Why some days are better than others ??

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Laurent_fr
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Why some days are better than others ??

Post by Laurent_fr » Wed May 26, 2021 4:03 am

Hello,

Could you explain me why a day with CPAP is great and the next day is horrible...?? I've read so many times that "CPAP takes a long time to work, be patient, blabla...", I'm ok but this is not very "logical"!! If it takes a long time, you shouldn't fell good just one day, and not the others!

I gave up many times last months, cause I never noticed improvements with CPAP...but I'm back more seriously now, because I understood I have no other choices than this machine...
Yesterday, I was great after a 6 hours night of CPAP, today I'm bad with a 6 hours night of CPAP ! :roll:

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Julie
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Re: Why some days are better than others ??

Post by Julie » Wed May 26, 2021 5:23 am

Even robots have trouble at times, and we sure aren't robots (yet).

But, if you download Oscar and post results here for 2-3 nights we can get an idea of what's what and hopefully advise any changes that might need to be made.

Are you taking any meds at all?

What machine do you have (model, not just brand) and what mask?

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ChicagoGranny
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Re: Why some days are better than others ??

Post by ChicagoGranny » Wed May 26, 2021 6:55 am

Laurent_fr wrote:
Wed May 26, 2021 4:03 am
Could you explain me why a day with CPAP is great and the next day is horrible...??
How do your AHI and leak level compare on the two different days?

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Laurent_fr
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Re: Why some days are better than others ??

Post by Laurent_fr » Wed May 26, 2021 8:14 am

Thank you very much for your help!

I was just watching about these two last nights and notice that everything seems to be the same: AHI, time, leaks, etc...!! 😅 :shock:

Doctors gave me 10mg of mianserine (don't know the name in english but I think pretty close than french), 4mg of melatonin, and since last week a pill of atarax (HYDROXYZINE CHLORHYDRATE) but the only real effective is mianserine!! (Unfortunately, I think I can't live without now... :? ).

I also tried to cut coffee for 5 days, but nothing new with that...

Another problem is that I'm a mouth-breather, but I found I have really less leaks now with a chinstrap.

I add some pictures of last nights, what do you think about ?
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Pugsy
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Re: Why some days are better than others ??

Post by Pugsy » Wed May 26, 2021 8:23 am

So...exactly what complaints are you having that make things "bad" and what constitutes a "good" for you?
What symptoms are you having that you wish you didn't have and you wanted cpap to fix????

How many hours of sleep are you averaging each night? Real sleep and not just laying there awake???
Are those hours fragmented with multiple wake ups?
How long does it take you to go back to sleep if you wake up during the night?

What dosage (strength and frequency) for the mianserine? How long have you been taking it?

Your overview graphs point to very sporadic cpap use and when used lots of sessions which point to lots of time turning the machine off and on...highly fragmented sleep.

Do you drink alcohol withing 4 hours of bedtime?
Any recreational drug use?

What was your diagnosis and AHI that earned you the cpap machine in the first place?
What complaints prompted the sleep study in the first place.

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Laurent_fr
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Re: Why some days are better than others ??

Post by Laurent_fr » Wed May 26, 2021 10:14 am

Hello Pugsy, thank you for your reply.

A "good" for me is when I : can stand up on my legs more than 5 minutes, stay focus all day long when learning programming language on the computer, stay away of the couch half of the day, not be depressed and negative with everything, etc etc..... So , I mean by that : to not feeling miserable or like a shit as I've often read on this forum!!) ^^

I took mianserine since 2018, I've stopped sometimes before but I can't sleep with mask anymore if I don't take that pill. It's only 10mg of mianserine on the evening and 1h30 before sleep. Without this med, I have very light phases of sleep and easily awaken!

Since 3 years I don't drink alcohol anymore, I also quit smoking maybe 6 years ago and the only drug who stand is coffee!! And I try to keep it in the morning only!

I usually sleep 8 hours a night, and sometimes 9h but generally not a real extra hour of sleep. I go to toilets 2 or 3 times. I don't really feel that my nights are very fragmented.

Yes I have to admit that it's a sporadic use of the CPAP... For me it tooks a long time to find a good combination of mask/pressure/chinstrap/etc... But I think I've found the good settings now and I'm ready to get serious with treatment, until I notice some results.

I have a cam over my head who films all my nights, and the thing is I always move when sleeping. Often the arms, but the legs and the body too. Not sure about restless legs syndrome and it wasn't said in my sleep studies.
Also, I often move when I wear the mask... It looks more like "nervous" moves, my wife often told me that "I never really sleep"...and thanks to her who often tells me to put the mask back when I asleep!!

What do you think about all that stuff ?

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Pugsy
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Re: Why some days are better than others ??

Post by Pugsy » Wed May 26, 2021 10:28 am

Laurent_fr wrote:
Wed May 26, 2021 10:14 am
A "good" for me is when I : can stand up on my legs more than 5 minutes, stay focus all day long when learning programming language on the computer, stay away of the couch half of the day, not be depressed and negative with everything, etc etc..... So , I mean by that : to not feeling miserable or like a shit as I've often read on this forum!!) ^^
You still didn't really explain your unwanted symptoms very well. "Like shit" may mean something entirely different to me or the others.
To fix any problem you first have to identify the problem.

Fatigue?
Brain fog?
Excessive daytime sleepiness? (need to nap)?
Insomnia (either difficulty falling asleep or staying asleep)???
Other unwanted symptoms?

It does sound like you at least have problems sleeping soundly for whatever reason and when we either don't get the good quality solid sleep so that we get not only enough hours of sleep but the needed sleep stages for the restorative powers of sleep to work their magic....we can't ever expect to feel better than "like shit". Doesn't matter if it is sleep apnea related or related to something else.
Your usage overview graph doesn't support 8 or 9 hours of sleep (with the machine anyway).

The one detailed report shows barely 6 hours of use...and at least 3 therapy breaks so at least those wake ups.
That's simply not enough hours of sleep even if everything was perfect.

Answers to these questions please.....
Pugsy wrote:
Wed May 26, 2021 8:23 am
What was your diagnosis and AHI that earned you the cpap machine in the first place?
What complaints prompted the sleep study in the first place.

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Laurent_fr
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Re: Why some days are better than others ??

Post by Laurent_fr » Wed May 26, 2021 11:07 am

Yes, I feel very tired all day long, I can't stay on the computer to work. I have a lot of brain fog and it's very difficult to stay focus.
I feel exhausted but I never can't have a nap, I don't know why...I need it, but I simply cannot... I only can asleep at night. My body is too stressed to fall asleep in the daytime.

Without mianserine I have insomnia or very light sleep and wake up really earlier in the morning.

Last nights I slept for 8h but I don't succed to keep mask 8 hours long. It's not eas to keep the mask more than 6 hours for me, sometimes I can do more and sometimes I simply can't get this mask longer... You think 6 hours is not enough ???

Sorry, I forgot your last questions: the first study was 24 AHI and the 2nd and most recent revealed 30 AHI.
I was complaining for the same things as today: extreme tiredness, brain fog, no motivation, depression, etc.

I also struggle a lot with my nose: I tried surgery two times for turbinoplasty but no improvements. Today and once again I have an infection of a sinus, it hurts on the throat, not exactly the throat but on a side of my neck. I think the cpap causes this. I wash the mask every day now and no changes.
Already tried all the existing meds for allergies, congestion, etc.
Nothing works.
I even tried acupuncture for a second time yesterday....!! Does it sounds despair enough ??? :lol:

I have understand that a good night of sleep depends on so many parameters, but these last two days was almost the same configuration about cpap and life !!

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Pugsy
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Re: Why some days are better than others ??

Post by Pugsy » Wed May 26, 2021 11:18 am

We simply don't always sleep the same despite the "numbers" on the reports looking the same.
Sometimes it's just a crappy sleep quality night.

You really need to be a lot more consistent with your cpap usage though to ever stand a chance of having more good days than bad days.

Though it does sound like you have some problems getting good restorative sleep coming from something other than airway issues.
Not uncommon. CPAP on fixes airway issues. It can't fix bad sleep that is caused by all the other stuff that can cause bad sleep.

Fragmented sleep (those wake ups) will totally trash your sleep stages so you don't get the needed amount of sleep in each sleep stage.
I know you don't do the alcohol thing but this article explains why each sleep stage is critical to feeling better.
Substitute the word "anything" for where you see alcohol in this document.
https://www.sleepfoundation.org/nutriti ... -and-sleep
The list of culprits that are known to disturb sleep....miles long and sleep apnea is but one little item on that very long list.

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Laurent_fr
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Re: Why some days are better than others ??

Post by Laurent_fr » Thu May 27, 2021 3:59 am

Thanks Pugsy for your advices.

I think I've made a personnal record this night: 7hours of uninterrupted cpap sleep!!! :shock: Unfortunately, it's not an olympic shape for me this morning!! :?

Do you think that tossing and turning could be a stress issue and not directly related to OSA ?? My wife, my parents and many others people seems to think I'm a "stressed guy"!! Maybe it's real... :roll:
I took benzodiazepines for years, I've quit that sort of meds in 2017, and recently (last year) I also stopped escitalopram.
Do you think it could be related ?

My doctor gave me some lorazepam if I really need it, but I'm not sure to go back with this kind of stuff...................

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Pugsy
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Re: Why some days are better than others ??

Post by Pugsy » Thu May 27, 2021 8:41 am

Laurent_fr wrote:
Thu May 27, 2021 3:59 am
Do you think that tossing and turning could be a stress issue and not directly related to OSA ?? My wife, my parents and many others people seems to think I'm a "stressed guy"!! Maybe it's real... :roll:
I took benzodiazepines for years, I've quit that sort of meds in 2017, and recently (last year) I also stopped escitalopram.
Do you think it could be related ?
More real than you might think...or want to accept. :D

While I doubt that the elimination of escitalopram is a factor in the poor sleep itself right now (withdrawal itself for a period of time could have caused additional problems but you should be done with withdrawal by now)....the very reason you were on the medication in the first place could still be a factor.
Not to mention the class of medication that it is in is well known to mess with sleep stages...SSRIs....they are well known to mess with sleep as well as how a person actually feels. They reduce REM stage sleep for one thing.
Then the very reason a person is given those types of mood meds can also be a factor in sleep quality...damned if you do with the meds and damned if you don't.

I don't know how much work you want to devote to evaluating your sleep quality itself. It takes a lot of work and education on your part and even when we do the work we don't always have an easy fix for it because we don't know what the actual cause of the problem (poor sleep quality) might be and to have any chance of fixing the problem we have to know the cause of the problem.
Hell, sometimes when we know the cause of the problem the fix isn't easy. I have first had experience in that area myself.

Sounds to me like you have at least 2 physical health issues going on and perhaps even a bit of mental health issues (stress) going on.
OSA is a very real physical health issue. The easiest to technically fix fortunately.
Frequent arousals/awakenings from sleep...another health issue because it keeps a person from getting the needed amount of each sleep stage....and it may or may not be tied to your response to stress in your life.

I have a very good friend who battled insomnia all her life and then ended up battling OSA as well. She told me that fixing the OSA was the easy part. She told me that getting good sleep was always going to be her greatest challenge and after lots of trial and error and much discussion with her doctor she ended up using one of the newer sleep RX meds on a prn basis. She didn't want to but her insomnia issues were crippling. There is a time and place for medications.
But you have to realize that all medications come with baggage and/or unwanted side effects which may also create new problems with unwanted symptoms. You and your doctor have to evaluate the risk vs reward for adding those meds.

Arousals/Awakenings...you may or may not remember them but they mess with restorative sleep.
Sleep maintenance insomnia...where we have those arousals/awakenings to the point that restorative sleep is hard to get.
I know people seem to really fear the word "insomnia" for various reasons but if you don't sleep good and you know you have a lot of arousals/awakenings/tossing and turning.....sleep maintenance insomnia is what it is called.

You may have got what you thought was 7 hours of uninterrupted sleep last night but I would bet my last dollar that it was more interrupted than you might think.
Everyone has arousals...we just don't always remember them. It's normal to awake after a REM cycle but normally we aren't awake long enough to form a memory. A person can have arousals and not remember them because they fall back to sleep quickly.

What I sense with you...
First of all you were expecting cpap to fix all your sleep issues AND you haven't been consistent with the cpap usage. You quit using it because it didn't do what you wanted which was fix sleep issues that were unrelated to the airway...so you just quit it and compounded a problem by having OSA untreated back into the situation. Shot yourself in the foot.

I sense you want a quick fix....unfortunately most people don't get quick fixes.
I know you probably don't like what I have said above but it's the truth...and a rather ugly truth at that.
You are like my husband...want an immediate fix to whatever problem there is and impatient as hell which causes more stress and compounds the problem. One night...not nearly enough time to expect any sort of fix....need at least 2 weeks straight of those 7 hour nights to be able to expect anything at all. You have to give the body time to heal. It doesn't heal overnight no matter how much we might want it to.

Take the time to read this blog...mainly because she mentions a couple of really good books that I strongly advise that you read them.
You need to educate yourself on your sleep quality issues.
http://adventures-in-hosehead-land.blog ... er_19.html
So a lot in her blog doesn't pertain to your situation but how she goes about learning and dealing with her sleep issues does pertain to you. Read the books she mentions.

As for adding lorazepam back into the mix....I don't like using benzos unless absolutely no other option is available. They just come with too much baggage and I feel the baggage is unacceptable but that's between a patient and their doctor. Those kinds of meds are more for acute stressors IMHO....death, divorce, loss of job, etc...and not chronic issues where we can't put a finger on the stressor.
Once a week for emergencies...unlikely to cause a problem but what happens is people start gradually increasing frequency and it isn't long before they are on the benzo wagon again.

Did you know the melatonin itself comes with some rather nasty baggage? It comes with some unwanted daytime symptoms as well.
Google melatonin side effects....it's not nearly as benign as people might think and often people take way more dosage than is really needed. Plus it's more of a help you fall asleep drug...not a help you stay asleep drug.

Now they do make a melatonin now that is sustained release which is more of a help you stay asleep drug...but remember it also can come with some baggage that affects how we feel when we wake up. If you feel melatonin helps a bit...maybe try the SR version?????
Worth trying.

I wish there was a quick fix available for you but there isn't. Cold hard fact of life.
You absolutely have to use the cpap machine though to stand any chance in hell of ever sleeping and feeling better but you have to realize and accept the fact that you most likely have additional problems that the machine can't fix so you have to work on those problems separately.

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