Search found 11 matches

by Ciarasmom
Tue Oct 01, 2013 12:00 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

Neither bothers me at all, just want safest, most effective treatment. So lets "pretend" I had access to all, is nasal cannula sufficient or should I go with mask? Cannula may be smaller more comfortable but is also drying and does not deliver anywhere near se pressure. Mask is bulky annoying. But w...
by Ciarasmom
Tue Oct 01, 2013 11:23 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

Update to info requested, my 8 month old has prader willi syndrome.... She was diagnosed at 2 months old ....the FDA approved treatment is daily injections growth hormone....in order to start treatments many steps must be done so baby can be safely monitored, right now our last step is resolving sle...
by Ciarasmom
Tue Oct 01, 2013 11:08 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

Looking for advice, update on this topic, "sleep team" suggesting use of nasal cannula oxygen to resolve apnea.......need support continuing to fight them as I feel this is ridiculous????? Please help me I'm exhausted. Why do I need to keep explaining to anyone with a brain, let alone a doctor, if n...
by Ciarasmom
Tue Oct 01, 2013 11:02 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Furlough in United States
Replies: 2
Views: 629

Furlough in United States

Hello all Wondering since FDA is closed today if we can order infant cpap masks online for delivery to United States? My daughters sleep team has suggested we use nasal cannula 02 @ 2lpm since there is no FDA approved mask.... So i was thinking since fda offices automatedessage says they are closed ...
by Ciarasmom
Tue Sep 24, 2013 10:37 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Specialty CPAP Travel Bag/Carry On
Replies: 64
Views: 13706

Re: Specialty CPAP Travel Bag/Carry On

it is strange how these things pop up. in my opinion it all comes down to ensuring proper funding for realistic best solution for all we can try to include. whats available is available for reasons no one truly understands unless they ever occur being truly desperate. sorry guys, but MOST people, (s...
by Ciarasmom
Tue Sep 24, 2013 2:41 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

thank you, mark. It is very unfortunate. i appreciate you guiding me towards additional options out there. believe it or not, most pediatric boards still result in finding answers here because as you know infants are so much smaller and harder to fit and these items require special order even if som...
by Ciarasmom
Mon Sep 23, 2013 9:34 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

In Canada I would talk to: McArthur Medical Sales Inc 1846 5th Concession W. Rockton, Ontario L0R 1X0 Canada Tel: +1 519 622 4030 Fax: +1 519 622 1142 Email rhefford@mcarthurmedical.com Contact: Roy Hefford About: Airon products http://aironusa.com/accessories/ Like the following: Nasal CPAP (nCPAP...
by Ciarasmom
Mon Sep 23, 2013 9:16 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

thank you all again for info. most do not understand or even believe this type of situation but sadly all comes down to greed and finger pointing. been making myself crazy trying to figure out if something is available why it could be so difficult to learn about. i suppose the rules in place to keep...
by Ciarasmom
Mon Sep 23, 2013 4:20 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

thank you all for having this forum. crazy to think a doctor would order something that doesnt exist, especially for a baby. Can we say greed? if anyone in future should have same question please have them pm me and i will gladly guide them.
by Ciarasmom
Mon Sep 23, 2013 12:14 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

stl mark - thank you, i had come across that, but is that for inpatient care in hospital? daughter is home with me
by Ciarasmom
Mon Sep 23, 2013 12:07 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Infant cpap mask?
Replies: 29
Views: 6822

Re: Infant cpap mask?

my username should be registered now for private message if anyone has info. to make long story short need a mask smaller than pixi or minime, wondering if anyone on here has helpful information. Yes, we have a "sleep team" however they are useless because my 8 month old is the size of a 3 month old...