Search found 42 matches

by lostsheep
Wed Jul 09, 2014 10:37 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Time to refreshed sleep on ASV? If ever?
Replies: 18
Views: 4587

Re: Time to refreshed sleep on ASV? If ever?

It took about a week for me. I had been feeling terrible for 9 months with a CPAP and then BiPAP, then the ASV. I was titrated by Krakow as well.
by lostsheep
Sat Dec 28, 2013 7:44 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Seeking Upper Airway Resistance Syndrome Success Stories
Replies: 6
Views: 5861

Re: Seeking Upper Airway Resistance Syndrome Success Stories

I have UARS. It has been shown with CT scan that I have an extremely small throat, which may explain the chronic fatigue-type events that I have experienced many times in the past. I don't do well with a CPAP or BiPAP. I tried for 8 months, but get complex apneas, periodic breathing, etc., and feel ...
by lostsheep
Thu Dec 19, 2013 9:26 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Jaw surgery
Replies: 14
Views: 6152

Re: Jaw surgery

I've read about someone's positive experience with this surgeon in Keene, NH:
http://www.drhenrydds.com/

If you want to learn about jaw surgery, you are better off searching for jaw surgery forums and blogs.
by lostsheep
Sat Mar 02, 2013 10:42 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Apria charging for paid machine - recourse?
Replies: 11
Views: 2026

Apria charging for paid machine - recourse?

I find myself in the ridiculous position of being billed for as ASV machine that was already paid off on a 10-month lease in 2012. It was due to be converted to a warranty & service agreement in 2013, with some type of payment every 6 months. Why do they want to charge all over again? The alleged re...
by lostsheep
Sun Jan 13, 2013 9:56 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS friendly physician
Replies: 97
Views: 16396

Re: UARS friendly physician

We had his tonsils out and have him in braces to extend his jaw What kind of braces are those? I'm interested for my kid. Sleeping Ugly, have you tried googling on orthotropics? Also google on Dr. Mew. I learned quite a bit about it from Dr. Park's teleseminar interviews. He hosted one or two exper...
by lostsheep
Sun Jan 13, 2013 9:50 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS friendly physician
Replies: 97
Views: 16396

Re: UARS friendly physician

I would add the following: if you do have an MMA, it's vitally important that you have it done by an experienced doctor. There are MMA horror stories out there, but none of them are from people who had their surgeries performed by the Stanford doctors. This is one area in which you definitely don't...
by lostsheep
Sun Jan 13, 2013 9:43 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS friendly physician
Replies: 97
Views: 16396

Re: UARS friendly physician

No, it's not. I would expect some significant improvement but not a cure, unless someone experienced looks at your airway and says "It's definitely small only in the direction that MMA expands it". If ASV is able to bring your RERAs close to zero, then it doesn't seem like MMA would give much benef...
by lostsheep
Sun Jan 13, 2013 9:23 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS friendly physician
Replies: 97
Views: 16396

Re: UARS friendly physician

ENTs are not the ones that should be diagnosing GERD; gastroenterologists diagnose GERD. Are you an authority on that? I don't pretend to be, but it would make sense that gastros are the ones who can best treat primary GERD, with drugs and diet and such. It was my sleep doc who specifically recomme...
by lostsheep
Sun Jan 13, 2013 2:35 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Delayed effects of the trauma of surgery?
Replies: 11
Views: 1813

Re: Delayed effects of the trauma of surgery?

Is it possible you got an injection in the rear end? I had demoral that way before surgery back in the 70's. I can't remember if it made my butt sore; but it did make me high as a kite. I don't know if that is standard practice anymore, but it was nice at the time.
by lostsheep
Sun Jan 13, 2013 2:30 am
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS, low numbers bad sleep, MMA, now on CPAP
Replies: 119
Views: 25835

Re: UARS, low numbers bad sleep, MMA, now on CPAP

patrissimo, I have your type of history with a UARS hyped-up nervous system. I didn't do well at all with my first mask, the Resmed FX. I was new to CPAP and didn't know the difference, but the nose pillows were constraining my breathing. It got worse later at night after being in bed for a while. S...
by lostsheep
Sun Jan 13, 2013 1:40 am
Forum: CPAP and Sleep Apnea Message Board
Topic: eye irritation question
Replies: 2
Views: 952

eye irritation question

Has anyone using nose pillows ever gotten irritated eyes from their therapy? Once while at the DME, the respiratory tech mentioned that the eye ducts can leak air out under really high pressures, thus explaining the full-face and over-the-eye(!) huge sized mask in his office. Is it possible that I a...
by lostsheep
Sun Jan 13, 2013 1:15 am
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS friendly physician
Replies: 97
Views: 16396

Re: UARS friendly physician

Patrissimo - If you are still following this thread, thank you for your thoughtful comments back in December. When I'm in a holding pattern on my therapy, I'm not too consistent at checking in on this forum. It tends to keep me up too late at night After 4 weeks, ASV has improved my daytime energy a...
by lostsheep
Tue Jan 01, 2013 11:51 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Impaired cognition and memory despite AHI range from 2.5-4.5
Replies: 7
Views: 1557

Re: Impaired cognition and memory despite AHI range from 2.5-4.5

You might try to find a doctor who is experienced in treating UARS. Such a doctor would notice the funky airflow waveforms and frequent arousals, and take that situation seriously. I had trouble locating that type of expert, though. It doesn't seem to be mainstream(?) I had AHI scores similar to you...
by lostsheep
Tue Jan 01, 2013 10:59 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Does CPAP cause acid reflux?
Replies: 25
Views: 8790

Re: Does CPAP cause acid reflux?

I can share the input of my ENT on this topic. Background: I have problems with aerophagia ever since starting on CPAP, then again with BiPAP (although marginally better than CPAP), and now ASV. The higher the pressure, the worse my gas symtoms. The ASV max setting is the highest pressure I've been ...
by lostsheep
Sat Dec 15, 2012 11:12 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Follow-up to "First dysfunctional nights with VPAP"
Replies: 10
Views: 3518

Re: Follow-up to "First dysfunctional nights with VPAP"

An update... After about 10 weeks on the S9 VPAP I did not improve, either in data or subjective results. Last week I was titrated for ASV. As of last night I started new therapy at home with an S9 VPAP Adapt. This morning my AHI was zero(!), so even though the breathing waveforms look a bit funky a...