New User, Chemically Sensitive

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
LJ Mpls
Posts: 4
Joined: Wed Feb 17, 2016 6:41 am

New User, Chemically Sensitive

Post by LJ Mpls » Wed Feb 17, 2016 7:27 am

I'm chemically sensitive which usually shows up with brain fog, fatigue and lung pain, but 2 weeks out starting my CPAP, I've got such bad pain in my liver area I'm not able to work. I'm thinking spending 8 hours with all those petrochemicals is a huge overload to my system. I'd appreciate support from other chemically sensitive folks who have dealt with this issue. I've seen some posts from others, but rather than wade through them all (I really don't feel well), I have specific questions.

Questions:
Is there a way to offgas my mask/tubes? I washed them when I got them, but obviously that wasn't enough. I was given a Respironics machine and a Wisp nasal mask.

Do others get liver pain using the CPAP? If so, how long did it take you to be able to tolerate it without pain and what did you do to reduce the toxicity?

Thank you!

Thatgirl
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Joined: Wed Sep 17, 2014 2:13 pm

Re: New User, Chemically Sensitive

Post by Thatgirl » Wed Feb 17, 2016 8:07 am

Is it possibly what you think is liver pain is actually gas pain from aerophagia, or swallowing air due to the pressure? What specific machine model do you have?

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LJ Mpls
Posts: 4
Joined: Wed Feb 17, 2016 6:41 am

Re: New User, Chemically Sensitive

Post by LJ Mpls » Wed Feb 17, 2016 9:23 am

Thank you for responding. My machine is:
Philips Respironics DreamStation Auto CPAP Hum HT

Mask is: Philips Respironics Whisp Nasal mask with fabric frame.

I'm brand new to CPAP, so anything could be possible. How would I know if it's those things?

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Sir NoddinOff
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Re: New User, Chemically Sensitive

Post by Sir NoddinOff » Wed Feb 17, 2016 10:32 am

For when you feel better and have some time: I did a search in the search box just below the CPAP logo up above.

I got six pages on chemicals sensitive
I also got six pages on reaction chemicals.

You might also try the search terms allergy chemicals or CPAP plastics offgassing or variations on that.

It's been discussed here many times. I can't remember anybody coming back and telling us what worked for them but that doesn't mean that they haven't come back. Good luck finding a solution. Also: Since you are a member you could PM some of the people in those past posts and ask them if and how they got relief. If they are still around they may have some answers.

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tiredandscared
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Re: New User, Chemically Sensitive

Post by tiredandscared » Wed Feb 17, 2016 11:49 pm

Just off gas it as best as you can. Soak the tubing and the mask and humidifier in vinegar-water solution and see whether it improves. There is only so much you can do. I am also chemically sensitive(I know that several people in the forum are) and using the machine definitely affects my asthma and gives me eczema flares. But I have no choice but to use the machine until I can feel good enough to lose weight. It's either loss of intellect(permanent effect if you do not use yours for most of the night) or a year of aggravating your MCS. Just try off gassing and see whether it gets better. Switch to a elan soft weave mask if silicone bothers you. I'd not recommend using a silicone mask as a MCS sufferer.

LJ Mpls
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Joined: Wed Feb 17, 2016 6:41 am

Re: New User, Chemically Sensitive

Post by LJ Mpls » Thu Feb 18, 2016 6:31 am

Thank you!