Search found 19 matches

by talyn777
Wed Jan 30, 2008 8:39 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8937

massage is the best

Over all the years, by far the best investment I ever made was the couple of thousand dollars we spent sending my wife to massage school. Massage does help. Myofascial relief, if you can stand it, can give you relief for hours. I believe sometimes that massaging a trigger point or other painful area...
by talyn777
Tue Jan 29, 2008 10:17 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8937

thank you

Thank you. Re-reading my post, I see that it could look like I'm saying that fibro is just a psychological problem. Definitely not. In fact, the dopamine connection looks promising. But our mind-body connection definitely affects the levels of our psycho-enzymic-endocrine-whatsit systems. Seratonin ...
by talyn777
Tue Jan 29, 2008 9:06 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Encore Pro - Has anyone ever had insur. pay for it?
Replies: 9
Views: 1423

Respironics BiPAP Auto SV

You said there are two folks with this machine. Add me to the list. I got my first full night's sleep on the machine last night, 6.5 hours. I attribute some of it to trading my machine in. The first one they sent me was acting up. This one was great. And doesn't seem to have a bad "new machine smell...
by talyn777
Tue Jan 29, 2008 8:36 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8937

neurological pain

yep neurological pain doesn't follow the same rules as other forms of pain. Normal analgesics can make you feel better all over (euphoria) and help out with the secondary pain from tensing up, muscle spasms, etc., but the primary pain is between your ears. Not that it doesn't hurt just as much, but ...
by talyn777
Mon Jan 28, 2008 3:39 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8937

suboxone - subutex

Subutex is a very powerful analgesic, like Oxycontin, but it doesn't have a sharp withdrawal curve. You can take it in stead of the oxycontin and you won't have withdrawals. It is a perfect replacement. Then you taper off the suboxone, which is much easier to do. Not as easy as they say, but not too...
by talyn777
Mon Jan 28, 2008 3:30 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8937

yardbird

Yardbird, from your description, it doesn't sound like she has fibro, at least not classic or severe, but more likely a kind of arthritis, perhaps coupled with a damaged disc causing some neural pain problems on her skin. Sometimes my right arm gets scalded spots and my left arm gets a numb patch. W...
by talyn777
Mon Jan 28, 2008 10:47 am
Forum: CPAP and Sleep Apnea Message Board
Topic: New machine & it smells !! How
Replies: 21
Views: 3385

lipid pneumonia eek

OK, that is GOOD to know. I have never heard of "lipid pneumonia", but now I have. I'm guessing there is something about the Pur-Sleep inhalents that prevents this problem? I guess they are mostly volatiles and probably very small amounts. This seems to be caused by the petrolatum. I wonder if there...
by talyn777
Mon Jan 28, 2008 8:54 am
Forum: CPAP and Sleep Apnea Message Board
Topic: New machine & it smells !! How
Replies: 21
Views: 3385

the machine itself

all of these suggestions are good if it is the mask or the lines, but I'm guessing the problem is the machine itself. My new Respironics BiPAP auto SV smelled like oil and plastic and hot electronics for days after I got it. I actually traded it out for a different machine that smelled that same way...
by talyn777
Mon Jan 28, 2008 8:45 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Sleepguy has done it again!!!
Replies: 77
Views: 13826

question about brands

Does anyone recommend other products besides the Pur-sleep.com kits?

Can these oils be added directly to the humidifier or is it after the humidifier?

I've never used one, but I'd like to try something besides loading up my mustache with Vicks Vapo-rub to keep my sinuses clear.

Thanx, Talyn

by talyn777
Mon Jan 28, 2008 8:33 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8937

Lyrica and FMS - questions

Speaking of fibromyalgia syndrome (FMS) and Lyrica, I have been thinking of switching from Neurontin to Lyrica. I would like to hear from anyone that has taken Lyrica for their FMS or similar problems. Side effects? Efficacy? Did it help? I have heard a lot of controversy on the Mirapex / Requip tre...
by talyn777
Mon Jan 28, 2008 8:29 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8937

fibro in the family

I have been living with FMS / CFS for over twenty years with many different attempts to resolve it. I am just now working a lot harder to get the sleep side of things under control. I am taking Welbutrin / Neurontin which helps some and a I was on fairly high dose Oxcycontin. What I eventually figur...
by talyn777
Mon Jan 28, 2008 7:55 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Resmed VPAP Adapt SV - for Central Sleep Apnea
Replies: 626
Views: 433067

respironics issue

I talked to a tech at Respironics directly, not easy to do, about the problem. He said that this is a problem with some of the units and that I should return it for servicing. Not a common problem, so don't let me start a stampede. I also notice that it is a little disconcerting to wake up during wh...
by talyn777
Fri Jan 25, 2008 9:44 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Resmed VPAP Adapt SV - for Central Sleep Apnea
Replies: 626
Views: 433067

ResMed vs Respironics

That's strange, they said the Respironics BiPAP autoSV (BPSV) was more expensive than the ResMed Adapt SV (ASV) and that it had more sophisticated algorithms and further that the ASV couldn't be set to meet the doctor's prescription. I am curious for one thing because I seemed to do much better on t...
by talyn777
Thu Jan 24, 2008 10:30 am
Forum: CPAP and Sleep Apnea Message Board
Topic: my SV is trying to blow me up like a baloon
Replies: 0
Views: 954

my SV is trying to blow me up like a baloon

For the last two nights, I have managed to get my sinuses clear and keep my mouth shut, which is GOOD. Now my new Servo-vent keeps deciding after about an hour, to start blowing individual puffs, not very long, but harder and harder, even though my breathing is just fine. Once the blasts start puffi...
by talyn777
Thu Jan 24, 2008 10:20 am
Forum: CPAP and Sleep Apnea Message Board
Topic: beards
Replies: 12
Views: 2283

thank you - warning LONG not rant but slightly ranty

thanx guys, all good answers. I used a CPAP off and on on an "as needed" basis for a couple of years. I "thought" my apnea was mild and if I wasn't having sinus problems, often just didn't seem that bad. There were other problems that seemed a higher priority and I had a LOT of trouble adjusting to ...