Janknitz wrote:Does he have Arnold Chiari Malformation, or is it all from the spinal fracture?

It is from a spinal fracture. The doctors don't believe at all that it was a birth defect/congenital.

Here is the latest! We finally got our Trilogy at home on March 25th. We finally found what was causing the problem in my son, but we don't know if his breathing will eventually straighten out. He went for an MRI on March 13th of his brain. When they started the MRI, they immediately found spinal co...

We started after the first sleep study, making him sleep on his side.

Sorry I have not posted sooner. Here is the results from his sleep study which shows no central apneas. It is still showing obstructive and hypoventilation. We are still waiting on a machine as well. The doctor will only let him have a Respironics Trilogy. We have had a hard time finding a provider ...

On the 1st Sleep Study, he averaged 127 to 130 events per hour. We haven't received the results from the previous sleep study so I don't know how many he had. He did not have any central apneas on 1st sleep study.