Toby used the Flexi-fit fisher-paykel but that was too bigso they gave him teh Profilelite Nasal Cpap (i think) but i don't think it would it would matter which mask - they are on his face and he is tactile defensive anyway

Well - what a disaster our hospital visit was. Toby just wouldn't tolerate the CPAP mask with the airflow. I managed to get him to sleep with just the mask the first night and then when the doctors actually had a look at the mask on his face they decided it was just too big. AFter trialing a few oth...

just wanted to let you all know that our visit to the hospital has been delayed for a few weeks as there are no available beds in the children's hospital - i will keep you all posted.

thanks
Michelle

Thank you very much for all your input. I am reading through everything this weekend as Tuesday we go into hospital to start the CPAP for Toby. We have 3 nights in the children's hospital and then the last night another sleep study. I am truly amazed how helpful i have found this site to be being th...

I am new to the forum and would love to know if there is anyone else out there that has had experience with CPAP on young children with Down Syndrome We are going into hospital next week to get him hooked up and try to get him to wear it. His apnea is severe so we really don't have a choice but he h...