Search found 27 matches

by Cubbieblue
Sun Jan 30, 2011 3:28 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

It's literally the mouthguard I use for rugby...$1 from any sports store. I just molded it with my jaw a little bit forward, where I had a hard time "making" my airway collapse. I can kind of stimulate the collapse by forming leaning my head back and breathing in. Not wearing the mouthguard with the...
by Cubbieblue
Sun Jan 30, 2011 1:26 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

Wanted to come back and update this thread. I had a second sleep study which was horrible - I slept maybe 2 hours. Couldn't even get any usable data out of it. However, since the last time I updated this thread I have been using a boil and bite sports mouthguard, which has relieved my fatigue consid...
by Cubbieblue
Wed Dec 15, 2010 8:44 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Any success with OTC mouthpieces?
Replies: 3
Views: 1575

Re: Any success with OTC mouthpieces?

Thanks! I am reluctant to blow $50 - 160 bucks on a mouthpiece that doesn't work. Quite frankly I am just tired of waiting and want some relief right now.
by Cubbieblue
Wed Dec 15, 2010 6:32 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Any success with OTC mouthpieces?
Replies: 3
Views: 1575

Any success with OTC mouthpieces?

I am having a sleep study done in the next week to look for suspected UARS. I have noticed that I can "make" my throat collapse when I am laying down to simulate a RERA or apnea-like event. I have a mouthguard I use for Rugby and I stuck that in there to see if I can still "make" my throat collapse....
by Cubbieblue
Wed Dec 08, 2010 9:03 am
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

Sleeping - Gotcha. Hope your allergy issues clear up.
by Cubbieblue
Tue Dec 07, 2010 10:02 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

I don't get it. Even if someone picks up your UARS, what are you going to do about it?

Why don't you start playing around with pressure settings until you find one you like - or try a dental appliance?

I guess I just don't understand your endgame.
by Cubbieblue
Tue Dec 07, 2010 9:05 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

Sleeping -

What are you doing now to get a diagnosis/treat your UARS?
by Cubbieblue
Tue Dec 07, 2010 4:54 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

All I know is that if you don't look out for yourself - no one will, not even your mother.
by Cubbieblue
Mon Dec 06, 2010 7:43 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

Freddy,

I suspect I have UARS as well and I am not currently on any treatment. However I have been using Zyrtec and nasal irrigation (saline) before bed and I have noticed a difference as well.

Stanford seems to get great reviews from the folks on these forums.
by Cubbieblue
Mon Dec 06, 2010 2:46 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

SleepingUgly wrote:Good luck! Let us know what happens.
Will do. They seemed pretty open to running an auto-pap trial for a few months afterwords as well if I want to try it and nothing else comes up.
by Cubbieblue
Mon Dec 06, 2010 1:53 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

I just called the sleep center and scheduled my appointment. This lab DOES score RERAs and apparently just got new equipment in June to better assess them and test for UARS.

Woohoo!
by Cubbieblue
Mon Dec 06, 2010 10:21 am
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

Sleeping - are you searching for a UARS diagnosis as well? Have you tried any forms of CPAP?
by Cubbieblue
Sun Dec 05, 2010 7:23 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

Thanks for the links!
by Cubbieblue
Sat Dec 04, 2010 8:26 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

. . . Dr. Krakow says he doesn't use CPAP on any of his patients anymore . . . The good doctor, Dr. K., is a brilliant man and does good work for patients who haven't been helped by more traditional methods. He can be a bit cutting edge, though. I like docs who push the envelope with their methods ...
by Cubbieblue
Sat Dec 04, 2010 7:59 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: UARS or idiopathic hypersomnia
Replies: 72
Views: 10757

Re: UARS or idiopathic hypersomnia

Some people snore at night, have frequent arousals or micro-arousals and are tired or sleepy in the day. They can be said to have upper airways resistance syndrome (UARS) if there are indications that resistance is high at the time of arousal, even though there is not enough reduction in ventilatio...