Search found 13 matches

by DancingRT
Fri Aug 01, 2014 8:58 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Need advice before next doc appt
Replies: 12
Views: 1270

Re: Need advice before next doc appt

I have tried to get the data off and failed. I work in a facility where any of my patients with sleep apnea have trachs and on a vent. I rarely use the CPAP machines. I am really thinking of getting a second opinion, my fiance is pushing for it. The main reason I hesitate is because the doc is close...
by DancingRT
Fri Aug 01, 2014 8:32 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Need advice before next doc appt
Replies: 12
Views: 1270

Re: Need advice before next doc appt

I do have a card for the machine. I bring it with me to the appts. Doc says the machine seems to be "working well" controlling apneas, very few leaks, etc. He showed me the print out. But what the data shows and how I feel are two different things. Just telling me to come back in 8 months (which I s...
by DancingRT
Fri Aug 01, 2014 8:10 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Need advice before next doc appt
Replies: 12
Views: 1270

Re: Need advice before next doc appt

I have tried Remzzzz's which did NOTHING to help my face. I don't have too much of a problem with leaking. I have changed the humidity several times...which is the ONLY thing I can change other than the ramp. I am not a mouth breather. I have the ResMed S9. My most recent mask (in a series of many m...
by DancingRT
Fri Aug 01, 2014 7:52 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Need advice before next doc appt
Replies: 12
Views: 1270

Re: Need advice before next doc appt

Doctor told me it iwas impossible for me to be allergic to the mask due to the material it is made out of. If it is not an allergy, it is some sort of sensitivity
by DancingRT
Fri Aug 01, 2014 7:28 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Need advice before next doc appt
Replies: 12
Views: 1270

Need advice before next doc appt

I have been using CPAP for over a year now. It does NOTHING positive for me. I have tried NUMEROUS masks. All make my face break out BAD. Doc says there is no way I can be allergic to them, which I understand, but I make sure the mask is not too tight, etc. My face (and skin) HATE anything touching ...
by DancingRT
Fri Jan 03, 2014 10:19 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Desperate for advice
Replies: 24
Views: 3679

Re: Desperate for advice

Sorry it took a while to respond, have been busy last few days, and now think I am getting a respiratory infection. Anyways, Someone said I should start to feel better on CPAP after a few months, I have been using CPAP since July 2013 and things only have gotten worse I try to convince and tell myse...
by DancingRT
Fri Jan 03, 2014 9:57 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Complex Sleep Apnea
Replies: 8
Views: 1659

Re: Complex Sleep Apnea

I am being questioned to as if I also have Complex (Mixed) sleep apnea. The doctor is pretty sure I do have it. But insurance is dictating to my doctor on how to treat me regardless of what he thinks. CPAP has made my sleep soooooooo much worse. Since on CPAP (July 2013) I have put on 15 pounds, and...
by DancingRT
Sun Dec 29, 2013 10:00 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Desperate for advice
Replies: 24
Views: 3679

Re: Desperate for advice

My sleep Quality is set to usage My laptop does have a card reader...going to try it out...I need to get into this machine and play around. I need to get my health back to where it was. I see so many patients say how great they felt after being put on CPAP. I want to feel that way again. This is def...
by DancingRT
Sun Dec 29, 2013 7:13 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Desperate for advice
Replies: 24
Views: 3679

Re: Desperate for advice

I have the S9 Elite (double checked). I would like to look at more data...and even bring it to work to show to the other RT's and docs...get a few opinions
by DancingRT
Sun Dec 29, 2013 5:51 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Desperate for advice
Replies: 24
Views: 3679

Re: Desperate for advice

I don't see the sleep doc again until February. We are trying to rule out the mixed (complex) apneas. Every symptom I have (shaking, apneas, sweating) I have with AND without CPAP. My boyfriend has made it clear I do NOT snore at all when I sleep, and on the sleep study, some of those apneas could N...
by DancingRT
Sun Dec 29, 2013 5:36 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Young woman sleeping 20 hours a day
Replies: 37
Views: 6384

Re: Young woman sleeping 20 hours a day

I have a disease known as Kleine-Levin Syndrome AKA Sleeping Beauty Syndrome. These "sleep episodes" come and go. I am one of 500-1000 people in the world with this disease, so her having this might be rare. My normal sleep episodes last 5-10 days with 14 days being my longest (but I know other peop...
by DancingRT
Sun Dec 29, 2013 5:17 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Desperate for advice
Replies: 24
Views: 3679

Re: Desperate for advice

To answer some of your questions... The machine I have is the ResMed S8 (should show on profile...have to fix that). I have been tested for TB (and do every year for work). Doc even sent me for chest x-ray and CAT Scan....all were negative. I have had my thyroid tested numerous times...and seems to ...
by DancingRT
Sun Dec 29, 2013 2:41 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Desperate for advice
Replies: 24
Views: 3679

Desperate for advice

I am a respiratory therapist. I have had NUMEROUS sleep studies in the past (for Kliene-Levin Syndrome (AKA SLeeping Beauty Syndrome), CFS and fibromyalgia). The earlier tests showed nothing (except I never went into REM sleep). This past May, a sleep study showed sleep apnea. This SHOCKED me and my...