They told me I don't need a mask.

[Mechgeno]

So for a little over a year now I haven't been sleeping well what so ever. Doesn't matter how much I sleep I just never feel rested. My doctor thought that maybe I have sleep apnea, so we scheduled a test and I went a couple months later. I actually thought it was cool having all that equipment all over you xD, felt like a cyborg man. But seriously though, when I woke up a doctor walked in and told me "Congratulations you completed the test" So I asked what's going to happen. She told me that I don't stop breathing enough to need the mask(cpap) and said that it's something that my doctor can deal with. She said that it's something else or nothing at all. I panicked inside because I was so sure it was apnea... I thought this would fix everything. My question here is... Does this mean I definitely don't have apnea? The reason I'm asking is because it's been a month and my doctor hasn't gotten my results yet. So I really just want to know if this 100% means I don't have apnea.

[Julie]

It probably means you don't necessarily have regular obstructive apnea, but whether or not you may have some related condition will have to wait for the results (can you get the MD's office to bug the lab for results more aggressively?).

Has the doctor recently done complete labwork on you otherwise, looking at things like thyroid issues, Vit D levels, hormones, etc?

Are you on any meds for any reason?

Have you asked your MD to refer you to a neurologist who specializes in sleep problems - that would be one thing I'd do as soon as I could if I were you.

[Enchanter]

Congrats on not needing the mask. This is what I see happening for me as well, even though tech told me I have it.

[Mechgeno]

It probably means you don't necessarily have regular obstructive apnea, but whether or not you may have some related condition will have to wait for the results (can you get the MD's office to bug the lab for results more aggressively?).

Um, well I'm going to get my doctor to call me and ask about exactly what's going on with my results.

Has the doctor recently done complete labwork on you otherwise, looking at things like thyroid issues, Vit D levels, hormones, etc?

Yes, I've been checked for everything.

Are you on any meds for any reason?

No, I used to take medications (anitdepressants like zoloft and wellbutrin and seroquel for sleep) I turned out not to really need the medication as much as the doctor's thought a couple years ago. I was basically misdiagnosed like crazy. I turned out only to have ADHD and anxiety problems. But my sleep issues started before I even got off my medications. I don't know if it's worth mentioning that I had mono right before this happened. My doctor thinks it's possibly anxiety causing it but I have been exercising ALOT, I've been way more relaxed lately and falling asleep more easily, I always sleep at least 6-7 hours before I wake up and sometimes I'll sleep in for an hour or 2. I personally don't think it's anxiety because I have gone to sleep very relaxed and woken up relaxed as well. I've also had digestive issues since this started happening so I thought that maybe it was being caused by something wrong inside my tract. I'm going to be getting tests done for that so we'll see. I started getting allergies all around the same time too which I find odd... I've never had anything like allergies before. Could allergies reduce my sleep quality, especially if it blocks one of my nostrils? I've been using something that keeps my airways in my nose open to help. I do have a little bit of an odd nose, It's slightly bent to the left and I don't breath well out of one of my nostrils at all times, maybe I just have problems with my nose structure lol, could that cause anything? I'm very very curious about what all could be causing my issues, I really hope my doctor gets the results.

Have you asked your MD to refer you to a neurologist who specializes in sleep problems - that would be one thing I'd do as soon as I could if I were you.

No, but I could do that.

Congrats on not needing the mask. This is what I see happening for me as well, even though tech told me I have it.

It's strange, if you have sleep apnea, how would you fix it without something to help. I know there is an apnea mouth guard, I thought maybe that's all I need? I've been exercising and losing weight to see if It will help. Been exercising 35 mins a day sometimes twice.

[Enchanter]

It probably means you don't necessarily have regular obstructive apnea, but whether or not you may have some related condition will have to wait for the results (can you get the MD's office to bug the lab for results more aggressively?).

Um, well I'm going to get my doctor to call me and ask about exactly what's going on with my results.

Has the doctor recently done complete labwork on you otherwise, looking at things like thyroid issues, Vit D levels, hormones, etc?

Yes, I've been checked for everything.

Are you on any meds for any reason?

No, I used to take medications (anitdepressants like zoloft and wellbutrin and seroquel for sleep) I turned out not to really need the medication as much as the doctor's thought a couple years ago. I was basically misdiagnosed like crazy. I turned out only to have ADHD and anxiety problems. But my sleep issues started before I even got off my medications. I don't know if it's worth mentioning that I had mono right before this happened. My doctor thinks it's possibly anxiety causing it but I have been exercising ALOT, I've been way more relaxed lately and falling asleep more easily, I always sleep at least 6-7 hours before I wake up and sometimes I'll sleep in for an hour or 2. I personally don't think it's anxiety because I have gone to sleep very relaxed and woken up relaxed as well. I've also had digestive issues since this started happening so I thought that maybe it was being caused by something wrong inside my tract. I'm going to be getting tests done for that so we'll see. I started getting allergies all around the same time too which I find odd... I've never had anything like allergies before. Could allergies reduce my sleep quality, especially if it blocks one of my nostrils? I've been using something that keeps my airways in my nose open to help. I do have a little bit of an odd nose, It's slightly bent to the left and I don't breath well out of one of my nostrils at all times, maybe I just have problems with my nose structure lol, could that cause anything? I'm very very curious about what all could be causing my issues, I really hope my doctor gets the results.

Have you asked your MD to refer you to a neurologist who specializes in sleep problems - that would be one thing I'd do as soon as I could if I were you.

No, but I could do that.

Congrats on not needing the mask. This is what I see happening for me as well, even though tech told me I have it.

It's strange, if you have sleep apnea, how would you fix it without something to help. I know there is an apnea mouth guard, I thought maybe that's all I need? I've been exercising and losing weight to see if It will help. Been exercising 35 mins a day sometimes twice.

Well maybe we can consider buying our own masks.

[Julie]

Hi, had mono too (long, long ago at 25) and it can take a long time for effects to go away. One other thing, for reasons not yet fully understood, a lot of us have had GERD (acid reflux) and a lot have raised the head of their beds 5-6" on blocks, etc. and find that it helps a lot.

[library lady]

Have the professionals considered fibromyalgia? There is no lab work or diagnostic test for that except a manual exam. As an autoimmune disease, this falls into the rheumatologist's domain. Perhaps you could get a referral. I have fibro, and as a result, I still never feel rested in spite of CPAP. I do have more energy with CPAP, and I can tell that I'm sleeping better and getting to sleep more quickly than ever before. Before the fibro diagnosis, which was long before the OSA diagnosis, it felt so good to finally know why I was always so tired. CPAP made things better, but I wouldn't recommend it for someone who doesn't have OSA, which apparently you do not.

[Mechgeno]

Hi, had mono too (long, long ago at 25) and it can take a long time for effects to go away. One other thing, for reasons not yet fully understood, a lot of us have had GERD (acid reflux) and a lot have raised the head of their beds 5-6" on blocks, etc. and find that it helps a lot.

Yeah, I actually do have acid reflux. I'm guessing that can disturb your sleep? I wake up nauseous sometimes. I can't sleep unless I'm in the perfect position though, I find raising the head of my bed keeps me awake. Perhaps a lot of us have something wrong internally. There are actual causes of GERD, like an intestinal yeast infection which is common. Look it up if you don't know, it's interesting in my opinion.

Well maybe we can consider buying our own masks.

They're soooo very expensive though :/ without diagnosis it can cost over a thousand dollars. With diagnosis in canada ontario (where I live) the health system will cover 75% of the cost and if you are on something like disability support they cover the rest so you can pretty much get it free.

Have the professionals considered fibromyalgia? There is no lab work or diagnostic test for that except a manual exam. As an autoimmune disease, this falls into the rheumatologist's domain. Perhaps you could get a referral. I have fibro, and as a result, I still never feel rested in spite of CPAP. I do have more energy with CPAP, and I can tell that I'm sleeping better and getting to sleep more quickly than ever before. Before the fibro diagnosis, which was long before the OSA diagnosis, it felt so good to finally know why I was always so tired. CPAP made things better, but I wouldn't recommend it for someone who doesn't have OSA, which apparently you do not.

No they haven't considered fibromyalgia. I thought myself that I might possibly have that. What causes it exactly? Is this a permanent disease? I remember reading that it's one of the reasons you could have chronic fatigue syndrome and fibromyalgia could be caused by depression. All you can do is exercise to help with it? But you know about it a lot more I assume because you have it. Could you tell me all what you know about it please?

[palerider]

even though tech told me I have it.

I'd tell you anything just to get you to quit badgering me too..

[Enchanter]

even though tech told me I have it.

I'd tell you anything just to get you to quit badgering me too..

[Mechgeno]

even though tech told me I have it.

I'd tell you anything just to get you to quit badgering me too..

what is happening exactly? o.o

[palerider]

even though tech told me I have it.

I'd tell you anything just to get you to quit badgering me too..

what is happening exactly? o.o

there's really no way to explain it, other than suggesting you go read his posting history....

there's a WHOLE lot of posting from that acct, and very little comprehension and understanding.... just frantic spinning.

[Julie]

You can get masks up here for less than you think, but you can also do what so many have and that's to buy online from sites like Cpap.com (they can't ship Resmed stuff here, tho' dealers can get it, but those will cost more) and others.

[library lady]

Have the professionals considered fibromyalgia? There is no lab work or diagnostic test for that except a manual exam. As an autoimmune disease, this falls into the rheumatologist's domain. Perhaps you could get a referral. I have fibro, and as a result, I still never feel rested in spite of CPAP. I do have more energy with CPAP, and I can tell that I'm sleeping better and getting to sleep more quickly than ever before. Before the fibro diagnosis, which was long before the OSA diagnosis, it felt so good to finally know why I was always so tired. CPAP made things better, but I wouldn't recommend it for someone who doesn't have OSA, which apparently you do not.

No they haven't considered fibromyalgia. I thought myself that I might possibly have that. What causes it exactly? Is this a permanent disease? I remember reading that it's one of the reasons you could have chronic fatigue syndrome and fibromyalgia could be caused by depression. All you can do is exercise to help with it? But you know about it a lot more I assume because you have it. Could you tell me all what you know about it please?

It's kind of like arthritis but you can't see it on x-rays, and there's no known cause or cure. I don't think depression causes it, but rather fibromyalgia is a source of depression unless and until we learn how to live with it. Exercise is helpful, but more than that it means you embrace a life style that includes exercise that your body can tolerate. I have several friends with fibro, and for each of us, the physical problems are different. The one constant is that we all suffer from fatigue. I did a lot of research both online and from books I got at the library.. google it on your computer or your library's database and you find many entries.

[Mechgeno]

Have the professionals considered fibromyalgia? There is no lab work or diagnostic test for that except a manual exam. As an autoimmune disease, this falls into the rheumatologist's domain. Perhaps you could get a referral. I have fibro, and as a result, I still never feel rested in spite of CPAP. I do have more energy with CPAP, and I can tell that I'm sleeping better and getting to sleep more quickly than ever before. Before the fibro diagnosis, which was long before the OSA diagnosis, it felt so good to finally know why I was always so tired. CPAP made things better, but I wouldn't recommend it for someone who doesn't have OSA, which apparently you do not.

No they haven't considered fibromyalgia. I thought myself that I might possibly have that. What causes it exactly? Is this a permanent disease? I remember reading that it's one of the reasons you could have chronic fatigue syndrome and fibromyalgia could be caused by depression. All you can do is exercise to help with it? But you know about it a lot more I assume because you have it. Could you tell me all what you know about it please?

It's kind of like arthritis but you can't see it on x-rays, and there's no known cause or cure. I don't think depression causes it, but rather fibromyalgia is a source of depression unless and until we learn how to live with it. Exercise is helpful, but more than that it means you embrace a life style that includes exercise that your body can tolerate. I have several friends with fibro, and for each of us, the physical problems are different. The one constant is that we all suffer from fatigue. I did a lot of research both online and from books I got at the library.. google it on your computer or your library's database and you find many entries.

Yeah I really hope I do not have that, I can tell you right now there is no way I'm living like that. If i can't get out this fatigue I give up. I can't live happy like this. What are the signs that I could possibly have it? Besides the fatigue of course. Ah ok so i'm reading that the main concerns are chronic muscle pain and fatigue. I don't have chronic muscle pains. here I'm going to post some side effects and say wether or not I experience any of it.

Chronic muscle pain, muscle spasms, or tightness (not really)
Moderate or severe fatigue and decreased energy (yes)
Insomnia or waking up feeling just as tired as when you went to sleep (i usually wake up as tired as i was when i went to sleep but sometimes a little rested)
Stiffness upon waking or after staying in one position for too long (not usually)
Difficulty remembering, concentrating, and performing simple mental tasks ("fibro fog") (sometimes but I can't usually do okay, but there have been times where it's been very bad)
Abdominal pain, bloating, nausea, and constipation alternating with diarrhea (irritable bowel syndrome) (yes, yes and yes lol)
Tension or migraine headaches (not really)
Jaw and facial tenderness (no)
Sensitivity to one or more of the following: odors, noise, bright lights, medications, certain foods, and cold (no not really)
Feeling anxious or depressed (anxiety but i have an anxiety disorder which sometimes causes small depression if bad enough)
Numbness or tingling in the face, arms, hands, legs, or feet (not that i can tell)
Increase in urinary urgency or frequency (irritable bladder) (not that i know of, how much would be peeing too much?)
Reduced tolerance for exercise and muscle pain after exercise (i think i do ok with exercise and i usually feel better afterwards)
A feeling of swelling (without actual swelling) in the hands and feet (dont think so)

oh by the way I think the fact I didn't need to do the titration study on the same night doesn't mean I don't have apnea. I might have it mildly and need to get it scheduled later. I looked it up and this is what I found

A CPAP titration study is a type of in-lab sleep study used to calibrate continuous positive airway pressure (CPAP) therapy. CPAP is a common treatment used to manage sleep-related breathing disorders including obstructive sleep apnea, central sleep apnea and hypoventilation and hypoxemia. Once you are diagnosed with one of these disorders, you may need a CPAP study before you can begin treatment.

In some cases, members of the sleep team may perform a CPAP titration study on the same night as an in-lab sleep study. This is known as a split-night sleep study. The CPAP titration occurs in the second half of the night. This is usually only offered if the sleep apnea is severe and the diagnosis is clear.

In more mild cases, the CPAP titration study may occur after a physician reviews the results of the in-lab sleep study. The physician will decide if and when you need to come in for a CPAP study.

So I guess my doctor needs to look at my results first, and then decide what to do. So I'm going to wait for my results, hopefully it's probably a mild thing and treatable. I'm sure I do have sleep apnea, I catch myself stop breathing a lot when I'm falling asleep, when this happens I breath heavily without controlling it, it wakes me up a little and my heart beats quickly when this happens which causes a little bit of anxiety for me.