Panic at thought of CPAP.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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robysue
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Re: Panic at thought of CPAP.

Post by robysue » Mon Feb 29, 2016 4:09 pm

WindCpap wrote: I would disagree with those who are saying your anxiety and denial are not normal.
Denial is not uncommon and I don't think Snoopchick's denail is any worse than normal.

But Snoopchick's description of the anxiety she has when anything comes close to touching her nose is abnormal. She says that it's a problem when she's dressing herself and has to pull something over her head. And she says she's been this way for years. This is more than usual "I'm worried about the whole hose/mask" thing.
WindCpap wrote:CPAP really does seam 100 times worse in your mind than it really is.
Agreed. And I say that as someone who took months to finally get used to CPAP.
WindCpap wrote:I had similar issues and worked through them but it takes a bit of time. Perhaps you can schedule your titration for a month or two from now and give yourself the time to get over the denial.
Depending on the severity of Snoopchick's apnea, this is a reasonable piece of advice. As long as she takes that time and spends it figuring out how to get to the point where she can stand the thought of something touching her nose.

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Re: Panic at thought of CPAP.

Post by Gasper62 » Mon Feb 29, 2016 4:53 pm

I'd suggest getting some professionally administered aversion/phobia therapy, if it can result in hopeless arachnophobes cuddling up with tarantulas......... I am fairly sure that contact with some benign silicone would be a piece of cake. Then again, maybe not. Planning to fail could prove to be a detriment. Good luck in getting a handle on your problem.

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Re: Panic at thought of CPAP.

Post by robysue » Mon Feb 29, 2016 4:58 pm

Snoopchic wrote:I'm supposed to go see him [the doctor] tomorrow, don't know what to say when I go to that either :/
Please see the doc tomorrow regardless of whether you try to do the titration test tonight or not.

With a bit of luck, you will be able to ask the doc to show you the full sleep report. And have him explain what all the graphs and numbers on the sleep study report mean. Ask for a copy of the sleep study report for your records even if you have to pay a few dollars for it. And if you don't understand what the report's data is saying, then post it here and we'll help you understand it.
I just don't see how we can, as humans, all of a sudden not sleep at night!?!
Your sleep did NOT just deteriorate "all of a sudden". People with OSA develop the problem over months or years.

In normal human physiology, our flexible upper airway and it's interaction with our upper palate, our tongue, and our uvula is a bit vulnerable to begin with, but those vulnerable structures are what allows us to speak in human languages. In a normal human being, the muscles that keep the airway open when we are asleep relax, and they relax enough where even a normal human being occasionally has an apnea. But in some people, those muscles relax too much. Or our tongue is a bit larger than normal. Or our upper palate or uvula is a bit longer than normal. Or our upper airway is just smaller than normal. And some combination of these bits of "bad luck" combine and cause our upper airway to repeatedly collapse at night. As we get older and as the OSA continues to not be treated, the airway starts to collapse more and more frequently at night. So several years to several decades later, the untreated OSA leads to our airways collapsing dozens or hundreds of times each night in our sleep.

And each time we have an anpea? We have to arouse ourself just enough to restart the breathing. Over and over again all night long. And the result is that we don't sleep well at night because we don't breathe well at night. And that leads to the excessive daytime sleepiness and the constant need for naps. And with those apneas, our bodies stress out physically: Stress hormones are released with each apnea. The apnea is often associated with an O2 desaturation, which leads to physical stress on both the lungs and the heart, which in turn can lead to additional chronic health problems.
It's not logical. I deal in logic, and there is none to this.
I'm a mathematician. So logic is near and dear to my heart. So let's deal in some logic:

How long have you been taking naps in the daytime because you just don't feel rested or restored when you wake up in the morning? Were you sleeping fine one night and then all of a sudden you were no longer sleeping at night, but napping excessively during the day? Or did your night time sleep slowly deteriorate while you assumed that the extra fatigue and the need for naps was because you were taking care of small childern? (Babies do interfer with sleep, but as the kids grow, the sleep should have a chance to return to normal once the kids are sleeping through the night.)

Where's that incredible fear of anything touching your mouth and nose come from? Is there a specific triggering event somewhere in your childhood? Or have you always been like this? Children can have untreated OSA too. And if you happened to have OSA as a kid, it's not unreasonable to posit that the repeated apnea episodes may be the root of your fear of suffocation.

And what's the best way you can stay healthy and happy enough to take care of your daughter and husband in the way you want to? It is NOT logical to simply say, "I should not have to even try to do CPAP because I don't want to deal with my irrational fear of things touching my face." The logical thing to say here is: Let's talk to the doctor and find out just how bad the OSA is. Let's get a referral to someone who can help me conquer my fear of things touching my nose and mouth so that I can make a real effort to try CPAP.

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Re: Panic at thought of CPAP.

Post by ClarkK » Mon Feb 29, 2016 5:59 pm

I am a Sleep Apnea patient who is also being treated for General Anxiety Disorder. For me the anxiety issues go hand in hand with the sleep apnea, and may even have emerged because of the "flight or fight" response to apnea events.

During my second sleep study (titeration) after my severe sleep apnea diagnosis, I was assisted by a sleep technician and tried on a number of masks and was able to practice comfortably with a P10 nasal pillow. Once I was all hooked up and on the CPAP, I was able to drift off to sleep for them to begin the study. As they began manipulating settings for the test, my airway collapsed and I immediately shot up and pulled the mask (and much of the other stuff they had attached to me) off in a frenzy. This was my first ever full out panic attack. After spending an hour trying unsuccessfully to calm down, I ultimately signed out as I was unable to put the mask back on and resume the test.

All that said, I understand what it's like to have a panic attack and anxiety -- it's a real thing and it's not something you are likely to escape without help. It might be helpful to work with a therapist and perhaps other professionals with experience working with aversions like the one you have to putting things on your face.

For me, medical professionals were able to bring my panic attacks under control and greatly diminish my anxiety issues. And to avoid another sleep study (I doubt I'll ever be able to handle one again), I was given an Auto CPAP for the Sleep Apnea. As my issue was more the confinement and the lack of air I felt during the sleep study (rather than an aversion to the mask), I was able to start CPAP therapy and have been successful with it for over a year. I now actually look forward to the sensation of being on CPAP!

All I can offer is a bit of understanding -- and a recommendation you seek help working through your aversion to the mask. Sleep Apnea is so hard on your body -- it is absolutely worth finding a way to start using the CPAP -- and there are people who can help!

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Re: Panic at thought of CPAP.

Post by WindCpap » Mon Feb 29, 2016 7:41 pm

Mr. Clark K.

I find your theory about your anxiety being a result of sleep apnea interesting, and i am now wondering if my own claustrophobia may have started with the sleep apnea. I am also wondering if long-term CPAP therapy might cure it. My own big trigger is having anything around my neck, including turtleneck sweaters although the panicky feeling comes on very gradually. I once had to abort a dive (scuba diving) because of anxiety. I later figured out it was a result of an ill-fitting hood that was putting just the wrong pressure around my neck.

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Re: Panic at thought of CPAP.

Post by WindCpap » Mon Feb 29, 2016 7:58 pm

robysue wrote:Depending on the severity of Snoopchick's apnea, this is a reasonable piece of advice. As long as she takes that time and spends it figuring out how to get to the point where she can stand the thought of something touching her nose.
Totally agreed that the time must be spent overcoming the stages, and getting ready for the change. However, I tend not to agree with the "depending on the severity" part. Regardless of the severity, the damage from OSA is fairly slow moving (from my understanding), and I believe it would be well worth while to aim for a long weekend to actually start on CPAP. This removes the "I have to sleep for work" excuse, and helps with the number one piece of advise for anybody starting on CPAP, and that is to never sleep without it once starting.

I came from a position of not thinking it possible to sleep with the CPAP mask on, and this one little piece of information got me sleeping with it more quickly that I ever thought possible. It was a coincidence that I started with my CPAP on the Friday of a long weekend, but after I did, I recommend to anybody that they schedule it that way.

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Re: Panic at thought of CPAP.

Post by Wulfman... » Mon Feb 29, 2016 8:18 pm

WindCpap wrote:
robysue wrote:Depending on the severity of Snoopchick's apnea, this is a reasonable piece of advice. As long as she takes that time and spends it figuring out how to get to the point where she can stand the thought of something touching her nose.
Totally agreed that the time must be spent overcoming the stages, and getting ready for the change. However, I tend not to agree with the "depending on the severity" part. Regardless of the severity, the damage from OSA is fairly slow moving (from my understanding), and I believe it would be well worth while to aim for a long weekend to actually start on CPAP. This removes the "I have to sleep for work" excuse, and helps with the number one piece of advise for anybody starting on CPAP, and that is to never sleep without it once starting.

I came from a position of not thinking it possible to sleep with the CPAP mask on, and this one little piece of information got me sleeping with it more quickly that I ever thought possible. It was a coincidence that I started with my CPAP on the Friday of a long weekend, but after I did, I recommend to anybody that they schedule it that way.
Similar story here. I received my equipment from CPAP.COM earlier in the week and spent some of the week checking it over, going through the menus and generally becoming familiar with it. Then, on that Saturday, I set it up on a table near my recliner and used it there in the living room (watching TV) where I could get used to it. This was even before that method of getting used to it was even discussed on the forum......and a couple of months before I actually joined the forum in 2005.

I spent lots of time with my new "sleeping partner" that weekend.


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Re: Panic at thought of CPAP.

Post by jonny515 » Mon Feb 29, 2016 11:02 pm

It took me a LONG time to process. I felt the sleep clinic was very good in terms of letting me take my time and not telling me to "improve my attitude" and so on. Esp if you don't have a lot of symptoms.

I do think the anxiety you have is severe and something you should get treated. Phobias re: concrete objects is probably the most treatable type symptom.

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Re: Panic at thought of CPAP.

Post by Hang Fire » Tue Mar 01, 2016 7:49 am

WindCpap wrote:I find your theory about your anxiety being a result of sleep apnea interesting
You've made 400 posts in this forum and are just now learning that sleep deprivation and oxygen desats can cause anxiety???

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Re: Panic at thought of CPAP.

Post by kell420 » Tue Mar 01, 2016 9:05 am

I was diagnosed in May of 2015 with OSA my 02 drops to 75% for up to 5 minutes been trying to learn to use the CPAP for awhile now still have lot of trouble. About 2 years ago a co-worker of mine had a stoke and died while she was sleeping from apnea she was only 39 years old. When I heard she died from sleep apnea I didn't believe it I had never heard of that before until I was diagnosed with it OSA. I hope things work out for you.

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Re: Panic at thought of CPAP.

Post by GettingBetter » Tue Mar 01, 2016 2:15 pm

ClarkK wrote:I am a Sleep Apnea patient who is also being treated for General Anxiety Disorder. For me the anxiety issues go hand in hand with the sleep apnea, and may even have emerged because of the "flight or fight" response to apnea events.

During my second sleep study (titeration) after my severe sleep apnea diagnosis, I was assisted by a sleep technician and tried on a number of masks and was able to practice comfortably with a P10 nasal pillow. Once I was all hooked up and on the CPAP, I was able to drift off to sleep for them to begin the study. As they began manipulating settings for the test, my airway collapsed and I immediately shot up and pulled the mask (and much of the other stuff they had attached to me) off in a frenzy. This was my first ever full out panic attack. After spending an hour trying unsuccessfully to calm down, I ultimately signed out as I was unable to put the mask back on and resume the test.

All that said, I understand what it's like to have a panic attack and anxiety -- it's a real thing and it's not something you are likely to escape without help. It might be helpful to work with a therapist and perhaps other professionals with experience working with aversions like the one you have to putting things on your face.

For me, medical professionals were able to bring my panic attacks under control and greatly diminish my anxiety issues. And to avoid another sleep study (I doubt I'll ever be able to handle one again), I was given an Auto CPAP for the Sleep Apnea. As my issue was more the confinement and the lack of air I felt during the sleep study (rather than an aversion to the mask), I was able to start CPAP therapy and have been successful with it for over a year. I now actually look forward to the sensation of being on CPAP!

All I can offer is a bit of understanding -- and a recommendation you seek help working through your aversion to the mask. Sleep Apnea is so hard on your body -- it is absolutely worth finding a way to start using the CPAP -- and there are people who can help!
I agree completely. My anxiety diminished as the breathing issues (my O2 was dropping to 66%) and abruptly startled waking was brought under control. It was a crooked path and one that is different it seems for everyone, but you have to stick with it.

I look forward to putting my mask on at night too! It conveys safety for me, not a threat. I still have moments, but they are nothing compared to before.

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Re: Panic at thought of CPAP.

Post by palerider » Tue Mar 01, 2016 2:54 pm

Hang Fire wrote:
WindCpap wrote:I find your theory about your anxiety being a result of sleep apnea interesting
You've made 400 posts in this forum and are just now learning that sleep deprivation and oxygen desats can cause anxiety???
he's a bit slow like that, but be careful, windy will get all butthurt and start trolling your posts... he's like that. *shaking head*

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Re: Panic at thought of CPAP.

Post by WindCpap » Tue Mar 01, 2016 4:47 pm

Hang Fire wrote:
WindCpap wrote:I find your theory about your anxiety being a result of sleep apnea interesting
You've made 400 posts in this forum and are just now learning that sleep deprivation and oxygen desats can cause anxiety???
If you read my post carefully, I was referring to the reference to the correlation between claustrophobia specifically, and sleep apnea.

Not quite sure why the scolding.

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Re: Panic at thought of CPAP.

Post by jilliansue » Tue Mar 01, 2016 5:26 pm

I did not have too much trouble adjusting to CPAP (BIPAP in my case), but one thing I did to help me fall asleep at first was to take one of those very large, microwavable wraps and heat it and drape it over my side and lower back. It is now 5.5 years later (to the day, I just now realized), and I still have the habit of using a heated wrap at bedtime. Not because I need it to go to sleep, but it has become a habit. A fairly harmless one, I would say. I am not suggesting at all that this is any cure for anxiety or panic, it's just that we all find different things that help us adjust. I now would not consider spending a night without my beloved "Breathie," as my daughter named my machine.

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Re: Panic at thought of CPAP.

Post by Snoopchic » Tue Mar 01, 2016 5:37 pm

I did do the titration test last night, and it was WAY worse than anything I had envisioned. I screamed at them for 2 hours, and threw everything that touched my face. I managed to keep one on, but it hurt and gave me a raging headache all night and day today. It was, by far, the worst thing that I have ever had to do. I couldn't even touch them until I took my Valium, but, of course they wouldn't give me anything, so I had to make my mom, who had just had a biopsy a few hours earlier, drive 1 1/2 hours to get my meds from home. (So, if anyone is wondering they will not ever helping....they just told me to go home...ZERO HELP!!!!!!) After hours of my attempting to sleep they gave me sleeping meds. I DID get a mask on, and it was the worst feeling in the world, I choked and coughed and gagged the whole time. I felt like I was drowning constantly. So, I went to see the doctor today, and he said "You slept better!" Well, of course I did, you DRUGGED ME!!! I don't see how he can use results if the control has 2 things changed to the next. You can't claim that torture device helped me if you don't know if it was that or sleeping pills. Now the whole test is a total waste. Anyway, I made sure to let him know that I do not have the money for all this crap, which I feel even stronger now is a scam...He told me that wasn't a problem, "It won't cost nearly anything like you are thinking." HE IS SUCH A LIAR!! It costs WAY more than even I thought!!! He knows with out a doubt that I would never spend $500 on a machine, AFTER INSURANCE. What a crock of crap. How many people have do they push this crap on and FORCE them to spend this kind of money!?!?!?! He was mad because he told me to read some crap journal CBT thing, which I over and over told him I can't afford $50 to read something....and he thought I wouldn't mind $500 for a machine!?!?!?!?!?!? Anyway, between all of these things, there is no way I will ever even consider it again. This has already cost me $300 and now I have nothing. I feel so taken advantage of. The last few weeks have been the worst of my life. Thank you all here for all the info, unfortunately there is nothing I can do at this point.