And your partner is not the best way to judge after all - may be sleepy herself, may not appreciate how much can be lost through lips, etc. etc. YOU asked for help with leaks...

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Re: Help please with large mask leaks and runaway pressure

Post by johnrrr » Tue Mar 08, 2016 11:05 am

Julie wrote:Cpap.com may not ship there, but you can at least get an idea of what's out there, and then investigate availability in Spain. Besides, there are other dealers who will ship to you I'm sure. Your pressure may be up for various reasons, but one you know of for sure is leaking, so why not at least deal with that and see where things stand? And your partner is not the best way to judge after all - may be sleepy herself, may not appreciate how much can be lost through lips, etc. etc. YOU asked for help with leaks...
Yes I did ask for help with leaks, and I'm grateful for any responses, but simply saying try more masks isn't the only answer I would like. That's why I posted my data in the hope someone might be able to see something in it.

My partner is currently suffering from a physical injury so is awake a fair bit during the night, sadly. She has watched me a lot of times and my mouth is always closed.

The leaking is not consistent. It has gone worse in the last two nights. Most recent % of time above leak threshold is 18.31%, last week 12.29%, 30 days 8.9%. Average leak rate - most recent 13.56, last week 8.82, 30 days 6.46.

If there is no advice from the data, and the only answer is try more masks, then fine, but I keep reading 'post your data' and people will offer expert advice.

I've tried three masks so far in 2 months. They aren't cheap. No one in Spain that I have seen offers trials. I don't want to keep spending money on new masks if that isn't the problem.

Thanks

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Re: Help please with large mask leaks and runaway pressure

Post by robysue » Tue Mar 08, 2016 12:24 pm

johnrrr wrote:Hi,

This is a follow on from this thread - viewtopic.php?f=1&t=110693&start=30

It was recommended that I try increasing my min pressure from 7, which I did (to 9) and to put my max at 20 on the basis it wouldn't go past what was needed.
It's been my personal experience that if my AutoBiPAP is running wide open, it will increase the pressure more than is necessary under certain circumstances. In looking at the data that lots and lots of people have posted here through the years I've been on the forum, I've seen lots of examples where an APAP running wide open increase the pressure more than is needed. It's not common, but it's also not exactly rare either.

And one problem with an APAP increasing the pressure too much is that when the pressure is too high, that can all by itself increase certain kinds of "unstable" breathing, which the machine misinterprets as sleep disordered breathing, which leads to more pressure, which leads to more unstable breathing, and so on and so forth.

As I said before, this doesn't commonly happen, but it does happen frequently enough where it's not exactly rare or unheard of.
I've done this for the last two nights and had huge leaks, and the pressure has ended up at 20 both nights. It's been very uncomfortable, woke me up several times, and led to a higher AHI than normal.
I would strongly suggest that you reduce the max pressure back down to where it was before this experiment. On the other thread you posted something that indicated your machine was either running in APAP 7-10cm or running in CPAP at 10cm. (There was some confusion about this).

I'd suggest that if you are wanting to dial-wing that you limit the max pressure to something like 10-12 cm at least at the start.
Any time I set my max higher, I always ended up hitting it, regardless of the number. But this massive leaking isn't normal.

At a lower level, the mask seems fine.
When you run an APAP with an exceptionally wide range (like 9-20), you fit the mask at the beginning of the night at low pressure. Once the pressure increases dramatically, it's not uncommon for the mask seal to spring some leaks. It's also not uncommon for the extra pressure to force it's way into the mouth and that can then encourage mouth breathing, which leads to large leaks.
Any idea why this is happening? Is the pressure causing the mask to leak, leading to more pressure - a runaway effect? The mask seems to fit ok otherwise.
Not quite.

Usually CPAPs are not programmed to increase the pressure level[/v] in response to Large Leaks. But it will increase the air flow through the mask in an attempt to maintain the current pressure setting. (This can feel like it's increasing the pressure if you're awake when it happens.) In fact, some APAPs, like the PR S1 APAPs, are programmed to decrease the pressure level if a large leak lasts for a certain amount of time with the idea that the mask has a better chance of "resealing" itself at the lower pressure setting.

I'm not familiar enough with the Icon's Auto algorithm to understand why it would react to large leaks the way your data suggests. However, there are also good evidence that what's causing the pressure increases are events scored by your machine, as shown by the boxes I've added to your data:
Image

In other words, what I think is happening is this:

Your machine is detecting events and raising the pressure in response to those events. And the increased pressure leads to leaks. Which leads to increased restlessness and possibly some so-called sleep-wake-junk (SWJ) periods where you are drifting in and out of sleep and the breathing is just plain not as stable as regular sleep breathing is. Which leads to the machine mis-interpreting the SWJ breathing as real sleep disordered breathing. Which leads to more pressure increases. Which leads to more leaks. And so on and so forth.

Is there anything in these (composite) screenshots that suggests what could be wrong?
Biggest oddity that I see in the data is that your Icon never lowers pressure after the clusters of events end and the breathing is presumably stabilized. Specifically, between 4:00 and 5:30, there's nothing going on in the Event table to indicate the breathing is still unstable. So why didn't the Icon start to lower the pressure back down toward the minimum pressure setting of 9cm? Both a Resmed APAP and a PR APAP would have reduced the pressure during that hour and a half without any events. So why didn't the Icon?
The only thing I've done differently in the last two nights is follow the advice to try sleeping propped up a bit more, so I've used two pillows instead of the normal one.
That could make the mask more unstable on your face.

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johnrrr
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Re: Help please with large mask leaks and runaway pressure

Post by johnrrr » Tue Mar 08, 2016 12:52 pm

Thanks so much for your reply RubySue. A lot to digest there so I'll re-read it again later.

Tonight I'll lower the max pressure a bit and go back to one pillow.

One thing that does jump out about what you've said though is why does it not go down again. In the two months or so I've been using it, it's only go down a few times (3 nights or so). The rest is only ever upwards and never back down...

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Re: Help please with large mask leaks and runaway pressure

Post by palerider » Tue Mar 08, 2016 3:42 pm

johnrrr wrote:Any idea why this is happening? Is the pressure causing the mask to leak, leading to more pressure - a runaway effect? The mask seems to fit ok otherwise.

Is there anything in these (composite) screenshots that suggests what could be wrong?
you're missing the cause and effect here.

higher pressure can cause the mask to leak more, this DOES NOT CAUSE PRESSURE INCREASES.

you're still having apneas and hypopneas these DO cause pressure to increase.

pressure will keep increasing until the apneas and hypopneas stop happening, or until you hit the max allowed pressure.

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Re: Help please with large mask leaks and runaway pressure

Post by robysue » Tue Mar 08, 2016 3:50 pm

johnrrr wrote: One thing that does jump out about what you've said though is why does it not go down again. In the two months or so I've been using it, it's only go down a few times (3 nights or so). The rest is only ever upwards and never back down...
Was the machine set to APAP mode by the durable medical equipment provider (i.e. the DME) who set up your machine? If so, it may be worth asking them about why your machine is so reluctant to lower the pressure back down once your breathing is stabilized.

For a better understanding of how much the various APAP algorithms can vary, you might want to look at this article from Sleep Review: http://www.sleepreviewmag.com/2009/09/a ... -pressure/ The article is somewhat old (2009) and the machines tested are now 2 or 3 generations "old", but I've not been able to find a more recent benchmark study in the little bit of Googling I've had time for today. And most manufacturers don't make big changes in the Auto algorithm from one generation to the next. So my guess is that the F&P Icon's Auto algorithm still looks a lot like F&P SleepStyle 220, which was the cutting edge F&P Auto CPAP back in 2009. You will notice that the SS 220 was the most aggressive of the 2009-era APAPs at responding to flow limitations AND it was also the slowest to reduce the pressure back down after breathing stabilized.

If the Icon's Auto algorithm is still pretty much like the SS 220's, that might go a long way in explaining why your machine keeps ramping the pressure up and up and up. And since the excess pressure really does bother your stomach and is not improving the quality of your sleep OR your AHI data, there's a big argument to be made for restricting the max pressure on your machine to something more reasonable than 20cm, which you don't seem to actually need.

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Re: Help please with large mask leaks and runaway pressure

Post by robysue » Tue Mar 08, 2016 3:54 pm

palerider wrote:
johnrrr wrote:Any idea why this is happening? Is the pressure causing the mask to leak, leading to more pressure - a runaway effect? The mask seems to fit ok otherwise.

Is there anything in these (composite) screenshots that suggests what could be wrong?
you're missing the cause and effect here.

higher pressure can cause the mask to leak more, this DOES NOT CAUSE PRESSURE INCREASES.

you're still having apneas and hypopneas these DO cause pressure to increase.
Yes, johnrrr is have some clusters of events, but he is not having huge numbers of apneas and hyponeas in those events AND his machine did not lower the pressure at all during a 90 minute stretch of event-free sleep. And that's unusual to say the least.

In other words, it seems to me that johnrrr's machine is reacting in an overly aggressive fashion to the events that are occurring and it's still a mystery why the machine does not lower the pressure after the events clear up and the breathing is presumably stable.

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Re: Help please with large mask leaks and runaway pressure

Post by palerider » Tue Mar 08, 2016 4:11 pm

robysue wrote:In other words, it seems to me that johnrrr's machine is reacting in an overly aggressive fashion to the events that are occurring and it's still a mystery why the machine does not lower the pressure after the events clear up and the breathing is presumably stable.
it could be, I don't have enough experience looking at icon charts to have a good feel as to how the machines normally behave.

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