Search found 7 matches

by amills3
Fri Sep 14, 2018 5:09 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: New ASV user with PLMD
Replies: 14
Views: 1267

Re: New ASV user with PLMD

Here is the website for Johns Hopkins Sleep medicine dept where they discuss iron infusions to treat RLS: https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html Be sure to watch this embedded video from that website where the doctor ...
by amills3
Fri Sep 14, 2018 5:02 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: New ASV user with PLMD
Replies: 14
Views: 1267

Re: New ASV user with PLMD

My regular doc (who is a functional practitioner) thinks a ferritin level of 20 is "normal" and thinks the iron infusions will make things worse. I use the TENS specifically for the movements during sleep. I use it for at least a half hour before sleep as prescribed for lower back pain, with the in...
by amills3
Thu Sep 13, 2018 2:36 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: New ASV user with PLMD
Replies: 14
Views: 1267

Re: New ASV user with PLMD

Serum ferritin below 50ng/mL is well known to contribute to RLS/PLMD. Are you taking your iron supplement with a good dose of vitamin C? If you can't get your ferritin up with an oral iron supplement then ask your doctor for IV iron infusions. That is what my sleep doc recommends. Thanks for your t...
by amills3
Thu Sep 13, 2018 8:56 am
Forum: CPAP and Sleep Apnea Message Board
Topic: New ASV user with PLMD
Replies: 14
Views: 1267

Re: New ASV user with PLMD

Serum ferritin below 50ng/mL is well known to contribute to RLS/PLMD. Are you taking your iron supplement with a good dose of vitamin C? If you can't get your ferritin up with an oral iron supplement then ask your doctor for IV iron infusions. That is what my sleep doc recommends. Thanks for your t...
by amills3
Thu Sep 13, 2018 8:48 am
Forum: CPAP and Sleep Apnea Message Board
Topic: New ASV user with PLMD
Replies: 14
Views: 1267

Re: New ASV user with PLMD

Since you are not on any meds known to cause these problems, that at least eliminates one step in the process of discovery. I would pursue the iron subject. Not sure if this will help you, but along with some supplementation to give my body its best chance, I have found using a TENS Unit sufficient...
by amills3
Wed Sep 12, 2018 7:09 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: New ASV user with PLMD
Replies: 14
Views: 1267

Re: New ASV user with PLMD

Did your diagnostic study also show centrals or just during titration? Just asking because some meds can make one prone to centrals, and can also cause or worsen limb movements. Are you on any meds that might be suspect? If so, that could change your path forward a bit. I am not qualified to give s...
by amills3
Wed Sep 12, 2018 10:25 am
Forum: CPAP and Sleep Apnea Message Board
Topic: New ASV user with PLMD
Replies: 14
Views: 1267

New ASV user with PLMD

I am a new ASV user (about 4 weeks in) with a diagnosis of complex sleep apnea. My AHI numbers have never been very high, but the CPAP & biPAP caused central apneas in the lab, so I was put on ASV. I have been working on trying different masks and getting through aerophagia, skin irritation, etc. My...